ME
Monday, August 24, 2009
The Hummingbirds Foundation for M.E. (HFME)
*Please repost widely* *Please repost widely* *Please repost widely* *Please
repost widely* *Please repost widely*
This month A Hummingbirds' Guide to M.E. makes way for a new organisation:
The Hummingbirds' Foundation for M.E.
See below for details!
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A new international, uncompromising Myalgic Encephalomyelitis charity has
been created!
The Hummingbirds' Foundation for M.E. (HFME) is a new international M.E.
charity (founded by Jodi Bassett).
The HFME's mission statement:
"The HFME is dedicated to fighting for the recognition of Myalgic
Encephalomyelitis based on the available scientific evidence, and for
patients worldwide to be treated appropriately and accorded the same basic
human rights as those with similar disabling and potentially fatal
neurological diseases such as Multiple Sclerosis."
As many of you know all too well, the situation facing M.E. patients
continues to worsen.
It is so rare to read information purely about M.E. any more, that doesn't
mix in a large amount of 'CFS' misinformation. Flawed concepts such as
'ME/CFS' and 'subgroups of CFS or ME/CFS' are also unfortunately gaining
popularity.
No matter how you look at it, it seems that it will be impossible for us to
make any progress with M.E. advocacy without some more uncompromising
advocacy groups.
The HFME is not only a genuine and uncompromising voice for M.E. patients
but also speaks up on behalf of all those patients misdiagnosed with 'CFS'
who have other diseases, and who also deserve a chance at correct diagnosis
and appropriate treatment finally.
M.E. patients and patients misdiagnosed with 'CFS' who have non-M.E.
diseases need to, and can, work together to achieve common goals. Fighting
for the bogus disease category of 'CFS' to be abandoned benefits all patient
groups.
The HFME acts in response to facts, logic and ethics. There is no other
agenda than helping all the patient groups involved to finally be treated
justly and in a scientific and ethical manner, and accorded the same basic
human rights those with many other diseases take for granted.
I hope you will want to be a part of this new initiative. Most involved are
very ill and disabled, and so we need a large amount of people to become
involved and to each contribute the small amount of time and effort that
they can spare, for this to work.
Even though many of us are very ill, we can move mountains if we each
contribute what little we can and work together with integrity and
intelligence. (Friends and family members of patients etc. are also of
course welcome to participate too.)
Please email me (Jodi Bassett) for details.
Paid membership in HFME is not yet available, but will be available soon.
The organisation of the foundation is still in the early stages, although
the HFME website is now complete.
To view the new Hummingbirds' Foundation for M.E. website, or to learn more
about the HFME, please go to: www.hfme.org
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What are the aims of the HFME?
*To disseminate scientifically accurate information on Myalgic
Encephalomyelitis (M.E.) to M.E. patients; to their carers, family and
friends; to the medical profession and other professions which deal with
M.E. patients; to policy makers; to M.E. advocates and activists and to the
general public as per the paper What is Myalgic Encephalomyelitis? and as
further discussed in HFME.
*To oppose false and meaningless disease categories such as 'CFS,' 'CFIDS,'
'ME/CFS,' 'CFS/ME,' 'ME-CFS' and Myalgic 'Encephalopathy' as per the papers
What is Myalgic Encephalomyelitis? and Myalgic Encephalomyelitis is not
fatigue, or 'CFS' and as further discussed in HFME.
*To defend the M.E. community (and those with non-M.E. diseases misdiagnosed
with 'CFS') from counter-productive 'activism' strategies such as renaming
'CFS' with some variation of the term M.E.
*To promote appropriate research based on proper understanding of M.E., and
to oppose flawed concepts such as the 'subgroups' of 'CFS' or 'ME/CFS'
concept.
*To be a voice for those suffering from M.E. who are facing mistreatment and
abuse due to the false notion that M.E. is the same thing as 'CFS' and is a
trivial illness or a mental illness characterised by 'fatigue.'
*To be a voice for all those patients misdiagnosed with 'CFS' who do not
have M.E., but other illnesses including: cancer, fibromyalgia, various
post-viral fatigue syndromes, athlete's over-training syndrome, Lyme
disease, Behcet's disease, PTSD, depression and other mental illnesses,
burnout, thyroid or adrenal diseases, various vitamin-deficiency diseases,
and so on. To encourage each of these patients to reject their 'CFS'
misdiagnosis and seek a correct diagnosis and appropriate treatment,
finally.
*To enlist the help of human rights groups, medical professionals and the
quality media to help to achieve the above stated goals as is their
obligation and duty. (A duty that has unfortunately been almost completely
ignored for the last 20 years, with a few notable exceptions).
This is a summary of the full text. To see the full list of aims, and a
discussion of the reason for each aim, please see:
www.hfme.org/abouthfme.htm
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HFME shirts and badges etc. are now available at Cafepress
Lots of different items are available featuring the HFME logo, to help
spread the word.
Check out:
www.hfme.org/hfmeproducts.htm
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What will happen to the old HGME website?
The www.ahummingbirdsguide.com
website will be maintained for some years to
come.
It is no longer appropriate that the main website (the HFME site) also serve
as my personal site and feature and sell my artwork and so on, so this site
will become my personal website. A small number of minor pages of the HFME
website will continue to be hosted on this site however due to the huge
amount of work required to transfer over every single page (this applies
almost wholly to research and article pages by featured authors). The site
will also host redirection notices for one year. The site will also feature
a small amount of information about M.E. taken directly from the HFME site,
in order to educate anyone who comes to the site about M.E. and the HFME,
and to direct them to the HFME website and the work of the HFME.
Please update all links and bookmarks accordingly. Webmasters please note
that redirection notices will only be left up on the HGME website for one
year (until July 2010). Apologies for the inconvenience.
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I hope you are as excited about this new venture as I am and I hope you will
want to play a part in the HFME and the setting up of the HFME.
I hope you will help to spread the word about the HFME as much as you can.
Best wishes everyone,
Jodi Bassett
--
The Hummingbirds' Foundation
for Myalgic Encephalomyelitis:
www.hfme.org
Saturday, August 22, 2009
Theme & Variations
Yesterday the Café, today the Bistro, hope you enjoy reading about how the other half lives! The day, for me, started rather agonizingly slowly; customary pains and spasms in the lower limbs had found themselves some co-operative companions in the form of aching upper limbs and congested head and torso. Sleep had been so badly needed that it proved hard to come by; relaxation was required but stress was all that was available, stress not of a psychological-emotional variety but rather an uncooperative body.
Exhaustion proved such that I forgot to take the pain-killers yet, without these mind and body were unwilling to function in any manner that one would like to consider normal. Eventually, after 13 hours of bed restlessness, it required a great deal of effort to greet the early post-meridian sun. Only when pain cancelling medication had been taken was any degree of wakefulness apparent. An early afternoon bowl of cereal set me up for a little venture out into the garden, a place where I really feel at home and fully alive.
Contrary to the popular saying about the devil finding work for idle hands, in my experience it’s a garden that performs this task. (Of course, some would see that as the abode of the serpent hence proving the folk sayings credentials). There’s always a little task to perform in terms of pruning, re-arranging or general tidying up and, today was no exception. Strangely, the requisite effort seemed to re-vitalize me, even to the extent of venturing, loppers in hand, into next doors garden where several branches of our wayward shrubs and trees had seen fit to trespass. A few mugs of Earl Grey proved an invaluable aid to the performance of these duties.
By late afternoon, appetite aroused, I led my beloved by the hand to our local Crepes & Crocs Bistro at ‘The Milepost’, in time to take advantage of their Early Bird Menu. We both enjoyed a fishcake starter, served on a bed of green salad with a sweet lightly spiced sauce. For the main course I settled for the Toulouse Sausage and Mash, whilst my OH had the Fish Pie, sharing a side dish of garlic beans between us. To add to the sense of occasion we enjoyed a bottle of Loire Sauvignon to whet the palate.
On our return home, culinary chores beckoned as I prepared my own variant Country French chicken casserole dish in readiness for our Sunday lunch. Currently we’ve settled down to watch the 1944 film, “Farewell My Lovely” the overture to BBC4’s weekend of film noir. Adorable company and a decent movie, what more can anyone wish for? Perhaps a glass of Chardonnay!
Friday, August 21, 2009
Westgate - Customer Dis-service
Early last week we were informed that the bed was available for delivery and, that they would deliver it today, no hint could be proffered as to AM or PM delivery. The charge for delivery was an exorbitant £30+ and, full payment for both the bed and delivery was already charged to the credit card at the time of ordering.
Come the big day and, the component parts of the bed were delivered, or should I say dumped, in full packaging in the bedroom. Evidently unpacking and assembly is not part of their job, although a local shop from which we brought a bed a couple of years back assembled the unit for us and, all for a much smaller “delivery” fee.
We started to unpack the base components only to find it virtually impossible to open the drawer, in one of the base units, in which the castors for that unit are packed. After some twenty minutes of struggle, simply trying to open the drawer, we gave up our efforts and decided to contact the local store. Currently we’re still waiting to hear when they will send someone out to help us with this predicament.
As suggested earlier, we were supporters of the co-operative ideal (overlooking the capitalist warts of the institution). Next time we’ll choose a store that looks after its customers rather than go with a misguided whim of principle. Westgate Department Store, Harrogate, is unlikely to be honoured with our presence in future unless they get their finger out!
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P.S. The man arrived within a couple of hours to release the drawer. Contrary to the information given by the person in the Beds & Bedding Dept., given to my beloved, that our problem was "most unusual, I've never come across that before" , his colleague who released the jammed drawer commented that it was a "quite regular occurrence" when they were assembling beds for display purposes in the showroom.
There seems, to me, a slight discrepancy between "most unusual ... never ... before" and a "quite regular occurrence". One can only wonder aboutt the frequency of the never before information being given to a slightly disgruntled customer. This kind of disinformation would seem to me rather like applying flame at an oil refinery rather than pouring oil on troubled waters.
*PPS A much calmer post, THE VISITOR, can be found on my 'Mals Murmurings' blog.*
Wednesday, August 12, 2009
New Poem
If blogger will allow me in, as it seems to be working once more, I may post it on 'Mal's Factory' too.
Recently Unearthed & Newly Created
Sunday, August 09, 2009
Time on Mal's Hands
My latest blog posting, SHORT DAYS AND LONG HOURS, can be found on 'Mal's Murmurings'
Tuesday, August 04, 2009
LISTENING
It’s more difficult than you’d imagine to listen to one’s body. When things are going well, as has been the case for the past few months, with a paucity of trigger alarm signals, one becomes blissfully unaware of their own limitations. Managing a bit more here, and a bit more there, the extra effort seemed as if there were no toll to pay; the boundaries of my physical and mental effort have extended dramatically, way beyond what would have been my wildest dream during most hours, days, weeks and months from late 2003 to early 2009.
One takes the occasional trivial setback in their stride so, it came as something of a shock, this morning, when my head, torso and limbs were all suffering from several of the symptoms and sensations that so frequently blighted my being during that earlier period. Thankfully, they were only present as a pale reflection of their former intensity; even that was sufficient to prevent me continuing a leisurely stroll, on which I’d embarked mid-morning, to ‘
So, it has been a lazy day for me, enhanced by listening to a new CD, ‘Tortured Soul’ by Danelle Harvey; the lady in turn rocks, grooves and tenderly coaxes her own words into life in these songs. Although the title of the album, and indeed the subject matter of some of the songs, could lead one to expect a ‘downer’, it’s the artist’s vitality and resilience that shines through.
Not only have I been taking stock, renewing my vigilance, when it comes to listening to my own body, I’ve also had the pleasure of listening to an inspiring singer / songwriter.
The Garden Blooms on 'Mal's Picturebox'
Sunday, August 02, 2009
Garden Matters
Having spent several hours pottering about in the garden, both this morning and afternoon, with frequent intervals simply idling on one of the garden seats. I thought it was time to do something with these albums. This evening I prepared a welcome page, to accompany the albums, and uploaded them to a new free site on Bravenet. "HELMAL's GARDEN" can be visted at http://helmalsgarden.bravehost.com/main.html. If you omit the main.html, you'll quite simply land on one of the albums rather than the welcome page (I was too lazy to modify the individual html pages of the second album I created, thus leaving that album as the "index").
You're welcome to visit HELMAL's GARDEN.
Wednesday, July 29, 2009
Fleeting Moments
I'm still enjoying playing with my new toy - this time it's bumble bees and butterflies that go fluttering by!
Sunday, July 26, 2009
DAILY RAMBLINGS
DAILY RAMBLINGS
Just an ordinary day; you can’t get much more extraordinary than that! ‘Ordinary’ suggests some kind of stasis, whereas life is dynamic; I fail to understand why I ever think of any day that way. Yet, that is and just was the case; of that terrific disservice to the value of each moment I plead guilty!
Each new day we enter is a day of opportunity, a time to appreciate or a time to waste; all too frequently I spend a generous portion of the morning in bed, catching up on the sleep and, strangely, obtaining a quality of rest which the preceding hours never quite managed to attain. I do not, any longer, make this into a source of guilt but rather, take it as a necessary preparation for the full appreciation of the remainder of these twenty-four hours.
Upon emergence, and consequent merging into the stream of daylight hours, an ambling stroll up the garden, observing the minimal changes, to plant growth and decay, in both the cultivated and the more natural areas of our mini-estate, seems an essential prerequisite to my enjoyment of the day. It’s difficult to imagine how I possibly coped with living in a second floor (third floor in stateside terminology) apartment; perhaps I quite simply existed rather than “lived”. On the other hand, I do realize that what you’ve never had you can’t really miss!
There are inevitably occasions when my, Marxian inspired, political nature leaves me feeling rather at odds with this “spiritual” passive acceptance of my lot but, campaigning burn-out occurred many years ago. Social sympathies remain unchanged, despite my decrease in physical and emotional stamina; capitalism continues to eat itself, greed rules and, as a result, much of the world is quite simply a bloody mess. Pharmaceutical companies continue to leak laboratory strains of virus only to cash in on the need for an antidote; those prepared to stamp anyone down succeed in business; Palestinian Arabs are turned into homeless helpless victims on the very lands which are their birthright, as the persecuted have become the persecutor and, it seems as if morality is just another word for unenlightened self-interest.
The utilitarian ethos of the greatest good for the greatest number has been turned into an excuse for trampling on the rights and freedoms of all those who deign to challenge the status quo!
Sorry, I’m rambling again – I’ve almost lost the original thread – what was it? Oh yes, I remember, the extraordinariness of the everyday. These days, I’m overwhelmed by the simple occurrences of nature, the exhilaration I find in hearing the schnuffling - schnaffling sound of a hedgehog emanating from the vicinity of the birds’ ground feeder, the moths flying out from the long grasses as I take a twilight stroll up the garden, the sheer richness of life’s tapestry.
I can’t ignore the suffering that goes on all around us and, in spite of an accompanying sense of helplessness, I attempt to bear up in thought, prayer and occasional action, those who are in need and pain. In the words of a song by one of my favourite contemporary singer songwriters – Danelle Harvey – I’m ONLY HUMAN.
Thursday, July 23, 2009
Testing the tiger: Reflecting on military chaplaincy – article on Ekklesia
“Caesar, the state, the organisation, the institution, is symbolically the holder of power in any community or the defender of the status quo. The military operates at one extreme end of that continuum of power where their job is to apply the maximum amount of force on the enemy. Anything else, marching bands, flood relief and I daresay, peacekeeping, is a distraction for when there is no enemy.
A clergy person’s calling is different; to sit at the opposite end of that continuum of violence, where vulnerability, woundedness and the beauty of brokenness are valued. Our hero is grounded in his tradition but counter-cultural, questioning institutional violence with the ultimate challenge of non-violent vulnerability.”
- Sande Ramage
A wonderful sense of irony pervades this article; what else could we expect?
“On the day I closed my study door and walked away from the military, I smiled as I noticed again one of the many posters saying "no to inter-personal violence", which plaster the public noticeboards around Linton Camp.”
- Sande Ramage
Wednesday, July 22, 2009
A Special Privilege
Some events quite simply serve to put one’s life, with all its privileges and setbacks, into a more realistic perspective. Some people, though still young, brighten the lives of all those they encounter; without these people the world will be much poorer but, at the same time we can count it a real blessing that our paths have crossed.
Today, my younger step-daughter, Cathy, received the news from a friend (one who has been a friend, confidant, travelling companion right through from childhood) that the friend has been given 9 – 12 months to live. The friend, Kate, a remarkable and radiant young lady, is 28 years of age and, 21 weeks pregnant; it seems as if the pregnancy, and its accompanying hormonal imbalance, may have hastened the growth of a brainstem glioma.
It’s only a couple of years ago, after much humming and hawing by the medical profession, that a tumour was removed. In spite of the loss of peripheral vision, epileptic seizures, chronic migraines, Kate always has a ready warm smile for all whom she meets. Having been given the “all clear”, she was assured that the best course of action was to get on with life as normal and, yes, it would be alright to start a family. (The latter advice, in retrospect, seems to have been more than a little suspect).
Last year Cathy had the privilege of attending Kate’s wedding, when Kate married Luke, a young man from Essex she had met during her travels in Australia with Cathy. Cathy has always been determined that Kate would be her bridesmaid when she marries!
The news has been devastating to all of us and, as Cathy says, it’s impossible to imagine a world without Kate. Certainly the world will be much the poorer when the inevitable happens.
The only time we have is now, and whilst our thoughts and prayers go out to and for Kate, her family and all her friends, we must always remember the privilege of sharing / having shared the same planet!
Monday, July 13, 2009
Weakened Weekends and Travail Aids
Saturday evening is usually my major cooking time, when I prepare the meal for Sunday lunch-time, which usually also suffices for our needs on the Monday and, in variant form provides the main component of a further meal later in the week. This Saturday proved an exception, to the normal routine, as I was too achingly exhausted to attend to such matters.
Even Sunday morning found me too de-energised to make amends so, a frozen Sainsbury’s Chicken Tikka Masala for two served to fill the gap (admittedly it was more on the scale of an appetizer) accompanied by my specially prepared rice. As I usually prepare curries from scratch, this make do meal proved less than satisfying; it was rather like having a ketchup infused chip shop curry sauce with one or two thumbnail size pieces of meat (which could have almost passed for lumps in the gravy) by way of texture.
I’ll definitely try not to repeat this mistake but, I’m pleased I did not forego the BBQ on Saturday afternoon, held at a farmhouse on the Helperby Estate, the home of one of the doctors from the practice where
Apart from excellent company, and host provided musical entertainment, I also managed (with a little perseverance) to take some video footage of the House Martins paying fleeting visits to their eaves supported nests. In fact the video camera was frequently utilized in my attempt to catch the flavour of the occasion and, my SLR also came into its own for this purpose.
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Having partaken of our (excuse for) a Sunday lunch we ventured out to the retailer who had supplied the RAC satnav, which I bought back in May for
The assistant manager initially argued that the model we had purchased was “fit for purpose” providing it could get you to a destination, regardless of the fact that several long established addresses were beyond the scope of its database; it seemed to me a bit like saying if you bought a car and it made one journey successfully, after which it broke down, it was fit for purpose as you’d been able to get in and drive for that one journey! Despite my initial frustration with this explanation, he did demonstrate alternative means of searching its limited database and proved most helpful in our quest. The store manager admitted to the limitations of this particular model (other than for finding a city centre) and, allowed us to do an upgrade exchange for a better equipped ‘Tom-Tom’ model; I’d sooner pay the extra for something which more satisfactorily fulfils its intended purpose. As an easily un-nerved and discomforted / disgruntled traveller, the ‘Help Me’ function of the new device, clearly demonstrated by the assistant manager, should prove a great boon!
Downloading recommended updates this morning proved a doddle!
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On our return home, the contents of a pot of Fair-Trade filter coffee were eagerly consumed by ma belle et moi whilst sat beside the garden pond, a necessary pick-me-up! By this time I felt sufficiently energized to tackle a little maintenance work at the wildlife friendly end of the garden. Our hope and intention is that the whole of the garden is wildlife friendly but, I refer to the area of more rampant wildflower and shrub growth! I’m increasingly of the view that these “natural” areas of one’s estate take far more management than the cultivated ones! Ma belle busied herself tidying up elsewhere in the garden, managing to demonstrate her special gift for losing the implements which she has just been using on several occasions.
Sunday, July 12, 2009
Mobile Double Dis-Service
To unsubscribe before the beginning of next week go to: www.118800.co.uk and click on 'Ex Directory' at top right hand side of page. A code will be texted to your mobile to enable you to go Ex-Directory.
Unfortunately if you go to the site at present the Service has been suspended: message reads -
"Service suspended whilst we make improvements
'The 118 800 service for mobile phone connections is currently
unavailable - from this website and by phone - whilst we undertake major
developments to our 'Beta Service' to improve the experience for our
customers. We'll be back as soon as possible with the new improved
service.
All ex-directory requests made by people in our directory to date are
being processed. There will be no need to resend these requests. And we
will take further ex-directory requests when the service resumes. We
will not be taking ex-directory requests by phone or text whilst the
service is not operational.
Please do not call us on 118 800 for anything other than landline
directory enquiry requests as you will be charged for the call.
For other enquiries email us at contact@118800.co.uk or write to us at 118 800, PO Box 2747, Reading RG30 4ZQ
Sorry for any inconvenience caused."
I have tried e-mailing them at the contact address - contact@118800.co.uk in the hope that we can avoid yet another unwelcome dis-service.
As infrequent mobile users, strictly for emergencies, we are already subjected to unsolicited texts from 'Orange' our Service (?) Provider, I can only imagine the amount of "spam" we will be subjected to when the directory goes 'live'.
The Lightning Process Didn't Work For me
The Lightning Process Didn't Work For me
A refreshing account from a moderate ME sufferer of the methods employed by Lightning Process practitioners. Perhaps the process could help someone suffering from a depression related fatigue but not a real ME sufferer.
Prior to my current remission, as a moderate ME sufferer, my concentration span was frequently limited to a few minutes and, unless the room was darkened and a bed supplied for me to rest on, a few minutes of this positivity gobbledegook would have seen an immediate deterioration in my condition.
Negativity is not the cause of this neurological condition (M.E.) hence the whole premise of the process is invalid so far as ME is concerned.
Another Thread
Thursday, July 09, 2009
The Scandal of Privacy
So now we have a hacking scandal; the mobile ‘phones of celebrities and politicians have evidently been hacked by private investigators employed by staff of ‘The News of The World’. I don’t understand what’s so outrageous when, here in North Yorkshire, on our own doorstep at Menwith Hill we have a government condoned American spy base allowed to intercept all forms of telecommunication.
An occupation force is evidently allowed much greater freedoms than the so-called free press.
On Parole
Perhaps the greatest advance was a walk into town, the first time I’ve been able to manage that in almost six years and, more importantly, being able to cope with all the audio-visual experiences a town centre throws at one. This comes in the wake of throwing off a chemical lifebelt of anti-depressants, which were supposedly easing my anxiety / panic attacks!
An early morning dose of tramadol hydrochloride (initially prescribed on a more intensive basis to cope with the pain caused by a herniated disc) serves to alleviate the muscular stiffness and spasms which have long been my faithful companions. As a result I have been able to manage more short walks, on top of carrying out various tasks in the garden and my regular culinary activities.
Somehow, the advent of my full pensionable status seems to have coincided with an upturn in my general sense of wellbeing. Perhaps part of it is the newly found freedom from guilt on my better days; the thought that I should attempt a return to gainful employment is no longer part of my agenda. The expectation that I could have done so was totally unrealistic on account of the unpredictability of this condition. Even the re-invigorated Malcolm is still subject to the whims of an achingly exhausted body and, it would be foolish to ignore the more insistent corporeal demands for rest (unless a sense of masochism longed for a painful relapse).
Meantime, I simply give thanks for being paroled from the ME – CFS prison.
Saturday, June 27, 2009
SENSATIONAL
The reason for this exhilaration; Crosby, Stills and Nash at Glastonbury 2009! Wow, what can I say, really I’m all shaken and stirred; I doubt if they’ve ever played a better set; blissful harmonies, smiling rhythms, steely leads and an overall spine-tingling, tear tickling (and stirring), celebration of what it means to be alive.
Yep, you’ve guessed it; I was impressed!
Thanks to BBC4 – I was there.
Tuesday, June 23, 2009
Thursday, June 18, 2009
Attaining Full Credentials
Last night, for the first time in many weeks, I experienced that sudden exhaustion whereby my aimlessly wilful lower limbs directed me, albeit falteringly, to the house’s upper floor in search of a bed. Object achieved, there came the inevitable collapse onto the nocturnal furniture. Just as night follows day, my body required the assistance of my beloved to carry out the task of its disrobing.
Some thirteen hours later I emerged from the soundest sleep experienced for months, or possibly even years. You might assume that, after this rest, I would be able to face the new day feeling totally refreshed; of course you’d be wrong. I don’t know if you’ve ever had the sense of your body being lined, internally, by a coarse felt sheet which has been (and still is being) subjected to a thumping hollow bruising affect! It’s my duty to inform you that it’s most unpleasant and, you have my sympathy if it falls within the range of your experience!
Anyway, unpleasantries out of the way, I can ignore other familiar ailments and move on to recent more positive experiences / activities. Having replaced a right angled absence on our front fence with a partial small pallet presence, I was able to utilize the base of this ‘new’ fence section as a mini-planter wherein I’ve placed a couple of small ivy plants. Further horticultural endeavours have been centred on the garden at the rear of the house, paying particular attention to the wildlife friendly arena. It’s most rewarding to view the results of previous years’ efforts which are gradually coming to fruition!
Monday of this week saw the celebration of my 65th birthday, a special milestone as I am now a fully fledged pensioner! At lunchtime ma belle Helen and myself had a light lunch at a newly established local crĂŞperie, Helen partaking of a goats cheese variety whilst I settled for the smoked salmon. As it’s a new venture, the accompanying drinks were free of charge, something most welcome in these financially straitened times!
From 7.00pm onwards, friends of ours called round chez nous, as and when convenient to themselves to partake of a birthday drink and toast the venerable birthday boy. As I’m not much for parties, and especially those of a more formal variety, this arrangement proved ideal. Having been incapable of much socializing, in recent years, it proved most enjoyable to play the (occasionally) sociable host. Although I have lost contact with several of my friends (those who failed to understand my health problems) since becoming an ME sufferer, it was great to know that I’m not totally forgotten! It’s my pleasure to report that a good time was had by all. Snacks and nibbles remaining from this event have made an interesting addition to our more routine diet, and of course we’ve had to make ourselves quaff the remaining wine from sundry open bottles.
The week has quite simply flown by as my beloved had taken the week off from work; time spent with ma belle amoureuse is always a pleasure, it’s remarkable to have a life so blessed!
Inquiry into vested interests - M.E. related
Please click on the link and sign this petition, it only takes a couple of seconds, - We are fighting to have our illness recognised.
http://petitions.number10.gov.uk/MEInquiry/#detail
The All Party Parliamentary Group's Gibson Inquiry into ME in 2006 came to the conclusion that it was highly inappropriate for psychiatrists such as Simon Wessely and Peter White et al to act as advisor's on illnesses like ME CFS for the Government and the DWP while working as consultants for the medical insurance industry for companies such as UNUM Provident. The insurance industry have a clear vested interest in classifying such illnesses as psychiatric conditions (despite the WHO classification of ME as a neurological condition ICD 10 G93.3) since they have to pay out less on policies.
The recommendations of the Gibson Inquiry called for an appropriate standards body to be set up to investigate these clear and alarming vested interests. This recommendation seems to have disappeared in a puff of smoke?
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We the undersigned petition the Prime Minister to take up Gibson Inquiry into M.E. recommendation of a Public Inquiry into vested interests.
http://petitions.number10.gov.uk/MEInquiry/#detail
Saturday, June 13, 2009
REMPEMREL
rempemrel - watercolour - Malcolm Evison 2009Tuesday, June 09, 2009
Assuaging Guilt
Guilt wraps around me like a barbed wire glove. And what is the reason? Neglecting my blog! Don’t get me wrong, I enjoy keeping an online journal but, it’s rather like the diaries of my youth; a flurry of activity when the logging begins but, after a while it seems like a chore too far. When a pleasure becomes chore neglect seems like a sensible response but, guilt creeps around one almost as if one is acknowledging their own sense of failure.
There’s always plenty of news to share, should anyone be in the least interested, but the doing of events always seems preferable to their recording. So, why do I bother: a simple need to communicate from, but is this arrogance? Could it be quite simply that the opportunity is there, so why not use it? Perhaps I’m attempting to fill an unacknowledged, even unrecognized, void in my life. Should that be the case then, why should I feel guilty about recent neglect, surely that should be a cause for rejoicing!
Anyway, I’m now set to assuage my guilt; after all the primary reason for neglecting my little niche in cyberspace is that whenever stamina has permitted I’ve been too busily occupied in real space. The work of re-moulding the garden goes on apace; it’s amazing how much effort it takes to create a more natural wildlife friendly space. Apart from digging, planting, and removing, sundry nature’s artefacts, I’ve also been assembling a new bird table, and a rather rustic arbour seat (a marginally advance 65th birthday present) in the more (wilfully) overgrown area of the garden.
Although my familiar glandular and muscular aches and discomforts are always to be reckoned with, a recent acupuncture treatment (western localized style), on my back, relieved me of pains of which I’d previously been unaware, finally acknowledged by their absence. Hence the bout of activity, only interrupted by the unwelcome effects of post-exertional malaise.
Whilst the warmer, sunshine bright, days encouraged my out-of-doors presence, I also reacted rather badly to the hotter days – my erratic body thermostat being somewhat better adapted to more typical British Spring and Autumn temperatures. At least the arbour seat will offer me a little more shelter from the ravaging sun and, also enable me to spend a little more time enjoying the environment in less clement weather.
The garden has played host to a growing display of avian juvenile gapes, the young are still quite happy, even demanding, to be fed even after they’re more than capable of feeding themselves. I’ve lost count of the hours spent observing this behaviour, both from the comfort of the lounge and an appropriately placed garden seat beside the pond.
The feeding regime for the piscine inhabitants of both pond and aquariums provides a little structure to my otherwise erratically unstructured days. The only other structure is the preparation of meals in time for my beloved’s return from her workplace.
After all that build up, I’ve little else to say – or at least a running down of my stamina resource demands this hasty conclusion.
Monday, June 08, 2009
Gordon the Unlucky
"For much of the past 30 years, politics and policy here and in America have moved in tandem. We had Reagan; they had Thatcher. We had the Garn-St. Germain Act of 1982, which dismantled New Deal-era banking regulation; they had the Big Bang of 1986, which deregulated London’s financial industry. Both nations had an explosion of household debt and saw their financial systems become increasingly unsound."
"But here’s the thing. While Mr. Brown and his party may deserve to be punished, their political opponents don’t deserve to be rewarded.
After all, would a Conservative government have been any less in the thrall of free-market fundamentalism, any more willing to rein in runaway finance, over the past decade? Of course not.
And Mr. Brown’s response to the crisis — a burst of activism to make up for his past passivity — makes sense, whereas that of his opponents does not."
Paul Krugman - "Gordon the Unlucky", New York Times (8 June 2009)
Tuesday, May 26, 2009
Monday, May 25, 2009
Mal's Remarkable Murmurings
Thursday, May 21, 2009
Linked Reflections
The muse has been pestering me, a bit, recently. A new poem ON REFLECTION can be found on Mal's Factory and, a sequel A PALE REFLECTION on Archive Mined & Freshly Spun.
Wednesday, May 20, 2009
A Clever Breed
At first the observations are highly entertaining and, the object of the observations is a rather handsome brute. Before long he’s joined by some companions and, we continue to enjoy their antics; we’ve not usually had jackdaws visiting our garden and, after all, there’s sufficient food in the various trays for all the visitors, whether it be the ground feeders or the mounted ones.
Our most common visitors are quarrels of starlings, flocks of house sparrows, scurries of dunnocks and, this year especially, blackbirds. We also have not infrequent visits from blue and great tits, collar doves, wood pigeons and, at the top end of the garden, tree sparrows. We have a variety of hanging seed and fat ball feeders which once were the prerogative of the smaller avian species. Admittedly the starlings could make moderately short shrift of the fat balls but, up until now, they’ve not got the hang of the seed feeders.
To our surprise, the jackdaws are not only rapidly demolishing and devouring the contents of the fat ball feeders but, some of this species have developed the agility to manage even the trickiest of the hanging seed feeders. Their learning process has been at almost lightning speed; at least the seed feeders are a bit too fiddly for them to empty swiftly but, the fat balls are now going down at an alarming rate of eight fat balls per day.
This afternoon, I’ve tried filling a spherical peanut feeder with the fat balls; this will hopefully thwart the jackdaws’ ambition to eat for England!
Tuesday, May 19, 2009
All Fall Down - what's to become of us?
After all, if we get rid of all the corrupt politicians there'll be nobody in the house who understands standard business and commercial practises!
Sunday, May 17, 2009
Mal murmurs about the garden
Todays small domestic blog post, pretentiously (and probably incorrectly) titled 'avant moi le deluge', can be found on 'Mal's Murmurings'
Saturday, May 16, 2009
Verse Autobiography
The three poems (or three parts of one poem), still in draft form, are of necessity laid out consecutively; ideally (though impossibly) they should be read concurrently as each covers much the same early period of the individuals life.
Autobiography is a new verse game for me but, I would appreciate any comments on the work so far.
The work in progress, BIRTH OF AN ALIEN, can be found on MAL's FACTORY
Wednesday, May 13, 2009
Stop The Bloodbath
50,000 innocent civilians are caught in the deadly crossfire of Sri Lanka's civil war. This raging battle is the last phase of a 26 year fight for Tamil independence on the small Asian island to the east of India. Over 1000 people were killed in just 48 hours last weekend.
Sri Lanka's largest donor and major ally in the region, Japan, has the power to help put an end to this unfolding human catastrophe. That is why I've just written to Foreign Minister Nakasone urging Japan to insist that Sri Lanka's government and rebel groups ensure the safety of the civilians. Sending a message takes just a minute and can help to save lives. Please join me in clicking this link:
http://www.avaaz.org/en/stop_the_bloodbath/98.php?CLICK_TF_TRACK
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Here's the original email from Avaaz:
Dear friends,
A modern day bloodbath is unfolding on the small island of Sri Lanka, where a thousand civilians were reported killed over the weekend and tens of thousands of innocent people are literally at risk of being killed this week as government and rebel forces battle it out over the last small patch of rebel held territory.
Now that the US has begun to increase its pressure, the key to stopping this humanitarian disaster lies with Sri Lanka’s most significant donor and closest partner in the region -- Japan. It has powerful political and economic influence over the Sri Lankan government and a swing vote at the UN Security Council, which up until now has turned a blind eye to this mounting catastrophe.
Click here to send a message to the Japanese Foreign Minister, who is deciding his government's next steps. Japan cares about its international reputation and a flood of messages from abroad would encourage them to act. If Japan moves then the Sri Lankan government will be forced to immediately respond to protect civilians:
http://www.avaaz.org/en/stop_the_bloodbath/98.php?CLICK_TF_TRACK
As last weekend´s carnage testifies, every minute counts for the estimated 50,000 civilians still trapped inside the shrinking conflict zone and for those 200,000 more who are barely surviving in overcrowded camps. The International Committee of the Red Cross, which rarely makes public comment, called this conflict between the Sri Lankan government and the Tamil rebels, 'nothing short of catastrophic'.
Until now, the divided UN Security Council has abdicated their responsibility to protect Sri Lankans from war crimes and other atrocities. But in this conflict Japan cannot be ignored – its powerful voice could tip the balance and influence the conflict dynamics, saving lives in the short-term and promoting peace and development in the long run.
Asia's longest-running civil war is entering its final stage – the only question is how many will die before it ends. Let´s send a powerful message urging Japan´s Foreign Minister to act responsibly and lead international efforts to push the Tamil rebels to release the remaining civilians, stop the government bombing and bring sustainable peace to Sri Lanka. Japan's political and economic weight means that they cannot be ignored:
http://www.avaaz.org/en/stop_the_bloodbath/98.php?CLICK_TF_TRACK
As other donor nations increase the pressure behind the scenes this week, a truly global citizens' outcry can further turn the heat on the Japanese government to use its leverage and push for a robust and concerted international action that stops the bloodshed and protect the Sri Lankan civilian population at risk. Thank you for sending your message today.
With hope
Luis, Brett, Alice, Graziela, Pascal, Ben, Ricken, Paula, Iain, Paul, Raj and the rest of the Avaaz Team
Saturday, May 09, 2009
Freshly Minted
Wednesday, May 06, 2009
New Painting
Thursday, April 30, 2009
Seasons In The Sun
Experience has taught me the importance of retaining some energy, rather than go flat out to tackle the job in hand but, the temptation’s always there to do a little bit more. Surely one can manage that extra little exertion? Nine times out of ten I could; problem is, that extra little exertion is the proverbial straw that flattens the hump.
Five minutes more effort can mean several days painfully laid low, aching and feeling tortuously bruised in places one can’t imagine anyone having a name for; in fact, one has temporarily lost the ability to name even the familiar places. At these times, one wishes the world would end and, stamina permitting, one screams out the words that many hangover sufferer may utter the morning after, “Never again!”
Of course, at the weekend my beloved is around to keep an eye on me; she certainly doesn’t want to deal with the aftermath and, at times seems more aware of my limitations than I, in my better days, am capable of acknowledging.
Come Monday, the rains had arrived, drastically curtailing any desire to do a little more pottering about in the garden – guilt free, I’m able to take things easier! Wednesday afternoon, the sun breaks through in glorious splendour and the impulse to go forth and till the fields grows strong.
I settle for something a little strenuous and, transplant a few tomato seedlings, from the windowsill propagator into pots ready for placement in the greenhouse. Although not excessively hot, a little time in the sunshine coupled with a moderate exertion proves overpowering. The glow of satisfaction, at another little task completed, is counterbalanced by a tediously frustrating shattered-ness. In this instance the weather proved both friend and foe.
I can only give thanks for all the things I can manage and, a new preparedness to listen to my body.
Monday, April 27, 2009
HIDDEN MESSAGES
My beloved gets up from the table and brings the ‘literature’ through to the dining room. “It’s about green policy”, she reports. Sure enough, the bold headline news is ‘Protecting our local green belt’, not quite the kind of green policy I anticipated. I then glanced at the newspapers header which read ‘Harrogate & Knaresborough District News’ subtitled ‘Delivered free by your local Conservatives to over 40,000 homes’. So instead of a newspaper we have a propaganda sheet.
They certainly start them young on the propaganda trail, these Tories. A sudden disclosure flashes across my mind as the very young children go about their Sunday job, delivering these sheets of waste paper; Tories plan to re-introduce child labour.
I think about this for a couple of minutes, concerned about the corruption of innocent children for party political ends. I think a little bit more about it and, the realization dawns that they have to utilize the very young as anyone older, and with a modicum of intelligence, will remember the disastrous socially divisive policies of the Thatcher era. (Sadly, Blair and his ilk corrupted Labour, transforming itself into New Labour, by adopting the same monetarist policies; the very policies that led to the global financial meltdown).
How could one forget the Saatchi brothers inspired Tory campaign, which brought about their election victory at the end of the 1970’s, showing a dole queue under the banner heading ‘Labour Isn’t Working’. At that time unemployment was reaching the one million mark, within a couple of years Thatcher had transformed that into more than 3 million unemployed. They attempted to massage the figures by placing people onto different welfare benefits but the exponential growth of the unemployment figures continued, even excluding those numbers (in reality people) surreptitiously ignored!
I remember too the Poll Tax riots, which led to a U-turn in the policy of the Lady who was not for turning. Self-interest, greed, “no such thing as society”, was the legacy that Conservative regime bestowed upon the country. A legacy of broken lives and self-centred individualism is their proud claim.
But, the message I received yesterday was their readiness to re-introduce child labour.
Cameron and his ilk attempt to portray a conservatism with a human face but, the truth is that Thatcher’s cohorts will be disclosed once that veneer receives the least scratch. Tory ideas, practised by New Labour, helped to get us into the current difficulties, why should anyone trust the real full-blooded instigators of this change to rescue us!
Sunday, April 26, 2009
A Teddy Bear Substitute
They walk around self-obsessed; poor dears, they probably can’t help it. All those around them may as well not exist or, perhaps for these teddy bear bearers the only reality is themselves, the contemporary solipsistic tendency.
Wherever they go they chatter to their teddy bear, without whose presence their life would apparently be totally devoid of meaning. It’s quite strange how far the teddy bear, like the comfort blanket, has metamorphosed to meet the requirements of the discerning contemporary solipsist.
Of course I may be wrong; the problem may not be solipsism but, rather a total lack of manners. They wander around town, out in the countryside, in supermarkets, DIY stores, chattering away to their teddy bears. I suspect that these transmogrified teddy bears are extremely hard of hearing as it always seems to be the case that their owners have to raise their voices to reassure themselves that these pieces of plastic understand. I know they must be some kind of teddy bear; one can tell, by their owners whole demeanour, that the whole universe would fall apart without this faithful toy. Indeed, some owners have developed a technique whereby they can cuddle the toy under their chin, should hands be required to tackle some other task in their solitary universe.
Oft times, one may witness these sadly deluded people persist in stridently chattering to their plastic toy as they load up their shopping baskets, present the baskets at the till without uttering a word to, or exchanging a glance with, the till-operator. I was brought up to believe that such behaviour was the height of rudeness; perhaps their solipsistic outlook should make me feel more tolerant towards them.
It was quite a surprise to me when I finally discovered that this inanimate object, around which their entire existence seemed to revolve, had actually been called a ‘mobile phone’. Still, it certainly seems to have become a substitute teddy bear or comfort blanket.
I only wish it had been a dummy substitute; at least with their mouths filled I wouldn’t have to listen in to their hysterical shouting!
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This posting also appears on Mal's Murmurings
Tuesday, April 21, 2009
tempus fugit - carpe diem
There was a song, “Who Knows Where The Time Goes”, to which I always wanted to respond, “don’t ask me; it’s one of life’s little mysteries!” Mind you, there have been occasions when time seemed to hang like a leaden pendulum, especially when working as an accounts manager and we suddenly changed from old fashioned double entry book-keeping to a purpose built computerized system. Whereas on the one hand it was a much quicker process, much time was spent twiddling the thumbs, whilst we awaited the snail-mail delivery of our weekly printouts from the mainframe situated some ninety miles away.
Where once a simple glance at the ledger would show where any discrepancy had occurred, thanks to new technology, we now had to trawl through sheaths of lined paper filled with endless repetitions. Don’t get me wrong, accounts work was never mine by choice but rather a means of sustaining me whilst I got on with the important things in life. In those days, the only time that flew by was those hours outside of the office ones!
Later employment, working for the museums and art gallery service, both front and back of house, proved much more rewarding (even if somewhat less lucrative). Once the opportunity arose, not infrequently, to get on ones hobby-horse, time passed as if it had a rocket assisted launch. Even my last paid employment as a caretaker/steward at a thriving parish church, where I frequently toiled well beyond the appointed hours, saw the hours float away!
Nothing to do? I’ve been thinking about that, as my digits stray across the keyboard on auto-pilot: there’s always too much to do, especially the tasks for which I possess neither the necessary physical or emotional stamina! Stamina and intermittent brain-fog permitting, I can get on with my writing, watercolour painting, amateur website building etc, tending to the aquarium and pond inhabitants needs (sometimes not as frequently as I ought to – a missed filter clean/change here and there seems to occur due to lack of time and focus) and general pottering around in the garden.
I even manage to fit in the occasional socializing visit to ‘Open Church’ or ‘CafĂ© Culture’, events which health reasons had deprived me of for a rather prolonged period of time. One of these days, I may regain sufficient stamina to go to a gig or concert which was at one time a fairly regular part of my life.
I am extremely grateful for all that I can manage although still succumbing to bouts of frustration regarding the many things that I can no longer manage. Fortunately, “pacing” imposes itself on me when otherwise I would be tempted to return to the old boom and bust cycle. It’s almost as if my self-discipline now disciplines me.
Who knows where the time goes? I don’t really care, we only have one life and we’d better make the most of it!
Exporting Gun Crime
In other words: Our president can deal with all manner of big problems, but the American gun lobby is just too strong to let him push a rational and limited gun regulation through Congress.
It's particularly infuriating that Obama offered this statement of powerlessness just a few days before today's 10th anniversary of the massacre at Columbine High School in Colorado -- and just after a spree of mass homicides across the United States took the lives of least 57 people.
No other democratic country in the world has the foolish, ineffectual gun regulations that we do. And, unfortunately, what Obama said is probably true.”
Who will face down the gun lobby? – E. J. Dionne Jr - WashingtonPost
Friday, April 10, 2009
Gaza aid being blocked by Israel
Gaza aid being blocked by Israel, says reporter
Thousands of tons of humanitarian aid intended for the people of Gaza are sitting at the Egyptian border because Israel has not authorized them to pass, says a freelance journalist on the spot.
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Source URL:
http://www.ekklesia.co.uk/node/9204
Wednesday, April 01, 2009
AVIAN CONNECTIONS
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Whenever I venture out, he’s usually sat on the fence or the greenhouse roof; when he’s hungry he places himself in the middle of the ground feeder whilst nodding in my direction. So I pop back in the house to get a handful of sprinkles and, he stays in situ whilst I scatter them on the feeder tray
.Today when I ambled up to the more wildlife friendly area of the garden, he followed me hopping on to various shrubs and the fence. I always try to proffer a friendly greeting, perhaps it’s the tone of voice rather than the words used that matters, and we exchange a few sucked sibilant “tt,tt,tts” in full recognition of each others presence.
Each time I venture out and he presents himself (like an over zealous friend) in very close proximity, I’m almost overwhelmed by an amazing sense of privilege. Strangely, or perhaps not so strange, he’s a bit more wary of my beloved but she still delights in my enjoyment of the relationship.
Sunday, March 29, 2009
Pronghorn evolution : a matter of fact?
Wednesday, March 25, 2009
Dichotomy - IAIYH
My head keeps telling me that I ought to be able to do things (after all six or seven years ago it was no problem!). Of course, my body tells me in a most excruciating manner that I'm not able to do those things. The head starts grieving for the limitations of the body, the restrictions on any socializing that I used to enjoy etc.; so I try to exert myself a little more, the effects a couple of days later are devastating.
There must be something wrong with my head, it has the false belief that I ought to be able to manage these things!
Suddenly the remembrance, from long ago days when I studied philosophy, you can't derive an "ought" from an "is". Then I knew that my head was wrong, it's just a bad philosopher. I may still have ME but, I'm not going to let my head make me feel guilty about it!