The Word of Sinna Luvva

of appointments and pent-up frustrations

2012-01-19T21:20:00.000Z

Last Saturday found me out in the garden doing a bit of lopping, pruning and trimming of sundry shrubs. I must have spent a little over an hour enjoying a gloriously sunshiny day, as the shrubs ensured work for idle hands. Two days later, by way of reward for these endeavours, a day of numbingly aching body and soul when even switching on a kettle seemed far too great an effort.

Mid-way through my waking hours on Tuesday, I started to feel reasonably recovered (from the tortuous preceding day) so there was little to suggest the tear-fuelled emotional response to a visit to my GP’s surgery the following day.

My appointment on Wednesday afternoon was with the same GP referred to in the post “once more to the land of A&E”, and therefore a most positive prospect. Once in the consulting room, the atmosphere seemed overwhelmingly business-like as, within the allocated 10 minutes, he wanted to focus solely on symptoms of breathlessness and chest pains, thereby excluding all other aches, pains and painful disorders, from the equation. He said he was going to arrange an appointment with the cardiology department and was also sending me for further blood tests, as well as a Glucose tolerance test (requested by one of the practice nurses who had been checking my NHS Health Check results). It was also mentioned, in passing that I’d not kept appointments with the Chronic Fatigue Unit and, they had now discharged me! For the truth of this see my post “psycho-fatigue”, (which describes my departure from an assessment visit at which I informed the psychologist I wouldn’t be paying any further visits to the Unit and, hence, discharged myself).

As I headed back home, with my beloved, I was overwhelmed with a pent-up frustration and tears flooded out. I felt as if I was being treated as a chest-pain, not at all as a person! When I got home the tears flowed even more freely and I declared that I wouldn’t bother with any of their b…dy tests. Being told that I’d failed to keep appointments at the psycho-fatigue unit, a false surmise, turned out to be the final straw that released all the pent-up frustration.

Ma Belle swiftly contacted the surgery to inform them how distraught I was after the appointment. A short time later I received a ‘phone call from the same GP I had seen earlier, as he wanted to understand why I should be so upset and, at the same time apologized if he’d misread the situation and seemed too business-like!

Early evening our doorbell rang – an unexpected visitor had arrived! The doctor, having finished his surgery duties, had in his own time called around to visit us and enquire what he could do to help! I was assured that he hoped to take a holistic approach and, he once again apologized for misreading the situation. Talk about going the extra mile! The visit ended most amicably and I will be seeing him again on Monday for a further twenty minute consultation.

Meanwhile I’m bracing myself for tomorrow’s early morning bloodletting session at the District Hospital.

once more to the land of A&E

2012-01-12T15:46:00.000Z

Yesterday morning I was feeling a little more shattered than is my norm but, I managed to remove myself from the duvet lair by 11.30. A brief bout of surfing the web provoked no enthusiasm so, I settled for applying Windows Update to sundry machines whilst listening to something or other on the radio.

Early afternoon, when ma belle and Beth had returned from a mini shopping spree, I prepared a griddled salmon, peppers and mushroom stir fry served with jacket potatoes but, during this (none too taxing) food preparation I began to feel a bit more jaded than usual, even becoming a little stressed.

At about 16.00hrs, I walked with ma belle to collect a prescription from my GP practice, approximately five minutes walking time; I found myself struggling to keep pace with Helen and, apart from aching lower limbs, I became a little breathless. Having collected the prescription the next phase was to drop it into the pharmacist whilst we went to the café a couple of doors along.

That’s when things began to fall apart; even the few yards walk seemed a daunting task as giddiness, breathlessness and a tight constricting sensation in chest and abdomen took control. My beloved took me back into the pharmacists where I found a seat and was proffered a glass of water. An overwhelming cloying discomfort through head, torso and limbs, briefly took control before I began to feel more settled. Meantime, ma belle chauffeuse had brought the car around to the pharmacy to run me back home.

This being the second time in a few days when I’ve experienced such un-nerving symptoms, it seemed a good idea to try to fix an appointment with one of the GPs in my practice. A doctor spoke to me, and ma belle, over the ‘phone and, he thought it imperative that I went down to A&E at the District Hospital.

I was really impressed by the efficiency and thoroughness of clerks, nurses and doctor in the department. I was sent through for initial assessment, BP check etc., within ten minutes of reporting at reception and was wired up for an ECG within thirty minutes. The doctor who examined me was extremely thorough, imbuing me with some much needed confidence, as he sounded out my chest and painstakingly examined the whole abdominal region. He inserted a canula in my arm in preparation for taking several phials of blood for testing, and then requested a urine sample.

The GP, who had suggested I attend A&E, had already checked with the department that I’d arrived and enquired how I was. My blood pressure was rather high (high blood pressure seems to be trending with me these days), even the diastolic had gone soaring, the first couple of times it was checked. Later, my blood pressure was checked again, this time in both supine and standing positions.

Once blood test results had been obtained the doctor returned and re-examined my abdominal region. As the blood tests were all clear he prepared me for discharge but, I then had to wait for some antibiotics to be dispensed as the urine sample had shown up an infection. Once again I must express my gratitude for a wonderful NHS and hope, campaign, and pray that the Tory plans to destroy it can be de-railed.

This morning, shortly after 9.00am, my GP rang me to see how I was. With such concern being shown, I am more than ever convinced that my transferring to the neighbourhood doctors’ surgery, from the one I’d been with since the 1970s, was totally fortuitous.

early one morning

2012-01-07T17:10:00.000Z

Friday morning, removed myself from the duvet lair at a markedly early hour which, viewed retrospectively, was a big mistake. Rather than my usual time of arising, some time after 10.30 - followed by a period of relaxation, this morning I was up and dressed before 9.00am in order to keep an appointment with my dentist. Apart from the unearthly hour, a further source of discomfort was a bout of diarrhoea requiring me to dose myself with loperamide before leaving the house.

Ma belle parked the car some five to eight minutes walk from the dental practice which, in the circumstances, turned out to be a further mistake. Long before we had reached my goal, an all enveloping sense of shatteredness set in, starting with the lower limbs. On arrival at the dentists, an urgent visit to the loo was necessitated, on return from which I was overwhelmed by the encroaching shatteredness, a painfully discomforting sensation of giddiness and general disorientation.

By this time I’d evidently become totally drained of colour, and the receptionist called for the dental surgeon to come through to reception. R, the dentist, decided it would be unwise to proceed with the current appointment and, she sat with me whilst my beloved went to collect the car, and bring it to the door, to chauffeur me home. Meantime, an afternoon appointment has been made for later in the month and, the dentist told me that if I feel at all unwell it’s alright to cancel even if it’s only five minutes before the appointed time.

It was the first time that this medical professional had ever seen me looking unwell, regardless of my sundry ailments; seems to be par for the course with any invisible illness. The only time that others encounter oneself outside the homestead is, by definition, on a better day.

of flight and storm clouds

2011-12-31T19:25:00.001Z

Yesterday ma belle et moi spent six swiftly fleeting hours, 14.30 onwards, at my freshly re-discovered friend Kay’s apartment, where we enjoyed much conversation and a wonderful array of refreshments. Before venturing out I’d already had to resort to sundry medicaments, having experienced a considerable degree of discomfort, but during those socializing hours I, thankfully, only experienced the most moderate discomfort.

The subsequent restless night came as little surprise and, as per my norm, I re-emerged from the duvet realm, this morning, feeling more than a degree under refreshed! Early afternoon found me still in reasonably good spirits, considering the previous day’s exertions, but no sooner had my optimism (in matters of health) begun to take flight than the storm clouds rolled in.

A sudden throbbing ache in both biceps necessitated an urgent squeezing of the upper arms against the torso. Shortly afterwards the all too familiar intense gnawing discomfort in the armpits took hold. A painful ache in the wrists, alternating between dull bruise-like and sharp burning throbs, was somewhat alleviated by the application of splints, as I awaited the relief proffered by an additional dose of tramadol.

The disposition of my upper limbs underwent a most flamboyant choreography as I shifted them from an extended posture behind the back, to clamping them tightly by my side whilst I sat on my splinted hands. The armpits continued to feel tortuously tickled, hollowly crumbling, provoking an intense sensation of dis-ease and nausea.

Having recovered sufficiently from that earlier dis-ease, I am now settled down with my beloved, to enjoy Prokofiev’s ‘Cinderella’ ballet [BBC4]. This festive season, the Beeb have already treated us to The Nutcracker Ballet as well as a ballet based upon Alice's Adventures in Wonderland - how's that for pampering!

^^^^^^^^^^
my New Year Greetings have been posted on 'Mal's Murmurings'

Of Celebration and Payback

2011-12-27T21:00:00.000Z

And just when you think it’s all going well, the old devil returns.

During the past few weeks I’d been enjoying copious doses of Advent and Christmas music, predominantly of the sacred variety, as I looked forward to our quiet Christmas celebrations (just ma belle Helen, Beth and myself). To be perfectly honest, I was quite surprised by how well I’d managed Christmas decorations, food preparation, and sundry minor pressures such festivities may place upon one. Admittedly, the run up to Christmas week wasn’t without an occasional venture into the realm of shatteredness, with spasmodic eruptions of acute pain.

As lunch-time on Boxing Day approached, my chronically throbbing aching wrists allied themselves with intense convulsive pains in both biceps and shoulders. It felt as if my torso was being crushed whilst, simultaneously, being stretched on a rack. The effort of holding the DVD recorder’s remote control, in readiness for starting off a recording, seemed to set every nerve-ending on edge; a kind of pulsating bruise surged through my forearms and shoulders which, in turn, contributed to an all pervasive feeling of nausea.

For the first time in ages, the degree and intensity of pain and discomfort produced a convulsive sobbing response.

I love and adore my family, every moment spent with ma belle amoureuse affirms the privilege of love, and I always wish to affirm all the most positive values and emotions that the season represents. The joy of the season is somewhat marred by the realization / recognition that even my somewhat low-key exertion, as we prepare and celebrate, seems to demand a degree of excruciating payback in return.

moments magic

2011-12-17T13:51:00.000Z

The ache, the joy and pain of transience;

this morning I experienced

that almost

indescribable ache and joy -

a mystical moment -

a Red Kite wheeled and soared

over our garden

floodlit by a clear blue sunlit sky.

Within minutes -

of the bird venturing further afield -

heavy grey clouds had swamped out the sunlight.

Malcolm Evison

No rest for the shattered!

2011-12-15T16:08:00.000Z

Yesterday was the busiest day I’ve spent for a considerable period of time; our friends Roy & Jacqui visited us mid-morning for a little chat. The course of the conversation, over the next three to four hours, was by turns both intimate and challenging, and covered reflection on our sundry life experiences, matters of faith, healing, and the place and limitations of reason. The person of Jesus the Christ proved a central focus to this time of fellowship.

A couple of hours after our visitors departure, Helen and I headed off to the Acorn Centre, where Helen helps as a volunteer, for their Christmas Party. The traditional Christmas dinner was cooked to perfection, and the chef received a very warm round of applause just as he’d intended to sneak quietly away! We enjoyed a quiz which followed the meal; the fact that ours was the winning team probably added a little extra to our enjoyment, and we were then entertained by the music group whose enthusiasm always compensates for any musical limitations. After three hours my body was telling me it was time to go and, I felt quite shattered by the time we arrived back home.

Although I felt achingly tired, by the time I attempted to immerse myself in the duvet realm, an intense excruciating discomfort in shoulders, armpits and upper limbs generally, made it impossible to find a restful posture. My whole body was convulsively shuddering as I, repeatedly, failed to find an appropriately comfortable position. A primary distraction from this upper limb discomfort was my essential response to the, all too familiar, erratically spasmodic intestinal convulsions.

An additional dose of tramadol was called for, before a sufficient easing of the upper limbs and torso discomfort was found. Having got into bed at around 22.15hrs, I eventually found a degree of comfort by 01.45hrs but, even then, an overactive/over-stimulated mind ensured that I remained awake until at least 06.00hrs.

a wimp addresses the nation

2011-12-12T20:24:00.000Z

To be perfectly honest, I’m not coping at all well; I feel like the A1 definition of a wimp. It’s the way a set of (quite minor) incidents so easily seem to form an insurmountable aggregate of frustration, that’s really getting to me.

A simple combination of orthostatic intolerance, intermittent excruciating muscular dis-ease, spastic colon and diverticular discomfort, shouldn’t in principle detract from a full enjoyment of life but, when they collude, the bastards do tend to get one down!

sorry 'bout this ...

2011-12-11T19:15:00.003Z

For the past hour and a half, since about 17.30hrs, I’ve been divided between allowing myself to drift off to sleep or struggling to remain awake. It’s a regular occurrence mid to late afternoon to be fending off an excruciating fatigue, seemingly regardless as to the amount of sleep I’ve managed to grab the preceding night and morning; un-refreshing intermittent nocturnal sleep has just about been par for the course these past several years. Currently I’m sat with both wrists splinted in an attempt to alleviate an extremely discomforting ache in both hands and forearms, alongside a nausea inducing uneasiness in the armpits which requires me to squeeze the upper arms tightly in to the torso.

At least, today, I am not experiencing any submandibular aches and pain, nor is my spastic colon (or the diverticular disease) troubling me as much as it has done for the past several days. Even my lower limbs seem relatively trouble free.

Sorry, but current discomfort prevents any further keyboard endeavour for the time being …

Journeying On

2011-12-03T22:17:00.001Z

The rather more upbeat days continued through to Tuesday of this week; I was even able to visit ‘Open Church’ on two successive days, Monday and Tuesday, for coffee and conversation. Admittedly, sundry medications still have their role to play as part of a general coping mechanism but, it really is great to feel rather more comfortable within my corporeal frame. At the conclusion of Tuesday’s visit I welcomed the prayers of Roy and Jacqueline that I may discern a readiness / preparedness for healing. As one who constantly strives to rationalize their faith, I have difficulty in accepting that simple spiritual gift.

Wednesday saw something of a setback in terms of muscular and joint pain but, more disconcertingly, painful intestinal grumblings (and hyper-activity) put paid to any notion of venturing beyond the confines of the house. Fortunately, recent positive activities have served to keep any acute sense of frustration at bay. By Thursday afternoon I was able to cautiously venture out to Café Culture and, I visited the café once again on Friday in the company of ma belle and Beth.

This evening I’ve prepared a casserole in readiness for Sunday dinner, a spiced chicken, mushroom and peppers casserole; even though I’ve had a healthy sufficiency of food during the day, this dish has certainly tantalized the tastebuds.

joyous participation

2011-11-24T14:49:00.000Z

After the preceding rather downbeat post, it comes as something of a relief to be able to report a few days when low key socializing has become very much a part of the week’s routine. Opportunities to participate in quite sustained periods of conversation / dialogue, and a corresponding sufficiency of emotional stamina, have felt almost like little miracles.

It has been far too long since I was a participant, or felt able to participate, in such animated conversation on matters of faith, politics and general life experience. I feel greatly blessed in meeting R. and J. at ‘Open Church’, on Monday, and the subsequent conversation chez nous. I’ve managed to find the stamina to visit Open Church on three occasions this week, as well as attending and contributing to a lively meeting of the local Labour Party branch and, thoroughly enjoying an evening meal with Janet & Graham at their home in Killinghall.

Wow, I almost feel exhausted by the realization that I’ve been able to manage so much this week.

For all of this I am truly thankful!

from Minor to the more mundane

2011-11-20T19:12:00.001Z

Sometimes the desire to communicate "from" overwhelms the paucity of substance from which one may wish to communicate. At others, that very desire (to communicate) is thwarted by an insufficiency of physical and/or emotional stamina. I am, currently, undergoing a rather prolonged wilderness trek.

Whilst I observe nature's changing seasons, primarily in the context of our gardens flora and fauna, I'm reluctant to admit to my own ageing. Having already felt rather decrepit, for a considerable period of time, the next season for me hardly bears thinking about; much better that I skip a season and pray for Spring's renewal.

The furthest my adventurous spirit has allowed me to travel of late is 'Open Church' at our local parish church or, even closer to home, 'Cafe Culture' located within a few hundred yards of our front door.

A somewhat spastic colon puts paid to any desire to venture further afield whilst sundry, at times excruciating, muscular aches and pains contribute little to any such desire. Discomforting armpit and submandibular tenderness, an erratically irregular sore throat, acid reflux and post nasal drip, are worthy daytime adjuncts to nocturnal restlessness, night sweats and unrefreshing sleep.

Life is never without its drama, as one may be instantly transported from a state of relative alertness to that of a shattering exhaustion.

psycho-fatigue

2011-11-08T14:54:00.001Z

Yesterday, I wasted a morning by attending an appointment at the chronic fatigue unit. After an initial, fairly lengthy, chat with an OT I had to wait in a corridor until a social psychologist deigned to materialize.

When the psycho did emerge I felt that there was something lacking in the interpersonal skills department. She seemed determined to prove that all my problems, aches and pains etc., must somehow boil down to low self-esteem and/or money & security worries. Way off beam!

Having mentioned my problems in coping with bustling supermarkets, sensory overload etc. and, the need to sit down and/or get out into the fresh air, it seemed as if the wind in her tail was forcing her to posit an absurd hypothetical supermarket where I was unable to find a seat and there was no way out - how would I react? Obviously I wasn't going to waste my time answering such a ludicrous hypothesis and, after about the fifth repeat of the question, by way of a response I told her I was leaving and duly walked out.

Although I was quite calm, apart from not suffering fools gladly,she followed me out into the corridor stating that she didn't intend to cause me to have a panic attack; even if she had intended to, I'm afraid that she would have failed abysmally!

Having released myself from the duvet realm a good hour earlier than is my norm, in order to attend,and subsequently spending an exhausting 110 minutes in the department, I was relieved to escape from the Wessely-an lair.

of needles and needless worries

2011-10-30T17:14:00.000Z

The physiotherapist called again on Wednesday afternoon, as promised, to administer a gentle treatment with the magic needles whilst I sat in a chair, rather than my usual supine position. At first I found it more difficult to relax whilst seated but, as I practised a few breathing exercises, I soon overcame this little obstacle. By the time the practitioner was ready to remove the needles I felt wrapped in a gently warm glow of relaxation.

On Thursday I felt even more achingly tired than usual; incidentally this kind of minor setback, on the day following acupuncture treatment, is quite regularly experienced by yours truly, the benefits usually start to be felt around 48 hours after the treatment. Although feeling totally shattered when I went to bed that night, multiple discomforts, in armpits, forearms and torso prevented me from getting any sleep before 3.00am and, even then it only visited me in brief intermittent snatches.

By the time I freed myself from the duvet realm, on Friday morning, I was surprised to feel reasonably refreshed, all the better to face another day of minimal exertion. In the afternoon I managed a visit to Café Culture with my beloved; this neighbourhood café, a few minutes strolling time from home, has proved a real godsend.

On Saturday morning we were anticipating an early afternoon visit from six Southerners plus our eldest daughter Beth. I’ve got to admit that the prospect seemed quite daunting. For the past several years, I have had great difficulty coping with any kind of claustrophobic hospitality but, in the event I needn’t have worried. For some reason (unbeknown to yours truly) I was on quite scintillating form; by way of a bonus, it was also the first full-day that I’d survived, for some considerable time, without having to resort to painkillers*.

It was only this afternoon that I recognized the latter achievement, as I passed an afternoon in state of totally exhausting shatteredness; this extreme discomfort is a far from atypical reaction to any previous days socializing, regardless of that activities duration or intensity.

* a sign that the acupunctures benefits had well and truly kicked in?

normal service may be resumed ... tomorrow

2011-10-25T21:25:00.000+01:00

On Monday afternoon I was really looking forward to a visit from Helen A, the physiotherapist, who over the past few years has helped me with both pain management and a modicum of re-energizing by the skilful manipulation of acupuncture needles. It had been a considerable time since her previous visit and, my body was screaming out for some kind of miraculous intervention but, my guts weren’t prepared to have any of it. No sooner had she positioned the first couple of needles than an unexpected (and unrelated) excruciating spasm of the colon necessitated a change of posture, and consequently the abandonment of the treatment.

I’m unfortunately all too familiar with colonic spasms, and quite regularly have to take an anti-spasmodic medication but, the intensity of pain on this occasion was of an altogether different order. My eyes began watering as I gasped for breath; it felt as if someone had got hold of the intestine and knotted it as tightly as possible whilst somehow managing to wield a cat o’ nine tails thus granting themselves added sadistic satisfaction.

Suddenly, the tears came flooding out as I apologized for being such a wimp; as the evening progressed the abdominal disturbances began to settle down as the pains in the upper limbs started to demand my attention. Come bed-time, discomfort in both upper and lower limbs ensured that several sleepless hours would ensue.

The good news is that I’ve had a much more settled day today and, the physio will be calling later tomorrow afternoon to administer the healing needles.

Cussing and Tears

2011-10-21T14:43:00.001+01:00

For someone who needs / requires a minimum sleep & bed rest of at least twelve hours per night, things take a quite dramatic turn when medications fail to support the necessary restfulness. Last night / this morning proved a cussingly tearful case in point; the cussing, tossing, turning and stamping during the night, the tears on late emergence into the daylight hours.

Having taken an overdue shower, mid-evening, I seriously anticipated a good night’s sleep as I mounted the stairs en route to beddy byes. A quick brush of the teeth, followed by a casting off of the dressing gown, and I was ready to snuggle down with my beloved. No matter how tired I felt, golden slumbers had little or no intention of passing my way.

Crushingly searing pains in the left arm, coupled with muscle spasms in the lower limbs, conspired against the best laid plans. It wasn’t long before the lightweight pyjama jacket, which began to feel unduly constrictive, had to be cast off and, I then tried to apply the wrist splint, which has on many occasions seemed to alleviate the intense discomfort in the upper limb. Arms stretched downwards, both under and over the duvet, then stretched behind my back followed by stretching them above my head; none of this solves the extreme discomfort. Next I try lying on my left side, lying on the right side, lying on my front with arms crossed under my pillow but none of this helps. The discomfort screamingly intensifies.

Having taken amitriptyline during the evening, I now reluctantly resort to 2x50mg tramadol but, even these seem to have little effect. Eventually, sometime after 3.00am, some snatches of sleep; vividly Technicolor naturalistic dreams haunt me back to wakefulness. A time of hopeful waiting follows, hopeful that I may soon revisit the land of nod; I drift back into slumber and a different dream.

When I eventually feel more awake, and find sufficient stamina to remove myself from the duvet lair donning daytime clothing, I’m suddenly overwhelmed by tears of intense frustration. Suddenly, I can’t help feeling that this health-imposed lifestyle is letting life pass me by. It’s only very rarely that I can venture beyond the neighbourhood high street, even that becoming an effort at times, that even the pleasure I derive from the home garden and aquarium begins to wane. I certainly couldn’t manage without the loving tenderness, care and caresses, of ma belle Helen but, at the same time, I feel utterly guilty and upset by the stress I must be causing her.

********

This post also appears on 'Mal's Murmurings' as "a self-pitying yelp of frustration"

Whither Labour or Wither Labour

2011-10-16T19:25:00.000+01:00

What is Labour's position on "free schools" or, where does it differ from the coalition on anything?

As a Labour Party member I find myself somewhat concerned by (Shadow Secretary of State for Education) Stephen Twigg's apparent support for free schools. Has the party policy officially changed since Andy Burnham declared them to be a reckless gamble?

I rejoined the Labour Party when I thought the Blairite days were over but now, with a new leader (who I voted for) condemning justifiable plans to take industrial action by Trade Unionists, many of whom voluntarily contribute to support Labour as part of their union fees, an increased number of Blairites in the Shadow Cabinet, and now this move to supporting free schools I'm wondering which party I'm in!

I am also concerned at the way the party leadership tends to support the Tory / Blairite attack on benefit claimants as scroungers. When I succumbed to Myalgic Encephalomyelitis in 2003 it was incredible the hurdles I was made to jump through in order to claim any benefit at all, the medicals process causing a relapse in my condition and hence, the effort was far too great to consider applying for DLA which my therapist at the Chronic Fatigue Unit insisted I should be entitled to. My entitlement to the State Pension when I turned 65 came as a great relief but. I suppose the official line is that pensioners are scroungers too.

The party has certainly moved a long way from that which I faithfully served throughout the 60's and 70's. Sorry for the rant from what started out as a simple desire to know just where the party stands in relation to "free schools" but, instead, I found myself wondering why I should continue to support it. I, for one, care more about the downtrodden poor, especially those on low pay and/or benefits, than an ill-defined squeezed middle, which obviously doesn't include public sector workers who are scorned for wanting to take protest action against cuts, changes to pensions etc.

Mal's Factory shows Promise

2011-10-10T21:51:00.000+01:00

a new poem - or lines towards such - can be found on Mal's Factory - Poetry & Prose Poems

tasting the air - thwarting the robber barons

2011-10-10T20:04:00.001+01:00

For once, I’m thankful for the thieving profiteering utility companies. Being reluctant to put on the fire, hence supporting their practice of extortion, I discover that it’s a more pleasantly comfortable temperature outside and, a walk in the rain (hand in hand with my beloved) provides me with a little long overdue exercise. For the past few days sundry ailments, of both very and less familiar varieties, had prevented me from

tackling little more than a walk up to the garden pond to feed the fish.

Its strange how often dull damp days have the effect of making the houses interior feel extra cold; it feels so much warmer once outside, embracing the elements, on such days as this.

The preceding lines were written yesterday, before I ran out of the necessary stamina / powers of concentration to proceed further. Today, once again, it began to feel almost intolerably cold sat in the house but, having donned an appropriate lightweight waterproof to wander up the garden and feed the fish, the external temperature proved sufficiently comfortable for me to enjoy a garden snapshot session.

Prior to this little venture into the great outdoors, I’d been feeling totally ill at ease inside my own skin; the pain emanating from armpits, upper arm, elbows, wrists and, spasmodically, the rib-cage served to sustain a nagging sense of nausea. For an hour or so it seemed impossible to find a position / posture that would permit me to either listen to the radio or read a few pages of a book without, most disconcertingly, hurting! So, once again, my reluctance to further support the robber barons, encouraged me to take to the open air, as an exercise in distraction from the prevailing dis-ease.

of enjoyment, endeavours and frustrating limitations

2011-09-29T19:52:00.000+01:00

I’m just so grateful that I became more alert as Tuesday afternoon progressed. By early evening I really felt on good form as Beth, Helen and myself enjoyed a meal at Brios to celebrate Beth’s birthday. I do feel really blessed with such an adorable wife and wonderful step-daughters, they have made my life so much richer.

Although it took quite a while to settle down to sleep, after dining out, I didn’t have too bad a night’s rest albeit with the far too familiar intermittent bouts of sleep! Wednesday morning, I ventured out into the garden by 11.00am to perform a few minor chores, the primary one being to split up a clump of globe thistles (echinops ritro) which had rather outgrown their particular situation. I potted up a small clump, to set aside for a friend who had expressed an interest in them. No sooner had that task been performed than Cathy arrived to visit us, and join us for lunch, just before she was due to head off back to her work in Switzerland. I must admit I was grateful for the break.

Late afternoon found ma belle et moi back out in the garden. This time I transplanted some of the thistles, elsewhere in the garden, before shovelling out some of the wonderful humus from the bottom of our compost bin. The latter task proved quite exhausting and, it wasn’t too long before I found myself achingly on the verge of collapse. I thought it wise to listen to my body! My beloved supervised me as I took a shower before settling down to a very lazy evening. Even though I felt exhaustedly tired when I retired au lit, at about 10.00pm, an extremely restless night followed. Intermittent sleep took over from around 4.00am and I finally emerged into a beautiful new day at around 11.00am. It seems that, these days, regardless of my levels of activity / inactivity, my bed rest requirement is generally between 11 and 13 hours.

Earlier attempts to write this blog were thwarted by a nausea inducing discomfort emanating from the armpits. It’s really hard to describe this sensation, which forces me to clamp my arms tightly to my side or stretch them behind my back but, it totally disrupts any attempt to concentrate on reading or web-surfing. I’ve discovered that this type of discomfort can, occasionally, be moderately alleviated by applying my arms to a more directly physical activity but that’s entirely dependent on my having a sufficient reserve of stamina.

the best laid plans

2011-09-27T15:56:00.001+01:00

After that wonderful Early Bird morning and subsequent day, ( bird talk – not quite up with the larks ), I fully expected a decent nights sleep to follow. My hopes and expectations were drastically thwarted; I remained resolutely awake and alert throughout the nocturnal hours, sleep only arriving after 8.30am and, spasmodic at that. As a result, my emergence from the duvet realm (yesterday) did not occur until 11.30am; the rest of the day witnessed little action from yours truly until mid-afternoon when I gathered a few windfall apples, raked and grazed the ground (including the longer grasses intrusive moss underlay) in the more wildlife friendly area of the garden and, gathered a few tomatoes from the greenhouse plants.

The evening was spent basking in the company of ma belle, listening to some music before watching ‘Doc Martin’. By 10.00pm I was most decidedly shattered, even omitting the teeth cleaning ritual prior to hitting the sack. Almost immediately upon my head sinking into the pillow I was wrapped in slumber. Sound sleep, with a few intermittently vibrant dreams, ensued until after 7.00am. Post 7.00am I slumped back into sleep until 10.00am, the cup of coffee, left on my bedside table as my beloved departed for work, remained untouched and well and truly chilled.

One would have thought that an early venture out of the house, following such a good apparently refreshing sleep, would have found me with an extra spring in my step but, that was not to be the case. As I headed off along the road, my lower limbs felt as firmly supportive as a pair of loosely rolled-up towels. My left arm felt like an achingly hollow lead tube.

About a third of the way towards my goal, Open-Church at St Marks, I mentally yielded to the message from my exercise resistant limbs and, after the briefest of pauses, began the slow saunter home; and now, a few rested hours later, my body finally seems to be waking up.

bird talk - not quite up with the larks

2011-09-25T20:54:00.000+01:00

Emerged from the duvet lair at 10.00am, my earliest time in weeks, and commenced preparing a spicy chicken, peppers and mushroom casserole ready for dinner today (and tomorrow). It went down a treat served with my special herb roasted potatoes and sundry steamed green vegetables.

After lunch, ma belle went to a store across town to replenish our stocks of bird feed; at present our avian friends are enjoying autumn’s bounty but it won’t be too long before they become a little more reliant on our supplements. In recent days, we’ve had a goodly number of goldfinches on both of our nyjer seed feeders. Flocks of house sparrows ensure that we have to regularly refill our token seed feeder offerings; it’s also fascinating to watch their agile manoeuvres as they cling to wheat stems, seeking out the last fruitful ears. Blackbirds can occasionally be seen in the proximity of the bruised fallen fruit at the top of the garden but, they’re not visiting as frequently as they were earlier in the year.

It’s a really pleasant surprise to not be feeling totally shattered and, many of the familiar aches and pains are currently a mere shadow of their usually boisterous selves, with only a minimal need to resort to tramadol.

A Step Forward

2011-09-21T19:42:00.001+01:00

Last night I managed to attend a Labour Party branch meeting, the first time for some months. Colin Burgon’s most stimulating, inspiring and entertaining speech, “What can the Left learn from Venezuela?”, was followed by a lively discussion. A chance to replenish our glasses, hand-pulled ales being a rare treat for me these days, was followed by the more routine branch business. And, as if that wasn’t enough, I even managed to stay for some post meeting conversation.

Earlier in the day, I’d been seriously wondering whether it would be yet another occasion for me to proffer my apologies. After 13 -14 hours of bed rest / restlessness, it had required a tremendous effort of both willpower and physical stamina to remove myself from the duvet lair. The gamut of emotions and felt body temperature was extremely broad, both limbs and torso felt shudderingly cold during the first hour or so, applied hot water bottles making little apparent difference. After two discomfortedly restless hours, au lit, the situation had reversed as perspiration oozed from head, torso and limbs.

Cramping pains in the left upper arm, spasmodically accompanied by aches across the upper chest and both shoulders, and a painful tenderness under the chin, conspired along with abdominal bloating to ensure that sleep remained a distant dream, or vain hope, for the next few hours. The gnawing spasms in the left upper arm persisted well into my ex-bed waking life.

Having experienced that degree of dis-ease in the preceding 20 hours or so, it came as a pleasant surprise to be able to participate in the LP meeting. Today I’m experiencing a little payback, a tawdry collection of gut-wrenching abdominal grumblings, searingly painful sinuses, aching limbs, jangling nerve ends and, an underwhelming sense of exhaustion. In terms of morale, the meeting / socializing experience, on this occasion, far outweighs any consequent additional discomforts.

refreshed ... ?

2011-09-14T20:40:00.000+01:00

Wow, it’s already 17.30hrs and I’m just beginning to feel awake. Having slept quite soundly, albeit intermittently, retiring au lit shortly after 22.00hrs last evening and emerging from the duvet lair at around 11.00hrs this morning, I should have felt refreshed, right! Truth be told, I can’t quite remember when I last felt refreshed / really awake during any morning or afternoon but, things have got much worse since I started taking the amitriptyline.

Had a telephonic conversation with the duty doctor this afternoon; “Mirtazapine, Amitriptyline and Tramadol, they’re all sedatives”, he says. I explain that I’d only just taken a couple of tramadols today, only resorting to them when absolutely necessary. I suggest that maybe I should ditch the mirtazapine but, he thinks that’s a bad idea and comes up with the suggestion that I take it in the morning (instead of the evening) and just take half an amitriptyline in the evening.

The experiment continues …

Two New Poems on 'Mal's Factory'

2011-09-11T21:16:00.000+01:00

I've posted two new poems - "SHATTERED" and "3.00am message to myself" - on 'MAL's FACTORY'

False Hopes

2011-09-11T16:50:00.000+01:00

Regular readers may have noted my problems with exhaustion and a corresponding lack of refreshing sleep. Much of the time it has not been quite as simple as lack of refreshing sleep, more a lack of sleep (full stop). Out of my current average twelve hours bed rest requirement, a good night’s sleep could be as little as three and a half hours. It’s commonly said that as one gets older they require less sleep but, in my case, when it comes to the amount of bed rest required, this has most markedly increased.

In my youthful heyday the nights when I spent as much as eight hours abed (during the working week) were very much the exception; any hours in excess of this on non-working days were most definitely a pampering luxury, rarely a necessity as they are now.

I have been finding relief from some of the daily aches, pains and spasms, through a combination of tramadol, ibuprofen sundry orthopaedic supports; unfortunately, this still doesn’t prevent intensely discomforting pains interfering with my desire, from a state of shatteredness, to get some sleep. On such occasions, even lightweight pyjama jackets and / or trousers feel like intensely constrictive pain dispensers in their own right.

A couple of months ago the GP put me on a small dose of (the anti-depressant) mirtazapine in the hope that its sedative effect would help me get some shuteye. For a week or two it certainly seemed to be helping, even though it could still take a good couple of hours of excruciating tiredness before mind and body yielded to the land of nod. Some of the more intense pains in the region of the armpit and upper inner arm persistently nagged me back into a fully wakeful state. The doctor has now added an additional anti-depressant, amitriptylene, to my evening medications primarily for its supposed analgesic effect.

Having benefitted from a couple of pain-free, almost completely restful, nights my hopes really began to build up. Yesterday, having taken a couple of tramadol late morning, I felt no need to take further painkillers for the rest of the day, simply taking the mirtazapine and amitripylene in the evening. What followed was the most agonizingly painful sleepless night; admittedly it wasn’t helped by the highly amplified sound pulses emanating (until 2.30am) from a private party a couple of blocks away. A fair bit of time was spent stomping and cussing around the bedroom and landing, experimenting with wrist, shoulder and elbow supports, as well as consuming a couple more tramadol. The pain eventually began to ease by around 4.30am but, my mind was (by then) far too active to permit me any slumbers. Thankfully, by mid-morning I attained some brief, dream-filled, spasmodic patches of slumber.

I am attempting to retain a degree of hope that the recently prescribed medications will eventually fulfil their prescribed function but, it feels rather like a hope against hope!

*********

since my previous post I have added a few more snapshots, 'the fuschia is present', to 'Mal's Picturebox'.

Of (Arm)Pits and Pendulum

2011-09-03T18:07:00.001+01:00

A private resolve, to refrain from further postings until I felt more upbeat (on the health / well-being front), has now dissolved; I’m afraid that you’ll just have to take me as I am! I have no particular desire to be / become a moaner but, nor do I see any point of omitting mention of the sundry aches and, occasionally searing, pains ones flesh is heir to. For good or not so good, I am the result of all my life experiences whether chosen by or imposed upon me.

You may have previously gathered that this has not been one of my better years, any kind of relapse is unwelcome but, I still remain grateful that I have not had to plumb the most excruciating depths this wretched illness (M.E.) can deal out. I am most fortunate in only being a moderate sufferer but, even that moderation has at times proved quite intensely disabling.

And now, for the fifth or sixth time in as many days, I return to this same page in ‘Word’ in the hope that a sufficiency of stamina and a release from having to clasp my upper arms tightly to my torso (to alleviate the intense discomfort emanating from my armpits in normal free flow positions) may coincide to enable the completion of this posting.

The sharp nauseating ache and throb in the armpit is a tactile equivalent to chalk “squealing” across a blackboard. At other times an unexpected sound, not even necessarily of sufficient decibels to call a noise, can seem to sear through my flesh and crush the ribs. It’s almost as if my nerve-ends, in attempting to tread carefully on eggshells, all too startlingly draw ones attention to their own discretionary priorities.

I must admit to some uncomfortable guilt feelings in, once again, being / feeling unable to contemplate a few days away whilst my beloved has a break from work; to be honest, I even have to steel myself to cope with trips out to locations within ten or twenty minutes drive from home.

On the plus side I did manage a visit, with ma belle, to a local garden centre on Thursday and, we really enjoyed a visit to ‘Brio’ for a delicious meal yesterday afternoon. In the evening we immersed ourselves in Almadovar’s movie ‘All about My Mother’ which we’d recorded from Film 4. At lunch time today, accompanied by Cathy, we popped around to Café Culture for a little light lunch before returning home to wallow in the emotional riches of ‘Toy Story 3’.

The Pond Refreshed

2011-08-22T21:00:00.001+01:00

Just a little celebration of our freshly cleared and cleaned goldfish pond!

Let It Bee

2011-08-22T19:42:00.000+01:00

just a few busy bees in a corner of our garden

snapshots on Mal's Picturebox

2011-08-10T20:23:00.000+01:00

I've just posted a few macro snapshots of bees on a globe thistle, Close Encounters - (Bees on a Globe Thistle) on Mal's Picturebox.

where to begin

2011-08-08T19:32:00.002+01:00

Just another typical morning; cup of cold coffee on the bedside table, clock radio spewing out a familiar mix of entertainment and banality and, I’m still abed, even though the ante-meridian hour has passed eleven!

Today’s the day I’m to visit my GP to check whether the medication, which she prescribed three weeks ago, is assisting me with sleep. Problem is, after the first couple of nights the familiar routine of restlessness, coupled with fitful brief snatches of slumber, still prevails. Most of the time, after a predominantly restless night, I’m drowsily awake around the time my beloved leaves for work (around 7.30am) before drifting off into the land of dreams. The period of drowsy wakefulness is, generally, when my beloved places a (hot) cup of coffee on the bedside cabinet [see opening paragraph].

For all the intermittently fluctuating pattern of sleep, my vividly Technicolor dreams frequently veer towards a nightmare scenario, one where the goal always slips from one’s grasp as one runs, walks, or crawls desperately towards it; walkways erode and crumble beneath ones feet, a doorway inevitably narrows just as you attempt to squeeze through, a bus departs just before you reach the stop. Normality and fantasy indelibly intertwined.

Sundry muscular and abdominal aches and pains, doubtlessly, contribute towards my fitful sleep, as well as the frustration of my daytime hours. I shortly go and see the doctor but, where do I begin? Suddenly I realize the appointed hour has arrived and, walking stick enabled / encouraged, I make my way to the Surgery.

On being called in to the consulting room, Dr D makes me feel immediately at ease. She notes the spinal related nerve pain in my left arm but, is more intent on finding out about my sleeping habits; meantime, a regime of occasional ibuprofen alongside the tramadol should be maintained to alleviate the sundry aches and pains.

The GP has suggested that I should try taking the mirtazapine at around 6.00 – 6.30 in the evening. The thinking goes that, as I’m really drowsy in the mornings, the mirtazapine is probably contributing to the drowsiness and, if taken earlier (than is normally suggested) it may well help induce sleep during the appropriate nocturnal hours. The doctor suspects that the dreams may well have been heightened by the medication but, that should settle down in due course; she also said that she would be contacting Julie at the Chronic Fatigue Unit, with a view to my having a refresher course to help me with my “pacing”.

the process of aging?

2011-08-04T16:30:00.002+01:00

So, it's come to this; old age has got me firmly in its grasp and, I lack the stamina to even attempt to wriggle free!Recent weeks have borne witness to a severe deterioration in my sense of dutiful pride. My old familiar shattering aches, pains and nauseating sense of exhaustion has driven me to .... !

Pride still has a hold, on me, as I struggle to prevent the awful truth being broadcast far and wide but, it's no point trying to live a double life, the strain is just too great.

The honest truth is that I've been driven to watching daytime TV and, all I plead for is a little sympathetic understanding! 'Bargain Hunt', 'Doctors', and re-runs of 'Only Fools and Horses' have managed to fill the aching void of inactivity with a modicum of determined purpose. If I can't work up the enthusiasm, or find the necessary energy reserves to purposefully surf the net, tend the garden etc.; at least the vacuum can be filled by my determination to switch on the television over the lunchtime period, starting from a period frequently less than one hour after my emergence from the duvet realm.

The truly worrying factor is that, not infrequently, I'm actually enjoying the viewing experience.

Since last Christmas, I seemed to have had some of my appetite for reading restored, politics, biography, theology, as well as a modicum of fiction once more became a part my daily experience but, for the past few weeks, my stamina reserves have only allowed (primarily superficial) casual browsing. I tend to place some of the blame on the warmer weather, which has a knack of depleting my already limited reserves of stamina but, I can't help wondering if in fact the real culprit is Father Time.

Watching My Back

2011-07-24T20:28:00.000+01:00

I'm still waiting, albeit impatiently, to find a more regular pattern of sleep; needless to say, such a pattern has not yet emerged. After Monday night's peculiarly refreshing sleep, Tuesday night reverted to the more familiar restlessness; emerging before 10.00am to take a shower on Wednesday, both morning and afternoon necessitated intermittent little naps. By the evening I started to feel a little more awake; not a good sign. Come Thursday morning I was still in the throes of sleep when ma belle ventured off to work (around 7.30am), finally emerging into the new day a few minutes before noon.

And then the cycle repeats, Thursday's late emergence led on to a further night of intermittent sleep, although I did manage to remove myself from the duvet lair around 11.15am on Friday morning and, I then seemed to spend most of the day in an half alert state of being.

Retired to bed at about 10.20pm on Friday evening and then gradually stumbled into a waking state some time after 10.00am Saturday morning. Early in the afternoon I went out into the garden to take a few macro shots, of bees on globe thistles etc., but started feeling a sense of giddyness which persuaded me to go back in the house. Some twenty minutes later I started to have throbbing shooting pains, down my left arm, exceeding the all too familiar aching discomfort of the wrist which is my regular companion!

So, it's panic stations (for me and ma belle) as we head off to the District Hospital when the throbbing pain shows little sign of abating. The good sign is that I'm becoming rather flushed rather than going pale but, we're totally puzzled / worried about this temporarily excruciating addition to my catalogue of ailments. The first nurse who sees me, after about 40 minutes, makes a few notes and checks my temperature and blood pressure, the latter unusually high by my standards, before I return to the waiting area.

After a further 90minutes, or so, I'm called into an examination room where an ECG is administered; at least my heart seems to be OK and, by this time the pain had subsided considerably. A further 40 - 50 minutes later a Romanian doctor comes in and, having sounded my chest and back, and a little chat about Romanian wines, she carries out a few tests on the reactions of my arms and hands to touch. She duly notes an abnormal contraction response in my left bicep before examining the top part a of my spine. Once again as she touches a certain point relatively high on the spine, a quite painful shooting throb goes through my left arm. She notes a degree of misalignment of the spine and thinks that, together with the herniated disc in the lumbar region, could account for much of the pain and discomfort I've been experiencing. As she puts it, I'm sorry to tell you it's a back problem.

An evening in which I took anti-inflammatories alongside a couple of tramadol, and a preparatory mirtazapine, still managed to lead to a night of restless intermittent discomfort rather than a good nights sleep. Today has seen me swaddled in both shoulder and wrist supports as I tackled both dinner preparation and subsequent light gardening chores. Both wrists are currently screaming abuse at me, so once more I resort to ibuprofen, tramadol and, hoping against hope that the mirtazapine will have the necessary sedative effect.

a small blessing

2011-07-19T21:31:00.001+01:00

Today, I managed to remove myself from the duvet lair before 11.00am and, to my great relief, experienced a most unfamiliar sensation, that of refreshment. I honestly can't remember the last time that I felt refreshed after a night's sleep. Fortunately the nigglingly painful spasms in my lower limbs, as well as a dull numb ache in my forearm and hand, were there to assure me that this wasn't just a dream!

********

I've also posted this on Mal's Murmurings with the title "light refreshment"

and suddenly ... SLEEP

2011-07-16T17:49:00.003+01:00

Had an appointment with a GP yesterday afternoon. The doctor was quite firmly of the opinion that I was experiencing a reactive depression, an understandable response / reaction to the debilitating neurologically rooted myalgia, and the accompanying lack of refreshing sleep, which has been my companion for such a prolonged period; she prescribed 15mg Mirtazapine to be taken at bed time.

If the first night's anything to go by they have a wonderful sedative effect and should, hopefully, help bring about a resolution of my sleep deprivation problems. Last night was one of those very rare experiences where I remember very little between putting my head down on the pillow (lateish Friday evening) and slowly, but somewhat groggily, emerging into mid to late morning (Saturday).

I must admit that, at first, I felt somewhat as if I'd been sledgehammered; it took until mid-afternoon before I started to feel properly awake.

A Delicate Balance

2011-07-15T15:02:00.002+01:00

This has been a week of teetering on the edge, a time when both persistently nagging, and spasmodically intermittent, physical aches and pains have been accompanied by a lack of refreshing sleep. This unsettling routine has really started to play havoc with my already fragile state of emotional stability. One would think that as months and years pass by it would become increasingly easy (and certainly necessary) to come to terms with / accept the health-imposed limitations upon ones ability to socialize. For much of the time, this has seemed to be the case (for me) but recent days have found me frequently erupting into unprompted floods of tears, probably in response to an excruciating sense of exhaustion alongside a more vaguely defined sense of futility.

It only requires a small trigger to set these eruptions in motion, especially when one spends far too many hours enjoying / enduring one's own company. Yesterday afternoon should have seen a visit from my physio, to administer the acupuncture treatment but, late morning found me awoken from my somnolent state by a 'phone call from this practitioner to re-arrange the appointment as her fresh supply of needles had not arrived. Had I not already been feeling discomfortedly vulnerable I wouldn't have given the matter a second thought but, on this occasion, it simply served to exacerbate my physical and emotional frailty. My beloved returned home from work to be greeted by a blubbering, sleep-deprived, emotional wreck, and persuaded me to try to arrange an appointment with my GP.

This morning, just as ma belle was preparing to drop me off at Open Church, the doorbell rang and it was a pleasant surprise to find my friend Katie there. Katie and I went down to Open Church, for a cuppa and a chat, whilst my beloved set off for the Acorn Centre (where she's a volunteer helper on the computer course). Just the fact of being with company has a certain healing power and, Katie herself had just been feeling a similar need for company and a change of environment. This morning's event served as a beautiful counterbalance to yesterday's upset over the cancellation of my acupuncture appointment.

sometimes the sunny side goes face down

2011-07-10T15:32:00.002+01:00

When one's horizon becomes restricted (by reasons of health) it can be quite remarkable how much more interest / detail can be found within the narrower constraints.

When the world is one's oyster it's far too easy to overlook / ignore the pearl (one so easily overlooks that which in other circumstances would be considered of greatest import); when one's scope / potential is more restricted even the most common routine or occurrence can become a pearl of great price!

Since 2003, my year of collapses, and succumbing to myalgic encephalomyelitis, I have gradually learned to appreciate much more of the minutiae of daily experience. A walk into the garden can be as refreshing as a holiday away, the garden itself provides such a wealth of (primarily pleasurable) sensory experience which, fortunately, is not of the overloading variety such as that proffered by a visit to a supermarket, cinema, or town centre store.

The pleasure, that it’s possible to receive in abundance from the commonplace, isn’t always sufficient to stave off an emotionally draining intensity of frustration with the inescapable limits to one’s socializing horizon. It not infrequently feels as if a degree of re-active depression is lurking in the shallows, rather than the depths, of one’s psyche!

upbeat to crestfallen and rising again

2011-06-23T19:50:00.000+01:00

I am genuinely puzzled about where the daytime hours go, or at least how swiftly they pass; a sure sign that I’m not currently experiencing any of the more excruciating aches and pains that the flesh has so frequently become heir to. A little pottering about in the garden, the odd half-hour of book reading, listening to sundry genres of music brought to me via radio, vinyl, CD and MP3 – the time just seems to vanish.

Have to admit though that, having had the company of my beloved for the best part of 24 hours every day during the past fortnight, Monday did seem to drag somewhat at times. Even though I strolled down to, and enjoyed an hour at, ‘Open Church’ (in the morning), and performed some minor gardening chores later on, I became increasingly conscious of the absence of ma belle as the day went on and was just eager for her return home from her first day back at work. I never cease to be amazed by the love and bond, between Helen and myself, which just seems to grow stronger with each passing day.

Reflecting on the rapidity with which each day passes by serves, quite simply, to amplify the rapid growth of that bond. It was twelve years ago last March that I first met Helen, we married eleven months after that; I just feel so fortunate in having such a wonderful partnership.

*******

“not currently experiencing etc…..” – less than twenty-four hours after writing the preceding paragraphs, the sundry aches and pains returned with a vengeance. My colon seemed determined to painfully demonstrate its full range of spasticity whilst, simultaneously, my chest played host to a spasmodically pounding ache; at times it felt like a heavy-handed skiffler had chosen my ribs to replace his washboard. Add to this the aching calves and thighs, sore throat and raw feeling sinuses and, you may get the feeling, it wasn’t too bright a start to the day. Having spent a goodly part of the morning in intermittent sleep, I was somewhat surprised to be overwhelmed by a heavy drowsiness in the early afternoon at which point I had to wrap myself in a slanket and seek at least a moderately comfortable posture to snatch a few more zzzzzs...zzsssss…

This morning time had moved into a long slow crawl, each moment hanging drearily on the edge of despair. At times I feared that I was heading back towards depression; reactive or clinical remains a moot point!

After a post-lunch catnap, I decided to sample a little of that which “hath charms”; in retrospect my choice of listening [The Randy Newman Songbook Vols. 1 & 2] may be considered odd in the circumstances but, somehow, even (or perhaps especially) the more cynical lyrics of Randy Newman, presented by the master himself, managed to lift my spirits.

from twinge to twang

2011-06-09T13:21:00.000+01:00

Payback of an unexpected kind, for last weeks gardening exertions, slammed in to me this morning as I took a shower. The shower seat, which has previously proved an invaluable aid, turned out to be this morning’s site of reckoning. Having creakily lowered myself onto the said seat, the task of standing up again proved quite excruciating; the twinge experienced during the descent became a searing twang as my spine convulsed in the vicinity of the herniated disc.

Exiting from the shower proved an intensely painful nerve-wracking experience, and I subsequently needed the assistance of my beloved to towel myself down and get dressed. It’s just as well that ma belle’s recovery is, slowly but surely, getting underway.

A first attempt to move downstairs, walking stick aided, proved abortive. As I tried to lower one foot, onto the first step, a more sustained convulsive spasm toward the base of the spine erupted; a sudden leap up the pain scale from six to nine point five. Thus thwarted I returned to the bedroom and sat down for a little while until I summoned up the courage to attempt the staircase descent once again. With my right hand firmly grasping the handrail, and supportive walking stick in the left hand, I tentatively lowered the right foot onto the first step, and utilized the right foot lead mode on each subsequent step.

A sense of achievement and relief at thus shuffling down the stairs was its own reward.

Nursing ma belle - update

2011-06-07T17:27:00.002+01:00

Just been hitting the tramadol again, hoping that they’ll alleviate the excruciating painful ache in both upper and lower limbs. During the night it was my legs that succumbed to lightning bolt spasms whereas, by lunchtime, it’s now the biceps that are undergoing erratic spasming.

It’s really good to find my beloved able to manage a little food today; after I’d posted yesterday’s blog my beloved’s condition deteriorated further, necessitating further contact with her GP practice who decided to change her antibiotic to erythromycin as well as prescribing some anti-sickness tablets.

No sooner had she swallowed her first erythromycin than it was vomited back; in the circumstances it was difficult to see how she could manage to take an effective dose. Throughout the day (yesterday) even bland fluids could not be retained, occasional sips replaced her normal enthusiastic swallowing.

Having managed a boiled egg and toast for breakfast, I prepared a couple of smoked haddock fishcakes for her lunch and she seemed to really enjoy them. It seems rather strange that when she was running a high temperature she was shivering and shuddering yet, today, with her temperature closer to normal she feels quite overheated.

For myself I had a lunch of my own unique recipe spicy beef meatball pasta – I’d actually prepared it at the weekend and, in normal circumstances both casserole dishes would have already been devoured – which I didn’t feel would have been quite suitable for ma belle’s temporarily sensitive stomach.

The moderately infirm nursing the infectiously incapacitated

2011-06-06T16:33:00.000+01:00

Talk about the blind leading the blind; it's pretty much a case of the moderately infirm tending to the needs of the infectiously incapacitated chez nous. Fortunately the payback from Friday's exertions has not proved as severe as its promise (see previous post) so, I'm able to support my beloved who has succumbed to an infectious ailment. Her throat started to be irritatingly bothersome last Wednesday night and then, became a cause of major sleep disruption (for her) on Friday and Saturday nights. [As one frequently plagued with an erratically disruptive sleep pattern, I can normally be found jealously observing ma belle's usual mode of deep sound sleep].

On Sunday morning, feeling much worse, she visited the out-of-hours doctor who diagnosed acute tonsilitis and prescribed phenoxymethylpenicillin 250mg - two to be taken four times a day for seven days. At that time, although feeling totally wretched and wrung out, Helen wasn't running a temperature; this morning, after a further night of minimal restfulness, she was feeling extremely nauseous, running a high temperature and, simultaneously, teeth-chatteringly shivering. Having spoken to her GP, via telephone, the dosage of antibiotics has been reduced to 1 tablet four times a day.

I'm just hoping that I don't fall victim to the same infection as, ma belle already feels guilty at having me running around after her! I’m somewhat overwhelmed by the sense of helplessness I experience when my beloved is unwell; although I’m happy to prepare whatever she’d like to eat or drink, it’s hard to cope with the fact that she can’t manage, nor has any desire, to eat anything at the moment. It’s altogether a quite unusual situation as Helen is normally the one who can be relied on to “eat what is set before you, nothing doubting”. As she has already been sick a couple of times, sans food, I don’t think it would be fair to coerce her into eating just to help put my mind at ease!

I suppose that, in a way, this reversal of roles helps me to further appreciate just how difficult it must be for my OH to cope with my ME related sundry ailments and pattern of remissions and relapses. A carer’s lot is not a happy one.

swings and roundabouts - a modicum of payback

2011-06-04T20:01:00.001+01:00

Yesterday, the weather proved too enticing to resist so, having acquired a few more plants for the garden in the morning, I overcame my natural caution regarding over-exertion and created an additional (mini-)border as well as some plantings in pre-cleared areas of the extant ones. This task was left until later in the afternoon when the earlier heat had subsided a little. Once the plantings were completed we retreated to the house to relax.

Mid-evening the doorbell rang as some children had spotted a hedgehog under Helen's car, and they didn't want it to be accidentally run over. The hedgehog in question had meantime moved across to some decaying leaves in a corner of our pebbled forecourt,seeking shelter; to ensure that it didn't dash out onto the road, I picked up the hedgehog and took it to shelter in the undergrowth at the wilder end of the garden. The creature remained on the spot where I placed it for a few minutes before scurrying off, much to my relief, into deeper cover.

Although extremely / achingly exhausted before retiring to the bedchamber, sleep proved very difficult to come by - discomfortingly patchy at best, with erratically random bouts of acute nightsweats as a keynote. By mid-day (today) my whole being was a patchwork of nausea inducing aches and pains, abdominal, glandular and muscular. Abdominally, in terms of discomfort and activity, it seemed as if mild diverticulitis and IBS had conspired to optimize my sense of dis-ease.

Today has, of necessity, been a time of great idleness chez nous as I have little desire to exacerbate the situation.

Procedural Matters

2011-05-29T11:50:00.001+01:00

Three days after cancelling, and rearranging, the hastily appointed barium enema, I received a letter from a consultant in the endoscopy department to say that they would shortly be arranging an appointment for this procedure. This epistle was dated 12 May but postmarked (second class) 19 May; my bewilderment / dismay at the too short notice received for the initial appointment may have been compounded by the fact that I was not aware at that time that any such appointment was being arranged.

Anyway, I’m pleased to report that the barium enema / X-ray procedure went without a hitch, even though it’s a long time since my recumbent (though not necessarily in total comfort) torso had to undergo so many postural changes in such a restricted (30+ minutes) period of time. (The exercise must have done me good!). Procedure completed, how wonderful it was for this hollow stomached being to return home, and ravenously devour a banana whilst awaiting the due sizzle time for the subsequent bacon butty; my previous solid food intake had been shortly after noon the previous day.

That gets me on to thinking about the privileged life I lead. Whilst so many in the world lack a roof over their head, access to a ready supply of drinking water and food in their belly, I can eat and drink at whatever moment suits my whim. I adore, and am adored by, my beloved wife, companion and lover Helen and, have two wonderful step-daughters. As long as we stand firm against the Tory / Lansley menace, future generations will also have the opportunity to access the same freely available National Health Service, not at all dependent upon one’s ability to pay, whose services are very much appreciated (despite minor glitches) by yours truly!

Only here to serve ... and cause upset

2011-05-18T18:12:00.000+01:00

Much as I love, and am determined to defend, the NHS it does seem to have a recent record of setting out to upset me. After the last minute arrangements for (and subsequent abortive attempt at) my colonoscopy, a similar last minute arrangement has been made for me with radiology for a barium enema.

This morning having just emerged from the duvet realm at around 11.30am, I opened a small package from the District Hospital informing me of an appointment at 8.50am tomorrow. Of course the preparatory evacuant was to have been taken at 8.00am and then between 2.00 and 4.00pm today. I duly 'phoned the hospital to say that I would be unable to attend but they said that if I forego my lunch I could take the first dose of the preparation right away and, I could take the second dose at 5.00pm!

No sooner had I put the 'phone down than the realization struck home that as I'd not yet had breakfast and, the lunch that I'd have to forego was also the last food permitted until after the treatment; I wouldn't have had any food since teatime yesterday until after the procedure tomorrow! Once more I picked up the 'phone to ring back and cancel the appointment; at this point I became a stuttering, stammerring, tear drenched wreck!

When my beloved returned from taken a little service at the local Methodist Homes for the Aged, she rang the hospital to re-arrange my appointment for one weeks time.

I have only just noticed that the appointment letter was dated 13 May 2011 but the envelope postmarked (franked by the hospital) 17 May 2011 - this delay accounts for the 'actual' last minute / too late notification! Perhaps ConDem induced staff cuts could be held responsible for this lapse in communication.

a painful disorientation

2011-05-16T13:50:00.004+01:00

I must admit that a combination of feeling totally drained and exhausted, with a subsequent nocturnal pattern of discomforted sleeplessness, didn't bode well for this new day. Bearing this introit to the day in mind, I shouldn't have been unduly surprised by the morning's turn of events. After a familiar lazy start to the day, emerging at around 10.30am from the duvet lair, I decided to venture down to Open Church for coffee and conversation. Although it's only about a ten minute slow walk, I already felt quite tired on arrival, a dull bruised ache across the chest at collar bone level being sustained against an erratic cramping counterpoint from the abdomen, provided a somewhat disconcerting background to an overall sense of light-headed giddiness. Suddenly, apparently out of nowhere, there emerged floods of tears from yours truly, an involuntary response to an all pervasive fearful sense of disorientation.

A generalized sense of disorientation and bodily discomfort,spasmodic griping cramps in the abdomen, and a head best described as a bruised hollow floating dysfunctional globe of giddyness - had already provided the keynote (for considerable portions) of the past several days. On top of that, a sharply bruised tenderness around the ribcage (dx costochondritis) has done little to encourage any real sense of well-being. In fact my whole colonoscopy debacle (recorded by my OH, as 'My beloved's bad experience', on her Bright Light blog) seems to have caused a general setback healthwise; of course the timing may be completely coincidental.

I have an appointment at my GP's surgery this afternoon for a general checkup.

***********

PS 17.12hrs I saw my GP this afternoon who gave me a general maintainance check via stethoscope & sphygmomanometer and he feels that it was a panic attack alongside all my old familiar aches and pains. He has also given me a booklet 'Panic : a self help guide' and a mental health questionnaire as well as arranging a follow up appointment in 10 or 11 days time.

just like a woman

2011-05-05T17:05:00.000+01:00

Sometimes we depend too much on the information presented by an official department, in this case the Endoscopy Unit at the District Hospital, that we are in danger of failing to notice any contradictions present in the leaflets provided. As mentioned in my previous post, my colonoscopy has been brought forward to tomorrow so today is a day of vital preparations.

At the head of the page titled 'The Day Before Your Examination' that "at any time today you may drink any of the following: Tea / coffee (with milk or sweetener if desired) ..." yet at the foot of the same page (following instructions with regard to Breakfast, Lunch and Supper, as well as preparing and taking the sachets of bowel scouring preparation) we are told that "Tea / Coffee after Lunch should be black" and that's with lunch allocated for midday!

This footnote also informs one that "no further solid food or milk and other dairy products are allowed after Supper until you Hospital Procedure". The allocated time for supper is 7.00 - 9.00pm when it clearly states that "No solid food is allowed." Surely the note should therefore read that NO FURTHER SOLID FOOD ..... ALLOWED AFTER LUNCH UNTIL YOUR HOSPITAL PROCEDURE"

For lunch I had a portion of chicken breast (steamed) and my next solid food will not be permitted until after my procedure due to commence sometime after 3.15pm tomorrow. I’m already craving bread, crisps and even fruit but I’ll just have to grin and bear it. I’ve never felt such desperate need for a cigarette since I gave them up last June.

A warning that I, as a male of the species, would have liked to have been given concerns the very drastic nature of the bowel preparation. After two violently liquid diarrheal episodes I felt, a short while later, an urge to empty my bladder (having been encouraged to consume lots of liquids) and considered it safe to do so from a traditional standing posture. Unfortunately the attempt to urinate produced a simultaneous anal leakage. Since then it has been essential to adopt a woman's seated posture whenever I need to take to take a pee. That probable side effect would have been worth knowing about!

Urgent Preparations

2011-05-04T16:17:00.001+01:00

And all of a sudden it's panic stations; after last month's sigmoidoscopy an appointment was made for me to have a full colonoscopy at the end of this month. Having just had a late lunch today the telephone rang; the endoscopy department had a cancellation and they wondered if I could go in on Friday afternoon. This means of course that I've unavoidably breached the dietary preparations for "Two Days before your Examination" and tomorrow will be the day for taking two sachets of the purgative solution (Sodium Picosulfate) and my last minimal low fibre food intake will be at mid-day, midway between the two doses, although i am permitted a clear soup or meat extract drink and perhaps a little clear jelly sometime between 7.00 and 9.00 pm.

It's not a case of me having the largest of appetites but, as the appointment on Friday is not until 3.15pm, I feel pretty certain that I'm going to be somewhat pre-occupied with hunger pangs. On reading the preparatory notes I find that it's necessary to "Talk to your doctor before taking the bowel preparation if you:"... - the relevant note here being "Have reflux oesophagitis (a condition where acid from the stomach enters the oesophagus". As things stand, I've been treated for this condition for a number of years so, a hasty phone call to my GP's surgery was in order. Within ten minutes a doctor called me back and assures me that, as the 2x30mg lansoprazole along with occasional doses of gaviscon kept it reasonably under control, it would be OK if I just continue with that medication. [My primary concern had been that the notes went on to state that "some conditions may require you to be an inpatient for administration of bowel preparation" and, somewhat ironically, I've always felt that when one's feeling grotty hospital is the last place you want to be!]

passively full days

2011-05-01T20:46:00.001+01:00

Though still, of necessity, doing little that requires any degree of exertion it's amazing how full my days seem to be! My noblest intention of posting more regularly (to the blog) remains just that, an intention; perhaps I could blame the paucity of posts on not wanting to bore my readers but, that doesn't seem to have bothered me in the past. Perhaps the fact that my days seem to be 'full' is quite simply a reflection of my somewhat restricted stamina levels; had I a greater reserve of stamina then I would be able to fit much more into my days.

Never having been much of a sun worshipper, it's really quite amazing how much time I've been spending sat out in the garden during the current prolonged spell of dry sunshiny days. Parasols are regularly erected at the table in front of the bench, immediately behind our living room, and beside the love seat near the pond, to offer a degree of protection to this fair-skinned beauty. Even whilst sat beneath the parasol's shade I wear a hat, taking full heed of the advice I received when the basal cell carcinoma was diagnosed and excised from my back last year. The shade, proferrred by the parasols, seems to camoflauge my presence for the garden's avian* visitors which have quite frequently settled themselves down in much closer proximity to this human interloper.

An irritable, intensely frustrating, spastic colon has ensured that I rarely ventured far from house and garden in recent days, my most distant jaunt being to 'Open Church' at St Marks - approximately 10 minutes walk - for coffee and a chat. Even that little stroll could prove a little more difficult now that my back trouble (related to the herniated disc?) has flared up again; hopefully a combination of tramadol, ibuprofen gel, and a firm back support will keep that little problem in check. Fortunately, I seem to have regained an ability to concentrate on doing a bit of reading, in the past few days having read Tony Benn's 'Letters to my Grandchildren' and the first couple of hundred pages of Manning Marable's 'Malcolm X a Life of Reinvention'.

Recent bank holidays have meant that I have been blessed with a few more days basking in the company of ma belle Helen, life could hardly be better.

* more on the birds in the garden on my beloved's blog

***************

earlier today I posted a couple of snapshots 'must be a tea garden!' to Mal's Picturebox

new web album - bloomin' spring 2011

2011-04-30T21:53:00.000+01:00

I have just added a new web album of 60 photographs, Bloomin' Spring 2011, to our New Luv4Sinners website!

an Easter Declaration

2011-04-22T16:14:00.000+01:00

pond life

2011-04-21T21:35:00.000+01:00

just had to video this - loved the way the tadpoles were swimming around
the basking common frog in our garden pond this morning

Oh What A Night

2011-04-21T19:35:00.000+01:00

It was another one of those, fortunately not too regular, nights of erratic and painful discomfort. As I needed to be up and about this morning, at a much earlier hour than usual, I decided to take a shower before retiring au lit. One (at least this one) would expect a late evening shower to prove an aid to relaxation and rest but, that wasn’t to be the case.

Firstly, my shoulders didn’t seem able to find a comfortable position whichever way I sought to settle down for some much needed slumber. Next the calf muscles kept tortuously spasming and, in next to no time a painfully aching lead laden hollow sensation in my left wrist and forearm colluded in the protest movement. Having applied my wrist support, to alleviate the agonizing discomfort, I felt ready once more to enter the land of nod but a rebellious body refused to comply with its own needs. That’s the point when the expletives came into play as I got myself out of bed and paced around the bedroom and landing.

On returning to bed my ribs and flesh felt as if they were disconcertingly trapped in a non-elastic skin whilst, simultaneously, an adequately loose fitting pyjama jacket suddenly felt unduly constrictive. PJ’s duly removed, I felt that settling down for the night would now follow just as naturally as day follows night; wrong again! Wilfully directed arms and legs flailed, this way and that, as comfort became a completely elusive goal. By 3.45am, still uncomfortably restless, I decided to take a couple of tramadol 50mg capsules and, within half an hour I began to feel much more relaxed and eventually managed to snatch an hour or two of slumber.

I suppose that, at the back of my mind, the prospect of having to emerge at 7.00am to insert a couple of suppositories, in preparation for a 9.10am appointment for a sigmoidoscopy at the District Hospital, wasn’t totally conducive to getting a good night’s sleep. On normal days, the period between 7.00 and 10.00am frequently proves conducive to some most refreshing rest; it’s almost as if an awareness of missing out (on this familiar luxury) had militated, somewhat perversely, against my taking advantage of more usual hours of nocturnal rest.

This morning, I was actually admitted to the consulting room a few minutes early and, much to my relief the sigmoidoscopy revealed no abnormalities but, an appointment has been made for me to undergo a full colonoscopy in one month’s time.

... and RELAX (again)

2011-04-17T18:32:00.001+01:00

Another afternoon in the garden, primarily with sun hat donned, relaxing in the shade of a parasol. Once again ma belle donned her gardening gear, on her return from morning worship, and has been tackling further border areas in an attempt to slow down the ground elder's rate of advance. Mid- afternoon I decided to load a wheelbarrow with the rich humus from the bottom of our compost bin and duly scattered it across the border that was yesterdays scene of Helen's battle against the pernicious weed (ground elder).

My body informed me that it was time to quit the exertion routine by the time I'd dealt with that one barrowload; I don't really intend to risk any dispiritingly excruciating post-exertional malaise. Relaxation is also the theme for the evening; having watched 'Songs Of Praise' with my beloved she then headed off to Hampsthwaite where she's taking the service this evening and, on her return, we'll probably switch on ITV for a bit of escapism compliments of "Lewis".

I rejoice and am glad in this day the Lord has made!

and a little relief

2011-04-16T20:38:00.000+01:00

As the week went on, my body cried out for an increasing amount of attention. Alongside the all too familiar muscular aches and spasms in upper and lower limbs, the spasms in the calves now accompanied by random painful twinges in the thigh muscles, my GORD (reflux) symptoms seemed to flare up once again, in spite of having resumed the double dose of ppi's.

A totally aching shattered tiredness has frequently caught me unawares mid-evening, my minimum twelve hours bed-rest per day (apparently) not serving to alleviate this excruciating fatigue in any way. At times, whilst (relatively) comfortably seated, a floating giddy headedness accompanied by peristaltic waves of nausea overwhelms me. It feels at times as if the whole ribcage is convulsively contracting and an examination by my GP, yesterday afternoon, confirmed much volatility in the abdominal region for which he has prescribed some anti-spasmodics as well as arranging for me to have a colonoscopy. I've got to admit that the combination of GORD and a spastic colon is not one that I would recommend.

Today has been a day of glorious sunshine and, I've spent several enjoyable hours sat beside the garden pond whilst ma belle pursued her task of clearing away some of the ground elder from one of the garden borders. Prior to that leisurely open air pursuit, we had both enjoyed watching "The Taming of the Shrew", shown as a tribute to Elizabeth Taylor - the chemistry between her and Burton is so wonderful to witness. And now, as I scribble these hasty words, we're watching "Elizabeth Taylor - A Tribute" on BBC2.

as boldness dissipates

2011-04-12T20:54:00.001+01:00

Last night, once again, sleep had no intention of meeting a need; for hours on end it refused to intervene in response to my bodies requirements, restlessness reigned supreme. As we moved into the mid-morning hours a familiar quandary returned; do I just rest here in the hope that much needed sleep will catch me out or, do I get up and put on a bold face as I struggle to stay awake.

The boldness swiftly dissipates as excruciating discomfort becomes the latest manifestation of tiredness; Malcolm the bold crumbles into Malcolm the wimp. By the time in the early afternoon that my physio arrives, for a chat and application of the magic needles, tears are ready to well up. The tears are sourced from a deep rooted frustration at the sundry disabling ailments that have plagued me over recent years and, the fact that they're such a cause of worry and concern for my beloved.

normal service will be resu ... [repost from 'Mal's Murmurings']

2011-04-11T20:58:00.002+01:00

this is … this … this is what … what it … what it feels … feels like … when the … the … the glands … lymph … something or … owww … in the armpit and … and the painful discomfort … … …. means that one … … has … has t … has to lock … aaargh … their arms … tightly … oh stuff this …

a little p e m goes an awfully long way - and I just wish it would stay there!

2011-04-09T19:20:00.000+01:00

The mood of thankfulness and rejoicing soured a little, come early evening. On a note of bubbly confidence I suggested, much to ma belle's surprise, that I might join her on the grocery shopping expedition; that was a mistake. No sooner had we stepped inside the store than a rather generalized sense of queasiness overwhelmed me; first thought was that it may be a panic attack but, my efforts to take slow deep breaths made little difference, the discomfort was of a distinctively physical nature and that's when my awareness that there is not a public loo in Waitrose was re-awakened. So home it was, a rather weepy - almost self-pitying - Malcolm headed back to the car to be chauffered home. I suspect that post-exertional malaise, in response to the previous days activity had finally kicked in. Shattered exhaustion, a feeling that my ribs had undergone a kicking - a deeply bruised sensation apparently emanating from inside the rib cage, and haphazardly spasmodic contractions of the calf muscles served to refocus my attention away from the earlier contentment to an obsessive awareness of my own discomfort.

By 9.30pm, a sense of excruciating tiredness left me with no other option than to ascend the wooden stairs. Things then took a turn for the worse, as a nauseating discomfort in both upper and lower limbs militated against the possibility of finding any posture that proved conducive to sleep. First I applied wrist splints to counter the intensely painful aching void which seemed to have taken over the position normally occupied by radius and ulnar. The attempted relief led to a further numbingly tingling sensation that on previous occasions it had served to relieve. A couple of hours passed applying and releasing wrist supports, all to little or no avail. By this time an aching tenderness emanating from (the glands in) the armpits necessitated the removal of my pyjama jacket. Sometime post-midnight I was able to grasp a few hours of intermittent sleep but my emergence into the new day was somewhat marred by a gut-wrenchingly painful sustained bout of diaorrhea.

As the day went on I began to feel somewhat more comfortable and, this afternoon, managed a little trip down to Brookside Nurseries before delighting in a little light pottering around in the garden.

to bed perchance to sleep ...

2011-04-08T16:40:00.000+01:00

This is the time for sleep. Try frustration instead of sleep; no thanks, I've just tried that and found it wanting! That was last night's pattern, finding myself totally mentally alert when I should have been resting. Perhaps it was the expectation of a sound nights sleep, following on from a day of plentiful fresh air and a more than modest (but not dangerously so) degree of exertion.

Yesterday was one of those spoiling days, once the bright sunshine had broken through; a cool breeze played wonderful counterpoint to the sun's warmth drawing me out from my domestic habitation. Having returned from a mid-morning visit to 'Open Church', where I consumed a cup or two of coffee as accompaniment to a bit of social chatter, I ventured up to the pond to feed the fish (goldfish and golden orfes) and felt suddenly inspired to apply a fresh dose of teak oil to sundry items of garden furniture.

After grabbing a bit of lunch, I returned to the garden and gave the lawn its first mow of the season and also took a few macro snapshots of some of the spring flowers. After that rather full days activity, I had anticipated a better nights rest than that which I was about to receive. Having settled down in the duvet realm by 11.00pm, at 1.30am I switched on the bedside radio to listen to Radio 3 as I'd not yet managed even a brief snatch of slumber. A further 4 or 5 hours later and I'd still not managed even forty winks. It somehow felt like an overactive mind had determined to thwart my bodies rest requirement.

Sometime between 7.00am and 11.00am I did capture a few spasmodic moments of shuteye whilst purportedly listening to Radio 7 and Radio 2. I then allowed myself to slowly emerge in to a new brightly sunshiny day as I attempted to release a modicum of vibrancy from my shatteredly sleep deprived body. I headed up to the arbour seat and was swiftly transfixed by the scuttling and chattering activity of the sparrows in the adjacent shrubbery, and the flittering of peacock and white butterflies over the rockery. As I rejoiced in the new seasons growth, I was almost able to forget my general state of shatteredness.

I rejoice and am glad in this day the Lord has made.

Sometimes

2011-04-01T20:06:00.001+01:00

Sometimes life just feels good, no matter how ropey ones underlying condition may be. It's the simple things that count for so much; the delights of taking a shower comfortably seated, remembering how much one struggled before that simple installation of a seat was made. To relish a rare good nights sleep, waking in the morning feeling almost refreshed and, the odd muscular spasm responding to an appropriate medication.

Having registered with a different doctors practice on Monday, one fortunately within my restricted walking range,I had an initial consultation yesterday where I was able to initiate an essential modification to my precribed medications. To be honest though, even the most efficacious medications seem to carry with them some undesirable side effects and one has to carefully consider their relative demerits.

The GP I saw also appeared to be quite understanding about M.E. which was a very pleasant surprise, when one has become quite used to a rather dismissive attitude, seeing the importance of pacing and resting. She even seemed supportive when I suggested the importance of campaigning on ME related issues and how important an online presence had been for me. An acceptance (albeit reluctantly) of the quite dramatic limitations that chronic illness imposed on any socializing activity, was for me a significant turning point, I was no longer held hostage by a recklessly seething self-pitying anger. The more I resented the condition, the more difficult it had become to develop any kind of strategy to cope with it; acceptance enabled me to regain myself.

Sometimes, life just feels good - just venture into the garden, take a few snaps - Spring is so much in evidence ...

Click on image to enlarge

Disjointed Time

2011-03-28T16:19:00.000+01:00

Concentration was in short supply - a natural adjunct to the state of shatteredness and, last night I was in bed by 9.30pm (BST) being barely able to stay awake; attempts to stifle yawns proved futile. The only option was to yield to the bed rest impulse. Once abed the plot line changed; acute discomfort in wrists and hands, aches and cold shivers and shudders in torso and limbs generally, militated against the necessary restfulness. I applied a wrist splint, took a couple of tramadol 50mg, and removed my pyjama jacket, in an attempt to ease a frustratingly generalized sense of dis-ease.

Come 12.00 midnight, I began to feel more comfortable than I've felt for several weeks and, yesterday's sneezes and watery eye sensations seemed to have vanished. Quite strangely, once I began to feel comfortable I also began to feel wide-awake and, unfortunately, this state of alertness was my companion throughout the night. Wouldn't it have been wonderful to have felt so comfortably alert during the preceding day, or indeed any day, when full advantage could be taken of this rare experience? For at least the first couple of hours I found myself basking in this new sensation, with only a niggling concern that this nocturnal liveliness of mind would no doubt carry with it a penalty of shatteredness later in the new day. At 4.25am, I succumbed to the temptation of switching on the bedside radio and tuning in to Radio 3. I really enjoyed the rich miscellany of classical music, although on this occasion I had been hoping that it would lull me off to the land of Nod but, instead , I listened in a state of entranced alertness. I only managed to snatch some real, albeit intermittent, shuteye between 8.00 and 10.00am.

A brief walk up the road shortly before noon, to register with a conveniently local GP practice, post off a completed census form, and collect a wholemeal loaf from the bakery, was about all the exercise I could manage. Much of the afternoon has been spent reclining in the living room, Radio 4 presenting an interesting audio wallpaper whose weave I find myself drifting in and out of.

Just Another Day

2011-03-27T20:51:00.000+01:00

Yesterday, I released myself from the duvet lair sometime after 10.30am then did very little apart from despatching a few e-mails as part of the Armchair Army in solidarity with the "TUC March for the Alternative". I also felt quite privileged that my name was borne on a Broken Of Britain T-shirt worn by one of the marchers.

I did manage a little walk with my beloved, nowhere near as far as I'd hoped even though a little further than the previous afternoons totally abortive attempt (on that occasion muscular spasms in thighs, as well as calves, conspired with a spontaneous dissipation of my limited stamina reserve, to thwart the endeavour). Even with just that minimal activity I felt totally shattered and reluctantly retired to bed at 9.00pm (GMT) with not even an egg-spoon of stamina in reserve.

Ma belle and I did attempt to watch a bit of light-relief TV, au lit, but sheer exhaustion won out over entertainment. I did, however, remember to put the clocks forward, in readiness for the early morning transition from GMT to BST. I seemed to manage a little more sleep than I do on many nights but, I still felt shattered when I emerged from the duvet realm at 10.30am (BST).

I've never fully recovered all-day today, even having to divide my modest dinner portion into two - split between lunchtime and teatime - to give my ailing digestion an easier task. Apart from the abdominal discomfort, familiar cramping spasms in calf muscles have formed an unholy alliance with excruciating twinges in my thighs whenever any movement necessitated even a moderate degree of stretching.

Visits to the loo have been irritatingly frequent, the dreaded gut-rot has plagued me all day. A differently aching muzzy head and spasmodic bouts of sneezing have added to the day's rich tapestry; for the first time in ages I suspect that I could be coming down with a cold! Considering that for several months before, or when, I first succumbed to ME I constantly struggled with flu-like symptoms – full-blown colds have been markedly absent during the past seven years

Sorry I'm Not Marching

2011-03-26T13:55:00.000Z

Just to assure you that there are many more of us who would like to be out on the streets, demonstrating against the governments ideologically motivated austerity programme, if only our health & stamina would allow it.

Why are you so committed to mollycoddling the economy destroying bankers whist punishing the low-paid and incapacitated?

message sent to PM, Deputy PM, and Chancellor on 26 March 2011

spoilt by lack of choice

2011-03-24T17:18:00.002Z

Just how irritably tetchy, like an overwound spring, I'd become wasn't immediately apparent but, (these days) the most minor event goes wrong and, wham, bam ... I'm in there without so much as a by your leave. I feel sorry for the recipient of the agressive verbal outpourings that ensue, it just seems so contrary to my (what was always seen to be) laid-back temperament. To be honest I never suffered fools (especially the supposedly intelligent ones) gladly but, would always deal with the situation in a calmly measured way, at least that's what I attempted. Nowadays it's shoot first ... ask questions later.

On the one hand I know that suppressing anger / outrage can have a negative effect on one's psychsomatic well being but, at the same time, rapidly vented anger leads one into a lingering slow-motion period of regret, the outrage having frequently been disproportionate to its triggering event. Unfortunately I never have sufficient stamina to release the pent up frustration by more directly physical means - walloping a punch-bag, bopping the night away, even going out for a lung stretching high speed walk is out of the question - so I'm left with a fiery verbal temper.

Since succumbing, eight years ago, to this excruciatingly painful, socially isolating, chronic condition, the irritability quotient seems to have multiplied in an almost logarithmic progression. Intense frustration arises on occasions when I've decided to go with ma belle to do some shopping, only to find that minutes after belting up in the car I suddenly feel too discomforted and unwell to pursue this course of action. At other times I arrive at the shop and have to find a place to sit down, in splendid isolation, whilst ma belle does the shopping. Bracing myself for such outings as visits to shops, GP surgeries, or indeed any priorly arranged appointment, swiftly depletes my already limited stamina reserves. Should a last minute change occur to any of these plans, that's when the spring snaps ...

What surprises me most is the high degree of contentment I have in simple pleasures such as sitting out in the arbour seat, observing the garden's flora and fauna, or basking in the presence of my beloved in the evening. I am essentially a happy, easily contented person; I just wish my body would allow me to socialize more, rather than constantly having to fall back on being self-contained. An asocial mode of being is not my lifestyle choice.

Close Encounters of the Flutter-by Kind - now you see me ...

2011-03-21T21:18:00.001Z

situational frustration

2011-03-18T19:55:00.001Z

Frustration intensifies, normal ‘healthy wellness’ is becoming too much like a vague distant memory; I struggle to recall what it was like to be able to freely socialize. The once taken for granted now seems to define the height of luxury; to just pop around to visit a friend or go out for a drink, to go to a cinema, a theatre, a concert or an exhibition without having to weigh up whether my resources of physical and / or emotional stamina are up to the task, all that seems such a long time ago.

It’s even many years now since I felt able to attend a church service; just the fact of having more than a couple of other people in close proximity, without feeling able to freely escape (without causing a disturbance / disruption) is sufficient to bring on the cold sweats and palpitations. It’s like a strange variety of claustrophobia, the peopled environs seeming to act as a creeping tourniquet being applied to my chest and abdomen, the presence of these others, coupled with the functionally imposed duration, seems to overload my senses; at times, even just having a couple of visitors at home can cause a similar discomforting sensory overload but, at least in these circumstances I am able to retreat elsewhere in the house.

Of course these situational responses can’t really be separated from the sundry aches, pains, and muscular spasms which are the situation's all too frequent accomplices.

The Art of Revival

2011-03-11T19:38:00.001Z

Last evening, after a day of acute discomfort, I set myself a task by way of a distraction from my ailments. An old laptop of mine had become frustratingly sluggish, to a point where it seemed to have discovered the secret of backwards time travel; a simple update of MSE antivirus took on the proportions of installing a new service pack (and that in an imagined scenario when one had failed to install any intermediate patches). So, you may well be thinking, you utilized frustration as a distraction?

The mission this time was to do a clean install of XP Home SP2 followed by SP3, a few drivers needing to be installed in the process. I even managed to install a full Office Pro system, ready for handing the machine over to one of Helen’s students at the Acorn Centre. Having done all this work, it was amazing to see how fast it responded to any command – almost like new; the fact that many of the letters had worn off the keyboard soon allayed any confusion on this point.

The distraction did little to alleviate my painful discomfort but, I feel certain that the time passed much more quickly (and constructively) than it would otherwise have done. I’ve even got another discarded PC in my sights, to attempt another resuscitation operation.

Of LIMITATIONS and ENJOYMENT

2011-03-06T14:00:00.002Z

OF LIMITATIONS and ENJOYMENT

Middle of the night and nature called; an attempted leap out of bed became the more familiar slowly lumbering self removal only, this time, with added difficulties. For the past two or three days the back pains had all but disappeared, only the more regular discomfort remaining in its stead but, now it seems to have returned with a vengeance. It’s strange how one’s own body delights in playing tricks; just when you think it safe, to carry out an effort of moderate exertion, it sends out a disconcerting alarm signal. If only that signal was as transient as that of an alarm clock, disappearing as soon as one taps the necessary button, there would not be a problem but, unfortunately, these signals are not of that peremptory nature which curtails one’s pursuit of the (unwittingly) harmful course of action. These signals always seem to arrive after the harm has been done, swiftly transmuting the alarm call into a sustained aggravation.

So, you may well wonder, what transgression had I committed against my ailing torso? All I’d been doing was carrying out a partial filter and water change in our largest aquarium, changing two of the filter pads and performing a less than 20% water change. I could (almost) swear that I carefully controlled my posture during the entire operation, to minimize the risk of detrimental health effects, but my body makes a different declaration.

Prior to that minor operation I’d made a visit, with my beloved chauffeuse, to the local aquarists to replenish necessary supplies. The journey is approximately 2 ½ miles but, as is becoming an increasingly common experience, it felt like a major expedition; even travelling at speeds which never exceed the legal limit, on primarily suburban roads, can seem like we’re exceeding Mach 1 – my body crying out in reaction to the velocity at which we’re hurtling through space.

The whole sensory overload experience seems once again, and most regrettably, to be edging its way into taking control of my lived experience. I’m just hoping and praying that I won’t tumble once again into that convulsively shattering realm.

Strange as it may seem, apart from the sundry ailments which posit substantial limitations on my activities, I do continue to enjoy life. The simple pleasure of observing, and encouraging, the flora and fauna of our garden is a wonderful joy bringer, second only to the presence of my beloved. As I’m no longer able to cope with cinema or theatre-going, the increasingly wide range of films available on DVD proves a real blessing. My enjoyment of cooking, provided a fair range of herbs and spices are to hand, is another source of pleasure, as is the consumption of the end product! I must admit that much of the time I don’t really feel unwell, sundry muscular and glandular aches and spasms have quite simply become an accepted component of normality; it’s only when i attempt to stretch my activity output that I’m quite forcefully reminded of my limitations.

********************

in case you missed yesterday's frivolous posting on 'Mal's Murmurings' I've repeated it here :

A Nation’s Addiction?

A radio news bulletin informs me that we’re becoming a nation of TV addicts, adding “according to a survey of viewers“!

They should try surveying non-viewers, only to discover that nobody ever watches TV in the UK!

Mal's M E jottings on New L4S

2011-03-04T22:35:00.000Z

Apologies for the recent paucity of postings but, at least I've managed to find the stamina to add a new section, "Jottings from Mal's M.E. Log", to our 'New Luv4Sinners Website'

More on 'Mal's Factory'

2011-02-27T17:19:00.000Z

I have just posted 'A Poem to Secular Jesus', both text and video, to my Mal's Factory weblog

As one door opens ...

2011-02-24T11:42:00.000Z

Just as one ailment is alleviated another seems to posit itself in the full spotlight of my attention.

It is with a great deal of relief that I can report on the effective suppression of the most disconcerting symptoms of GORD, the combination of esomeprazole and domperidone most definitely curbing the most acute intestinal and oesophageal rebellion. Doses of a moderately potent liquid antacid are no longer de rigueur before retirement au lit.

A numb tingling sensation in left hand and wrist still requires frequent application of a wrist splint to offer a modicum of relief but, proves relatively easy to bear (not that one has any choice in the matter). Last Friday, the dentist extracted an offending molar, bringing with it much relief so things began to look rather bright! Come Monday, I once more found myself needing to resort to the use of a back support, as niggles emanating from the lower lumbar region began to increase in intensity.

On Tuesday morning, stick assisted I managed to shuffle myself down to Open Church at St. Marks for coffee and a little conversation, the latter having seemed in short supply since my beloved's return to work (following last week's days off). Even though sundry niggling health concerns somewhat overshadowed the additional hours spent with ma belle last week, I was surprised to find how much more isolated and alone I began to feel now that her normal work pattern has resumed.

No sooner had I got through the door, on my lunchtime return home from St Marks, than the telephone rang. It was a call from someone at my doctor's surgery enquiring whether I'd received the letter and paperwork requiring a Fasting blood test prior to my next GP appointment (already arranged for the following day). I checked the post that had just arrived and, sure enough, there was the letter purportedly despatched on Friday 18th yet strangely postmarked 21/02/11 at 3.36pm. The spokesperson from the surgery had the audacity to suggest that I cancel the appointment with the doctor as I'd failed to undertake the fasting blood test. This was the last straw, I finally had an appointment with the doctor I'd been asked to see and they wanted to cancel it ( this was a cause for resentful hurt on my part bearing in mind the incident recorded in the third paragraph of my previous posting 'The Opening of the Floodgates').

In the event I attended hospital for the blood test on Wednesday morning before going to my doctors appointment in the afternoon, even though I knew the results would not be available within such a restricted time span. The doctor, however, did not require the fasting blood test results; the results of tests that I'd had the previous Tuesday morning were the only requirement - the fasting test being irrelevant to her investigations. The good news, on that front, is that all the results were normal; once again, I'm reassured to know that my health problems are entirely due to there being nothing wrong!

Last evening the severe back pains further intensified and became excruciating as I attempted to remove myself from the bed, to obey an urgent call of nature. I should have realized that lying down, whether on back or side, is the worst possible position to be in should the requirement to extract oneself from the duvet lair become necessary. The manouevre of rolling oneself to the edge of the bed, painfully letting ones lower limbs slide down towards the floor before one is able to elevate the torso, is neither elegant nor reassuring. Having returned to bed, ma belle made sure that my torso was adequately propped up with both standard and triangular pillows, thus enabling a slightly easier removal of myself from those environs at the due time. An additional dose of 100mg of tramadol served to further ease the subsequent manoeuvre.

At the moment my verbal outbursts, arising from a combination of frustration and intense dis-ease, could (to my shame) pass for coprolalia. It's not that my fuse burns any more rapidly, it's simply been a further victim of all pervasive cuts; hopefully, as ailments subside, a much longer replacement fuse will be found. For the present I just can't help feeling painfully frail, vulnerable and not at all nice to know.

The Opening of the Floodgates

2011-02-16T14:27:00.001Z

Just suddenly found myself to be a totally blubbering wreck. I've no idea where the floods of tears came from but, it certainly must have performed some type of tear duct flushing. I was quite happily surfing the net when, suddenly, the armpit discomfort forced me into pressing my upper arms tightly against my torso; it was also essential to put on a wrist support / splint to remove the numbingly aching pain in hand and forearm. Having, from necessity, shut down the PC, I went downstairs to join ma belle.

As my beloved will be seeing her friend this evening, she wondered what I'd like for lunch and profferred the suggestion that maybe I'd like to take advantage of the OAP concession at the local chippie. The fish and chips from this particular outlet are really delicious, a wonderful inexpensive treat, so the suggestion should have been greeted with unconditional enthusiasm! Unfortunately, with my haphazard assortment of gastric disorders, the last couple of times I've enjoyed this feast there have been subsequent repercussions. As this thought passed through my mind, the almost hysterical tearful effusion occurred.

At this point my total distrust of the GPs I've visited recently came to the fore; I've increasingly been made to feel that I'm a nuisance and a waste of their time (wittingly or unwittingly I don't know). Since concentrating on treatment of GORD, any mention I, or my beloved, make of my underlying ME-CFS symptoms / ailments, are swiftly brushed aside / ignored. On the last visit I was asked, in an accusatory manner, why I'd been seeing different doctors (from within the practice), ignoring the fact that on several occasions follow-up appointments booked with the same GP, either online or at the surgery, have subsequently been cancelled, via 'phone calls from the surgery, and alternatives have had to be arranged. I'm also dependent on the availability of ma belle chauffeuse, to get me to the surgery, so also have to work around this; the alternative would be a two bus journey each way and, since 2003 I have found this mode of transport extremely stressful.

When I went to the hospital's phlebotomy department yesterday, for sundry samples to be taken, I was reminded that a consultant endocrinologist had informed the practice that certain of these tests, to monitor my condition, should be carried out at least every six months; this has not happened for the past few years (probably since the previous senior partner, who was my primary reason for remaining with the practice, retired from the practice).

Perhaps the fact that I'm currently on antibiotics, in addition to sundry other medications, suggests that I'm at a particularly low ebb. The opening of the floodgates proved difficult to understand, nonetheless, as I haven't been feeling at all depressed (just ill)! Maybe I'm a little more frail (and vulnerably de-energized) than usual having missed my most recent physio / acupuncture treatment; the physios services were required, to deal with some very urgent cases, by another district within the health authority, which no longer employs anyone in an equivalent position, quite likely a result of the ConDems ideological cuts.

*********************

P.S. a rather more upbeat postscript to this posting can be found on my 'Mal's Murmurings' blog, apropos the floodgates.

Romantic Promise and Actual Practice

2011-02-14T18:48:00.000Z

This should be a really romantic week, today being Valentine's Day and Saturday being our Wedding Anniversary and, what's more, my beloved has the whole week off work. Of course things never go fully according to plan; this evening we were due to dine with Helen's sister Janet and Graham (her spouse) but unfortunately, owing to the erratic behaviour of my health - with special reference to the digestive tract - it seemed much safer, yesterday, to cancel that arrangement.

So, what romantic treats has today brought. It was wonderful to enjoy more of my essential morning lie-in snuggled up to my beloved, who has usually headed off to work about three hours before my routine emergence from the duvet realm.

Other events were not quite so romantic; a visit to the dentist revealed a dental abscess, for which I'm now taking a course of antibiotics, whilst later in the day a further visit to my GP's surgery was in order.Tomorrow, I'll be headed off to the hospital for a few more blood samples to be taken, prior to a further GP appointment (arranged for next week).

GP or not GP that is the question

2011-02-13T16:05:00.000Z

and nothing has improved since the previous posting, simply a more sustained discomfort; apart from the spasmodically acute pains in chest and abdomen, yesterday saw a return of my faint giddiness which cut short a visit to Helen's Church (Wesley) for a spot of lunch.

Up until 19 January, apart from my usual tramadol (painkiller), mometasone (nasal spray), I'd be taking 2x30mg lansoprazole (proton pump inhibitor) each day but still needing the odd dose of Gaviscon at night. On the 19th, the doctor I saw took me off the lansoprazole and switched me to a different ppi, namely 1x40mg esomeprazole daily.

On 9 February, I had the appointment mentioned in my previous posting (Worth A Mention?). In his effort to ensure that he involved me in the decision making process, the GP I saw this time somehow decided that I should continue with the esomeprazole (although it was proving less effective than the double dose of lansoprazole - except briefly on the initial few days) but also prescribed 10mg domperidone (a dopamine antagonist) to be taken 3 times a day.

Apart from the increased discomfort, and even occasional bouts of volatile diaorrhea, I once again find myself wondering whether the chest pains are in fact directly connected with my gastro-oesophageal problems. I quite simply had the feeling that the GP just wasn't interested!

Worth A Mention?

2011-02-11T15:08:00.001Z

strange how medications to alleviate a condition can make that same condition much worse

never sure what's a reaction to new medication and what's part of the underlying condition

Having just "tweeted" the above (apparently trivial) observations, I suddenly realized that they may be expressing a deeper underlying concern

.
**********************

I knew when I made the appointment that it was a follow up to check how a change of ppi is affecting me. Informed GP that for a few days it seemed better, explaining an inadvertent side effect of the extra dosage of the former ppi, but now it didn't seem as effective as I was experiencing a greater degree of discomfort. The GP of course asks me, do I think that my current discomfort, an amplified version of what I'd been already been experiencing, was related to the gastric problem. Having acknowledged fairly recent A&E incidents which confirmed that there was no apparent heart problem, and last years endoscopy finding no obvious cause for my gastric problems, I could only reply that according to previous GP guidance that did seem to be the case.

The outcome was a decision made, with my uninformed collusion, that I should continue with the new ppi but also take a dopamine antagonist 3 times per day. The first couple of days on this new regimen and, I'm feeling markedly more discomforted, in the gastro-intestinal / gastro-oesophogeal stakes, than I've felt for quite some time. The frustration continues. The question is, do I persevere?

Having stated the question, I now return to the larger problematic picture. Any visit to a GP tends to focus on a specific problem and, as a result, other ailments that are part of an ongoing chronic condition are rarely given an airing, in the course of a consultation. The doctor is presumably well aware that I need to take pain-killing medication, primarily tramadol, to treat persistent muscular and skeletal pain but, I sometimes do find myself wondering whether the broader underlying condition could also be responsible for my gastro-intestinal problems.

Unfortunately treatment only seems to be available for specific symptoms whilst the larger underlying picture seems to be trivialised or ignored. Indeed, as an example, there has always been a marked reluctance on the part of the government, and the Medical Research Council, to carry out bio-medical research into the neurological condition Myalgic Encephalomyelitis. One feels, at times, afraid of mentioning the aching tenderness in armpits and under the chin, the sharply bruised leaden hollowness in the lower limbs whilst still abed, a sense of ones skin being pulled too tight over one's flesh, random virulent nightsweats, degrees of orthostatic intolerance, a not infrequent need to don supports on ankles, wrist, back etc in order to cope with the days most basic tasks.

Don't get me wrong, I've long since learned to cope with the daily onslaught of aches and pains and, I generally manage to pace myself sufficiently to avoid a major crash but, that doesn't mean that life is easy, much as I enjoy it.

Siskin at feeder

2011-02-08T20:26:00.001Z

a recent poem ex 'Mal's Factory'

2011-02-07T14:09:00.000Z

Restless Night

frantic and static
collude
to break the spirit -

the chorussed scream
of roll and stretch
weaves counterpoint

against the searing ache
of stasis -
the chinese burn

of movement
resists
the planned escape

Malcolm Evison
30/01/11 – 01/02/11

Mal's drifting murmurs

2011-02-06T20:54:00.001Z

Today's blog post from yours truly, drifting with the flow, can be found on 'Mal's Murmurings'

wonderment and guilt - spontaneous jottings

2011-02-01T21:04:00.000Z

A strange combination of wonderment and guilt are today's companions. Having allowed myself time to just sit, in the silence of the living room, looking out onto the garden, my mind is once again filled with the question, why is there something rather than nothing? Because there is something, imagining nothing (or a non/state of nothingness) seems impossible - I find myself watching the clouds slowly drift by and, I'm lost in wonder.

To be honest, most of my life these days is spent in some kind of wonderment and, it is because of (rather than in spite of) this appreciation of the wondrous awesomeness of life that I cannot avoid being committed to issues of social justice and hence politics. There must be an alternative to people being bogged down in the vicious cycle of wage slavery and debt; the world has a sufficiency of resources for everyone to be able to enjoy leisure time without being wearied and overburdened about how to acheive even a subsistence lifestyle.

But, you may well ask, where does the guilt enter the equation? It's that old protestant work ethic no doubt - how can I justify stting doing nothing rather than taking some positive action? The straight answer is that I don't need to justify it but, the guilt remains anyway, ignoring the logic of my answer.

Mal's Restless Night

2011-02-01T20:35:00.000Z

A poem in progress (or perhaps in its final draft), Restless Night, can be found on 'Mal's factory'!

Shattered of a Sudden

2011-01-31T20:11:00.001Z

That head-floating, gut-wrenching, muscle-nagging shatteredness wraps me of a sudden in its embrace. Yesterday the deeply gnawing muscle spasms, in limbs and torso, felt like a rebuke for having deigned to commit myself to Friday's minor exertions. At times it seems like a game of damned if ... (damned if you do, damned if you don't); accepting one's limitations is an important step towards avoiding a nightmare roller-coaster experience but, in that acceptance one also risks accepting a pretty colourless plateau of existence.

I've always been fortunate in having a rich life of the imagination, and a naggingly active spirituality; this has meant that the health imposed curtailing of my socializing activities didn't lead me into an immediate state of desolation. I have to admit though that the loss of contact with many people, especially those who I'd considered to be my friends, is something that I still find difficult, when I allow my mind to go there, more than seven years on from succumbing to this wretched illness.

At least I understand this early evening's sudden yielding to shatteredness; a connection with last night's discomfortingly disturbed sleep pattern seems pretty obvious! Expressing my dis-ease in words, in some way, alleviates its claustrophobic grip

Testing The Limits

2011-01-29T21:13:00.000Z

Sometimes the stamina, or at least a small portion of it, seems to have returned along with a lurking fear that it's only a mirage. At first one treats it with caution, only too well aware of the consequence of any over exertion but, one is always tempted to test the limits. I've already suffered a moderate setback, in terms of feeling discomfortedly knocked out (rather more dis-eased than my familiar norm) on Thursday as a result of attending the meeting on Tuesday, even though the actual attendance there proved a great morale booster.

Wednesday found my beloved back at the dentist, her earlier trials and tribulations not yet at an end.

After Thursday mornings painfully aching shatteredness, a fresh influx of stamina seemed to come my way by Friday afternoon and, I actually managed to transfer some of the compost from the bottom of our (compost) bin across to one of the garden borders. The garden always seems to reward us well, in terms of floral display; a disproportionate gratitude for our puny endeavours.

Thursday and Friday both saw an abundance of avian visitors to our garden, nothing new, but a fair cross selection of our familiar visitors, goldfinches, blue tits, dunnocks, sparrows, blackbirds, robin, wood pigeon, collared doves, chaffinch etc but then, today saw only a very sparse sprinkling of any variety. Until this evening I'd forgotten all about the Big Garden Birdwatch so, I'll have to set an hour aside tomorrow, regardless of how representative it turns out to be!

Much Ado about Something

2011-01-26T20:19:00.001Z

I still wait, in vain, for a stamina infusion but, I'm simultaneously resigned to such a miracle witholding its appearance. At least I managed to attend the Labour Party branch AGM last evening but, didn't have the physical or emotional reserves to hang around for the potentially more interesting ordinary meeting which followed it. It was good to meet some of the other party members and, get a feel for the prevalent mood and spectrum of its activists.

Although physically fairly shattered from this outing, the mental stimulus prevented me from getting a truly restful nights sleep. Actually, having just made that remark, I have to acknowledge that 'refreshing' sleep is, in my case, honoured more by its absence.

My beloved had an appointment with her dentist this morning, to have the majorly offending tooth extracted but, once more the visit took a disproportionate toll. On this occasion part of the problem was that the gum beneath the extracted tooth was still infected, despite the best efforts of a double course of antibiotics and, her dentist was left wondering why the maxillo-facial / dental consultant she saw at the hospital hadn't done more!

Where I Stand

2011-01-20T14:46:00.000Z

Last night brought me a better amount of sleep, retiring at 9.30pm and emerging at around 10.30am this morning (with one or two earlier intermittent interludes of "wakefulness") but, my whole psychosomatic being still feels rather unrefreshed. I've just recently popped out into the garden to replenish the bird feeders and, subsequently witnessed a modest increase in the number of avian visitors to our estate!

As I don't seem to have sufficient emotional stamina, at present, to do a proper post, I thought I'd share a comment I left last evening on one of the blog sites (The Socialist Way) that I frequently visit, as I think it reasonably summarizes where I stand politically.




Malcolm said...: It's a truism that Parliament will never be the means by which socialism, or any kind of equitable society, can be established - indeed the whole capitalist apparatus is antipathetic to fairness. This purportedly democratic system seems destined to control us, via the dictatorship of business and media moguls, as well as the armed and police forces, for a considerable time yet.Having said that, I did rejoin the Labour Party last year, not under an illusion that they will bring about any kind of anti-capitalist change but, in the vain hope that they may be restored to a party prepared to proclaim the aims of clause 4 part 4, and move (albeit only marginally) towards its enactment. One can but dream! What I've always found even more upsetting than the Labour Party's betrayal of the very people who established the original Labour Representation Committee, is the constant factional bickering between cadres of sundry revolutionary socialist groupings. (I have to admit that I wasted a fair amount of my younger years inadvertently entangled in the resulting schismatics).; 19 January 2011 21:04

In A Spin

2011-01-19T19:49:00.001Z

These sudden plunges still prove alarming, no matter how many times one experiences them; it's almost as if I could feel the colour draining from my face. In an instant an overwhelming maelstrom of gut churning, muscle spasming, head spinning, washed-out giddiness, yields a fearful disorienting discomfort. A pulse racing, nauseating, vertigo veils every semblance of familiarity from one's immediate environment.

Perhaps, this time, it's a belated response to last night's extreme restlessness which was accompanied by randomised stabbing pains in the lower abdomen. My beloved arranged a GP appointment for me this morning; I was about due for a review, in any case, to check whether my current increased ppi dosage was proving beneficial. Today I saw a different doctor from the practice and, she has decided to try me on a different ppi, and has set up a further appointment for three weeks time to check on progress etc.

At the moment, my gastro-oesophageal problems seem to be in competition with other muscular aches, pains and spasms, in an attempt to grab my full attention.

EMERGING

2011-01-15T15:48:00.000Z

EMERGING

and this morning

still abed

my legs

are mercury laden

knitted lead

the arms

folded or stretched

scream out

for postures new

Malcolm Evison

15/01/11

Unrefreshed

2011-01-14T18:22:00.002Z

Last night, I once again pursued a pattern of erratically intermittent unrefreshing sleep; the primary evidence that I slept at all is the vague memory of awaking from rather fraught dreams. Of course there’s always the possibility that the memory itself is a false one.

That old familiar sensation, of sharply bruised aching discomfort emanating from the armpits, returned with a vengeance and, I was forced to remove my (not overly tight fitting) pyjama jacket to escape a sense of torso choking strangulation – armpits replacing the neck as the constricted airway. At this stage even my PJ trousers seemed to become an instrument of torture, the groin area coming out in sympathy with the armpits, and so were duly removed.

Unfortunately, as a result of the restless night, I lacked sufficient stamina to attend the funeral / thanksgiving service for a friend of mine and I am struggling to prevent this non-attendance adding to that burden of guilt about which I wrote yesterday.

On a more positive note, my beloved is finally starting to show signs of recovery from the events of last Monday and was able to attend the service along with Beth.

The Guilt Thing rears its head!

2011-01-13T17:45:00.001Z

Just wish I could get over this guilt thing, it's getting worse if anything! For health reasons the majority of my social and political campaigning is done online, rarely do I have sufficient stamina to get out to attend vigils and / or meetings and, each time I receive notification of such events the guilt intensifies. It's almost as if I feel guilty for having a chronic health condition.

Of course it was with a great sense of relief I attained state pension age in 2009; having been dependent upon receiving benefits, for which one had to crawl and squirm through prohibitive hoops and obstacles, for a few years prior to that (following on from a reasonably productive period of working life which started when I left school in 1960) it was refreshing to receive my pension entitlement without having to perform such degrading gymnastics.

My greatest pleasure is derived from the familiar environs of home and garden, managing to do a little painting and writing when physical and emotional stamina permit as well as taking photos and videos of the garden's flora and fauna*. Stamina levels are frequently sufficient to manage the cooking, a wonderful creative outlet, and I am also fortunate in being able to cope with infrequent brief visits into town and even, on occasion, enjoying a dining out experience.

I suppose the guilt has intensified over the last few days, when I have become more aware of my limitations whilst attempting to care for ma belle who has had a rather rough week health-wise. If she hadn't been so unwell, there's no way that I could have persuaded her that she wasn't fit enough to go to work, or attend a church executive meeting; her great ability is to push through the barriers of exhaustion in order that she should not let anybody down.

Admittedly, there was a time when I could quite happily burn the candle at both ends, whereas I now find the same candle frequently splutters itself out whilst so much remains to be done.

Most recently, I'd really love to attend the midnight vigil, being held this Saturday at Menwith Hill (USA spy base) just a few miles from our home, to mark 20 years of conflict in Iraq (1991 - 2011). Recent days have found me in bed by half-past eight in the evening, emerging from the duvet lair some 14 or 15 hours later, so attendance at this vigil is far from being practicable.

An attempt at a minor task of DIY, erecting a small bracket on masonry in our new porch for a Solar Sensor Light, resulted in the most frustrating failure. If I can't even manage to drill and plug a couple of holes succesfully, even being wearily overwhelmed in the attempt, my presence at any event is unlikely to be felt or missed!

________________________________________

* PS new visitors to our garden this week included Waxwings and Fieldfares - unfortunately both species proved a little camera shy (or maybe I was just too slow getting off my backside)!

An Unexpected Turn

2011-01-10T20:32:00.001Z

Sometimes events take a turn far removed from the familiar; today was such a case. This morning I managed to get myself down to ‘Open Church’, for the first time since my pre-Christmas collapse there. Wrapped up in a warm overcoat and armed with an umbrella I boldly strode my way and, once there enjoyed some really stimulating conversation.

On my way back home I called in at the bakers to collect the wholemeal loaf so, there I was, open umbrella held in one hand and a loaf of bread in the other, heading for home when my mobile begins to ring. To be honest, this was one of very few occasions that I’d bothered to switch it on; I’ve never understood the necessity of holding telephonic conversations whilst ambling down the road. It was quite a juggling act to transfer the instrument from coat pocket to the proximity of my ear, encumbered as I was.

The voice at the other end, my elder step-daughter Beth, tells me that she doesn’t want to worry me but my beloved has been rushed to hospital. She’d apparently been taken ill whilst at the dentists. I knew that she was going to try to make an appointment, having been woken in the night with really painful toothache from an area where she’d lost a filling about a week ago. Although quite wiped out, energy-wise, she’d travelled over to her work in Wetherby, early this morning, where I subsequently discovered, she’d already begun to feel sick before arranging the appointment with her dentist back in Harrogate. The dentist had taken an x-Ray, and informed her that she would need a course of antibiotics to tackle an abscess, before she came over really ill.

Beth picked me up and ran me to the hospital where I found an atypically flush faced and cold-handed Helen. Her blood pressure had sky rocketed, once again very unusual for ma belle who traditionally has a remarkably (but healthily) low BP. Fortunately the ECG results showed no cause for concern and sundry blood samples were taken before she was sent for an X-Ray of the jaw. Whilst I waited with ma belle, Beth, with assistance from Cathy’s partner Ken, was able to get into town to collect her Mum’s car and deliver it back home for us. As a non-driver, I was of little use in these circumstances. Helen subsequently saw a consultant in the Maxillo Facial Surgery who made a few incisions and prescribed two lots of antibiotics.

On several occasions, in the past couple of years, ma belle has had to come and hold my hand in A&E; today the tables were turned. I so frequently worry about the burden my ill health imposes upon my beloved, realizing how mutually dependent we are; today my concern was how helpless I may be if the burden of care shifted the other way. It was so fortuitous that Beth happened to have some holiday days this week and so, was available to perform such a valuable chauffeuring and messaging duties.

Once again I must express my gratitude to the NHS, especially the staff in A&E at Harrogate District Hospital. I only wish that the Health Service was in safer hands than those of the Tory ConDem coalition.

is it or isn't it?

2011-01-07T21:39:00.000Z

If only it was possible to tell whether a symptom / ailment is that of a different illness rather than a further manifestation of the ongoing chronic condition! A cohort of gastro-intestinal, gastro-oesophageal, excruciating muscular and glandular aches and pains, brain-fog, orthostatic intolerance, sensory overload, chest and upper-abdominal pains, post-exertional malaise, cognitive dysfunction, can all be part of the underlying ME whilst, at the same time, any of these states could be symptomatic of another dis-ease or condition.

At what point does one call a GP or paramedics, without being considered a time-waster, as certain of the symptoms produce a distinctly different and disturbing awareness of one’s general condition. Frequently tests for a specific ailment or symptom come up with a negative result, rarely is a more holistic approach taken regarding one’s state of (well)being.

In recent months I’ve had several health scares, some that could be dealt with via surgery or medication whilst others have no apparent cause! The frustration of uncertainty tends to rebound against one’s residual wellness – a vicious cycle.

Sorry, I don’t mean to be on a downer; I’m just a bit fed-up of not feeling well.

It’s now well over seven years since I last felt really well but, at least I’m grateful that I’m only a ‘moderate’ sufferer. At least I’ve been blessed with a considerable portion of remission days, for which I give thanks, and a wonderful wife and lover (who happens to be one and the same person)!

Atherton Walking Day 1950

2011-01-05T21:13:00.003Z

Atherton Walking Day (24 June 1950)


Atherton Walking Day (25 June 1950)

Having just uncovered these two photographs, releasing them from their glass and passepartout frames, a sudden surge of nostalgia overwhelmed me ( memories of mugs of black peas during Wakes week in this Lancashire town - came to the fore!).

On the back of the makeshift frames, my father (who was at that time a pastor with the International Holiness Mission - soon to be taken over by the Church of the Nazarene) had written the dates as shown above. I know that the 24th June was a Saturday so, I suspect that is more likely to be the correct date.

Church walking days seemed to have been a strong tradition in the North West of England but, I've been unable to confirm the date of such walks in Atherton. My first instinct was to think it would have been a Whitsuntide walk as such events were held in some of the other chapels, scattered around the country, that I attended during my childhood, but that would have been at the end of May (not June). I have subsequently discovered that different churches in different parts of the North West held their walks on different days.

Just hoping that, on an off-chance, someone reading this may be able to answer my question regarding the date of this walk.

Incidentally, the David arrowed in my crude annotation is my elder brother.

(clicking on either image will take you to a larger copy of the picture)

Customer Dis-service

2011-01-03T21:59:00.000Z

A RIGHT LOT OF BANKERS

Several weeks ago, part way through an online transaction - transferring money from a savings account to the account of my wife (with the same bank) - I was suddenly denied access and, informed after a prolonged telephonic confrontation that my access would be restored within 48 hours.

Less than twenty-four hours later my access was restored. On this occasion, part way through my visit I was met with a screen displaying the following information:

Service Interruption

One or more of our systems are temporarily unavailable.

This means that you will not be able to proceed at this time.

We are aware of the problem, and hope to fix it soon, so please

try again later. We apologise for any inconvenience.

On each subsequent attempt to access my accounts, my password and security questions having been accepted, I am greeted with the same message. This bank holds one of our joint current accounts, as well as individual savings and credit card accounts but, I am unable to access any of these.

Meantime, my wife has no such proble accessing our joint and her personal accounts but, unfortunately has no access to my individual accounts. I have tried using different pc’s, laptop and desktop, and using different browsers – all this effort to no avail. Even during a ‘phone call to the bank’s helpline, I was encouraged to attempt to sign in using my wife’s laptop and once more met with the same screen message. A ‘phone call, made by my wife this evening, to try and sort out the problem proved less useful than the proverbial chocolate fireguard.

Even if I enjoyed better health I would be totally exasperated, as it is the situation serves to make me feel even more unwell.

Wishing You a Happy and Healthy New Year

2011-01-01T12:07:00.001Z

That was then - Here's to a New One

2010-12-31T19:50:00.002Z

Truth be told, I've had better years but, thanks to the love of ma belle I can still end the year loving life. On the health front things have been a bit hairy to say the least and, politically, the un-mandated Tory Democrat government can be seen as deleterious for almost everyone except the wealthy (and they can rest assured that all their tax avoidance schemes will remain unchallenged). The bankers brought about the periodic crisis of capitalism so, with pre-formulated ideological dogma to the fore, an attack must be made upon the poor and the "nanny" state which bailed out the titanic banks.

Before the election I'd come to regard LibDem leader Clegg as a Tory so, I shouldn't have been at all surprised when he accepted the thirty pieces of silver to betray all those who were truly socially liberal. At least this recognition led me to re-join the Labour Party, after my wilderness years despairing of it's neo-Thatcherite agenda, even before the election.

If only wage slaves could demonstrate the kind of solidarity the merchant banking public school fraternity so clearly display, how much better off our society would be. The ConDems call for cutbacks - I yearn for fightbacks!

The paramedics have rushed me to A&E on more than one occasion this past year (each time in association with crushing chest pains) and, I also received excellent prompt attention from the NHS when they diagnosed and excised a basal cell carcinoma. Already the waiting time for appointments in the department that made the diagnosis has trebled since the new governments policies have started to be enforced.

I've not had a cigarette since June 23rd, when I was hospitalized overnight; in the first place I just felt so grotty that the prospect of inhaling any substance was totally unappealing. Subsequently, I've just not bothered to smoke - it's not that I've quit. It proves reassuring to have several packs available in the house, rather than falling into the 'panic' trap when one rushes out to buy a pack, in response to a stressful event, which one then feels duty bound to finish. To be brutally honest though, it feels as if my health has suffered as a result of this period of nicotine abstinence.

As I suggested at the beginning, of this post, my life would be so much the poorer if it wasn't for the love of ma belle Helen. My only wish is that everyone could experience such a joyous, loving, sharing, fulfilling relationship; as it stands, I just can't help feeling how privileged I really am.

As always, my wish for the New Year is that we may move towards a world dominated by values of justice and compassion, where the needs of all are met and the greed of many is seen as an asocial vice!

Wishing my readers A VERY HAPPY NEW YEAR!

Hectoring and Dining

2010-12-28T16:17:00.000Z

In principle I have little objection to Christianity's co-opting of pagan festivals into the Chritian calendar; unlike the Puritans I am not at all against the celebration of Christmas but, I have to admit that like so many others, of faith or otherwise, I do feel rather sickened by the crass commercialisation of the whole season.

At the most basic level I love the way that the Christmas story turns the world's values upside down. The Messiah King is born in a most humble abode, not in a fine palace and, what is more, born to an unmarried mum. The whole community is being crushed under the heel of imperialist occupying forces at a time of great civil unrest. Of course we read in some accounts of how the Christ child's family are forced to flee the country to become refugees and, finding their refuge in the very country from which God had liberated the Israelites many centuries earlier.

Sadly the unrest in the MIddle East remains unresolved even at the present time; sundry imperialist forces and factions have ensured that throughout the centuries.

Anyway, that's enough of my all too familiar hectoring; I only intended to give a brief account of our quiet family Christmas.

********* 

In the run up to the great occasion I lacked the necessary stamina (physical and emotional) to assist my beloved in much of the preparation but, helped where I could and, of course, I took control of the kitchen for much of the final food preparation time. I like to get much of the effort out of the way before Christmas Day arrives and, to that end, prepared the gammon a few days earlier.

I boiled the Gammon in water laden with cloves, garlic and halved onions (skins still attached) for half of the appropriate cooking time, drizzling the joint with honey before placing it in a pre-heated oven, applying a further drizzle for the final twenty minutes or so roasting time.

The capon, a 9lb bird, I prepared on Christmas Eve evening, inserting generous amounts of butter beneath the skin before rubbing in a blend of freshly ground black pepper and sea salt. Stuffings are prepared separately, partly owing to dietary requirements of one of our guests. Ma belle prepared her traditional sausagemeat, onion and black pepper stuffing and, we also char grilled a few gluten free sausages. The butcher supplied a cranberry, orange and chestnut stuffing mixture (unfortunately not suitable for the coeliac in our midst but, much appreciated by ma belle et moi).

Next I par-boiled spicy herbed potatoes ready for roasting on the day itself, and steamed a few parsnip portions, duly drizzled with honey on taking their place in the roasting tin.

Beth came to stay with us for three nights, and three Christmas dinners, whilst Cathy joined us for a Christmas dinner on the 27th. We didn't over indulge on any of these occasions, quite simply enjoying the company and felllowship of each other. Beth arrived on the afternoon of Christmas Eve, having worked an early shift in the bakery but, still managed to prepare herself to head off to Christchurch, where she sings in the choir, for midnight communion, as well as their Christmas morning service. 

My familiar aches, pains and sundry discomforts in chest, abdomen, and lower limbs, unfortunately brought out a sensory overloaded  tetchiness from yours truly, but failed in their attempt to mar the festivities. Ma belle as usual found some very entertaining novelties to stock up my Christmas stocking. 

Throughout recent weeks we've enjoyed a rich diet of varied Christmas music and, once again find ourselves wondering why we should reserve so much of it to be aired on so few days of the year. If the Christmas message, or any of the Christian feasts, has/have validity there is no need to cloister it/them in such limited time slots.

A Little Overdone

2010-12-20T16:27:00.000Z

The effort is just too great, the inboxes of each of my e-mail accounts groan with attention seeking missives; the bulk of these missives are ones that I once sought, groups and individuals with whom I wished to retain contact. Several of these on-line groups served as a real lifeline, at a time when I became predominantly housebound, a support network, at a time I had felt that my particular set of ailments were so unique no other human being could possibly understand.

After a while the politicking began to wear me down - each campaigning group so totally convinced that only their understanding was correct! At the same time, it seems so obvious that the combined might of pharmaceutical and insurance companies have a vested interest in retaining a psychological interpretation of a WHO recognized neurological condition. The powers that be preferred a meaningless waste basket definition, covering a multitude of disparate illnesses, rather than getting down to valuable necessary research into particular conditions. Any fatigue, it seemed, could be classed as chronic fatigue and any sufferer of chronic fatigue assigned a chronic fatigue syndrome tag. Strangely, although fatigue is not necessarily a significant symptom of ME, the two names became interchangeable.

Many sufferers seemed to follow a path of being initially diagnosed with some kind of depression, generally incorrect except in a re-active form, before a further diagnosis of PVFS (post viral fatigue syndrome) and later chronic fatigue was made, only occasionally being elevated(!) to the status of ME. There are so many tests applied that produce negative results and, it is frequently only by chance that one realizes that their own particular set of sudden onset (but protractedly lingering) symptoms coincide with one set of clinical guidelines for a specific diagnosis.

Anyway, all that's a bit of a digression, as some of the inbox filling messages are of specific political, tribal, literary, computing and blogosphere information. At certain times I've managed to keep on top of all these sundry communiques, diligently sifting out the wheat from the chaff but, over the past couple of months I've been so lacking of sufficient emotional stamina to even get beyond a skimming of the messages opening lines. The past couple of weeks some 60% of all incoming messages are ticked, marked as read, and deleted without even a passing glance from yours truly!

I once again seem to be suffering from some kind of acutely painful sensory overload, the crinkling of a plastic bag can prove sufficient to put the whole nervous system into shrieking cringe mode. Perhaps I'd overdone things by spending more than a couple of hours out of the house on two successive days.

Last Friday, after an early (a couple of hours before my usual emergence from bed time) dental appointment, I suggested to ma belle that we may as well do the grocery shopping as we were in the proximity of Waitrose. That evening was the Christmas Dinner at the Acorn Centre, where my beloved works as a volunteer tutor; I actually managed over two hours at that event before exhaustion overwhelmed me. The following day, after my familiar lie-in routine, went into town with ma belle and visited one or two shops where the odd purchase was made. We returned home for lunch before making a swift visit to an out-of-town retail park to collect a further item from my long-standing shopping wish list.

On return from the retail park we discovered that our DVD recorder had suddenly expired mid-recording of a programme, blaming the fault on the disc. Unsuccesfully attempted to feed the machine with other discs, each being declared "no-read", even the empty tray being declared a faulty disc or "no-read". I suspect the laser unit has gone on the blink. So, further exertion was then required from yours truly, to bring down our old twin tunered "terrestrial" VCR-DVD Recorder and a set-top digi box to enable the recording of "freeview" digi channels. The setting up of a jumble of scarts and aerials induced much panic fuelled perspiration. By this stage, the least audible or visual distraction in the living-room environment became quite overwhelming and a general sense of tetchiness took hold.

Last evening, around 9.00pm an overwhelming sense of exhaustion took over, followed by several emergency visits to the littlest room - amazing how much greater the output can seem than pertinent intake. Gastric upsets are nothing new in my experience but, most importantly an early night was called for. This morning, I emerged from snoozeville at 11.00am and, having donned back and ankle supports, walking-stick assisted, I ambled down to 'Open Church' for a cuppa. As they'd just run out of "real" coffee I settled for the instant variety. Before I'd even managed to finish the drink an excruciating sense of dis-ease overcame me as I shivered and shuddered whilst simultaneously perspiring. I attempted to leave but collapsed back onto the chair; a feeling of fear overcame me as nagging aches seemed to clog dance their way from shoulders to abdomen, to chest and sides. And then the tears flooded out before, David, Anne and Simon helped me into their car to drive me home.

Still in floods of tears, and non-specific bodily discomfort, I phoned ma belle at work to ask her to come home. There's nothing more important to me than the presence of Helen, whether I'm in high spirits or low, and the knowledge of her imminent arrival enabled me to feel a bit less fearful.

**********************

This post also appears on Mal's Murmurings

A Paucity of Postings

2010-12-12T22:00:00.001Z

Not only a total lack of stamina, but also the distracting neuropathic pain, seem to conspire against my frequent intention to prepare a further instalment of my weblog. The more severe bouts of gastric reflux have been kept at bay by my current (twice-a-day) lansoprazole regime; I only wish the naggingly persistent elements and the more intermittent sharply focussed lightning bolts of pain, traversing the spine to ankle pathway, could be equally calmed! Regular dosages of tramadol and an evening dose of amitryptiline do alleviate a little of the dis-ease and, for that I am grateful.

The recent cold spell has proved totally antipathetic to my more generalized neuropathy; the combination of chilling winds and icy conditions underfoot ensured that I daren't venture outside of the house for several days. The lack of exercise, whilst eliminating any risk of post-exertional malaise, does little to improve ones already depleted energy reserves.

The risk of wallowing in self-pity has been countered by my enthusiasm and pride at following the newly found wave of activism amongst students. Although I am unable to attend these demonstrations against the cuts, tuition fees, and tax dodgers, I am certainly with them in spirit! 

we are such sleep as dreams permit us to acknowledge

2010-12-06T14:15:00.000Z

I know that I've been sleeping, or at least suspect that to be the case, when I suddenly escape from a vivid (albeit naturalistic) dream. No matter the quality of the dream, be it blissfully arcadian or nightmarish chase, there's always something reassuring about waking up. I must admit that there was a time, in childhood, when waking brought little release from the more nightmarish of dream episodes; I required excessive amounts of reassurance to escape it's fevered shadow. These days, my dreams are usually of a somewhat more gentle nature and, in the dream, I generally possess levels of both physical and emotional stamina that I dare hardly dream of these days.

There are many times when, having finally managed to remove myself from the duvet lair, I belatedly enter the new day in full convincement that not even a wink of sleep has come my way; such is the painfully shattered sense of exhaustion that greets my emergence.Once exhaustedly abed, sundry neuropathic aches and pains do their darnedest to ensure that I cannot sustain any comfortable position for sufficient time to catch even a catnap; surprisingly the (apparent) evidence of my dreams suggests otherwise!

when minor exertion becomes major expedition

2010-11-29T19:59:00.000Z

The irritation continues; a constant nagging pain in knee, calf and ankle, occasionally lightning bolting its way, in full spasming flow, to hip and lumbar region, is a most unwelcome companion for whom familiarity has truly bred contempt. Sadly contempt does little, or nothing, to detract it from its constancy. A regular intake of tramadol curbs the discomfort's sharpest edge and, is currently supplemented with an evening dose of amitryptiline by way of neuropathic pain control and to help with sleep.

This morning, having trudged along to the local bakery to collect our wholemeal loaf, what would normally have been a ten minute exertion was transformed into a twenty-five minute torturous expedition. Conditions underfoot profferred no truce for bearers of herniated discs and temperamental sciatic nerves. In that short distance, areas of the pavement ranged through crisp firm snow, icy compressed snow and deep grit and salt induced slush. Every few yards I needed to halt and, supported by a stout walking stick, thrust back my shoulderblades in an effort to stretch and unlock the spines nagging lumbar region.

Since returning home, a sustained deep sharp nausea inducing bruised sensation has held my right lower limb in thrall for the past eight or nine hours, the pain being especially acute around the knee and ankle.

Mind you, the garden under it's blanket of snow was nice to look at!

Thermostatic Quirks and Simple Pleasures

2010-11-22T21:20:00.003Z

Quite when it happened, I don’t remember; all that I know is that for a number of recent years my body thermostat, though somewhat erratic, tended to play up in such a way that night-sweats, and even passive day-time cool room sitting sweats, have tended to dominate my life experience. The ambient temperature bore little, if any relationship, to my body heat and subsequent seepage of saline solution from pores all around my body, limbs and head.

It has come as something of a surprise, in more recent weeks, as the realization dawned that I’ve started feeling the “cold” to an apparently greater degree than others around me. It seems as if the thermostat has swung from one extreme to the other and, as a result, I no longer (if ever) have any realistic awareness of the ambient temperature. It’s actually quite a positive experience to be rid of the “night-sweats” but, not so the cold shudders experienced when sat in what I would have considered a comfortably heated environment. On the “up” side it suggests that I’m unlikely to suffer from hypothermia but, the “down” side is that we’re definitely going to be confronted with higher energy bills this fall and winter.

Is it possible that this thermostatic change could relate to my having doubled up on my ppi intake; could a reduction in the production of stomach acids serve to reduce my perceived body temperature. Of course, this “cooling down” also coincides with my most recent sustained period of refraining from smoking but, in normal circumstances (with the supposed deleterious effect of smoking on ones circulatory system) one would have anticipated the opposite result.

I could so easily produce pointlessly circular arguments at this point so, a change of topic is called for. And the subject today is …. SIMPLE PLEASURES!

In fact, simple pleasures, in spite of my regular moans, are a dominant feature of my life; I feel truly blessed with an ability, at times, to simply be still and bask in the wonderful phenomena of breathing. I look out of the window and observe the goldfinches, blue, great and coal tits, dunnocks, collared doves, jackdaws, house sparrows, all successfully scavenging for food, both from our feeders and natures natural bounty. I frequently feel quite overawed by the sheer variety of life forms that have evolved on this amazing planet.

Of an evening, as my beloved works on her laptop, whether for service preparation or updating her weblog, sat opposite me in the living room, I find myself quite simply lost in adoration, contemplation, care and concern for her well-being. Just to see her smile, watch her sing along with ‘Songs Of Praise’, even animatedly reading whatever novel or short story currently engages her attention, I just want to reach out and hold her, hug and squeeze her!

These simple things, a source of warm glowing pleasure, simultaneously serve to reinforce a sense of responsibility to look after and protect that / those for which / whom one cares.

Of Pain Creators, Pain Pathways and Pain Killers

2010-11-16T12:43:00.001Z

One almost has to admire the blatant way that the Tories, both blue and orange varieties, demonstrate their disdain for the poor and vulnerable in our society; if only we had a political party prepared to attack privilege, and the wealth stealers, with equal fervour. Problem is these thieves, curiously misnamed "wealth creators", are held in such high esteem by the Tory controlled meejah (which seems to set the agenda for all parties with serious parliamentary aspirations)!

Strange how they have so much respect for the people who'll go to any lengths to avoid paying their fair quota of taxes; surely their readiness to pay up would be a true demonstration of their patriotism. The poor have no choice, patriots or not, the PAYE system ensures that they pay their full whack and, if they have the misfortune to succumb to any illness, or be made redundant, find themselves treated as scroungers and/or criminals, by the meejah, for daring to claim the benefits to which they are entitled.

Rant over for now, indeed it wasn't intended - it just sort of spewed forth but, I'll stand by it. Don't know exactly what was intended when I opened 'notepad', just felt it was time to update my blog!

Apart from a familiar sense of shatteredness, last Friday's exertions seem to have taken their toll on my spine. I don't know if it's possible to re-herniate a disc, one which hadn't given too much gyp in recent months, but I've once again started to experience quite acute (transferred) pain, in fluctuating increments - from about 3 to 8 out of 10, through hip, thigh, knee and ankle of my right lower limb. It began on Friday evening with a sensation of the lumbar vertebrae locking up but, I can't say for sure when the transferred pain in the lower limb began; as a matter of daily routine, I experience painful spasms emanating (apparently) from an area of the calf muscle immediately behind the tibia.An early morning fix of tramadol helps to control this but, more frequent doses of the same med are only minimally reducing the acutely stabbing pains that seem to travel on a neural pathway from hip to ankle.