ME
Wednesday, March 30, 2016
The Common Cold - A Rare Event (an accidental posting)
Life goes on, recurrence of the old familiar aches, pains and dysfunctions (primarily ME related) nag me into acknowledgment of my presence in the material world. Don't get me wrong, whatever ailments are thrown my way I still manage a smile, a laugh and, dare I say it, pure enjoyment and delight in the presence of my beloved.
The last few days I've been quite knocked out by a quite severe cold and, who knows, this may be a good sign - fingers crossed for the moment but I won't hold my breath; last time I had a real cold was best part of thirteen years ago. In 2003, a cold or flu-like symptoms seemed to accompany my every day, never materializing as a full-blown anything. Two thousand and three was also the year of my major collapse leading to an eventual ME diagnosis; in the meantime, whatever discomforts and anguish I've been heir to, a full blown cold has eluded me.
Actually I had no intention of writing a full post, just wanted to say that I've posted a brand new poem (both text only and illustrated version) on my Mal's Factory poetry weblog. It very much reflects the present ambience in which I have my being.
Link: http://malsfactory.blogspot.co.uk/2016/03/twice-removed.html
Wednesday, March 02, 2016
A SLOW SLIDES JOURNEY INTO DAYMARE
A SLOW SLIDES JOURNEY INTO
DAYMARE
Today would be best
forgotten but, it’s my failure that I find it hard to forget, just as I find it
almost insurmountably difficult to forgive. Much of today’s problems, other
than the generally ongoing ME related ailments, emanate from the inappropriate
prescribing by a certain medical professional. That GP I am unable to forgive.
This morning I was forced
to emerge, from the duvet lair, a good
1 ¾ hrs earlier than is my norm, to keep a
previously postponed appointment at the hospital’s orthoptics department. The
morning, apart from my unearthly hours emergence into the day, was also greeted
with a quite heavy snowfall.
Anyone who knows me, at
all well, is all too aware of my difficulty with travel of any kind and, this
morning’s short journey, following the main roads rather than our usual
shortcuts, was one of following and being followed by skidding and stalling vehicles.
This was just like living through a
nightmare for my sensitivities. At one point, even my beloved chauffeuse thought
we’d maybe have to call the hospital to cancel the appointment, this time at
much shorter notice. In spite of prior weather warnings of snowfall the
responsible(!) authorities hadn’t bothered to grit the roads.
Whilst my beloved queued,
waiting to access the hospital’s car park, I made my way to the relevant
department. As I looked for the right place I wandered past the turning, having
been told it was to the left, by a volunteer near reception, whereas it was
actually to the right. Having ambled along the corridor a notice clearly stated
that patients for Visual Fields Test should take a seat “here”, which I duly
obeyed. Several minutes later a couple of hospital staff ambled by and asked if
I was alright; I in turn informed them that I was waiting for the visual field
test. Evidently I should have first reported to a reception staton some twenty
to thirty yards further along the corridor.
By this time I urgently
needed the loo, and had a bout of re-active diarrhoea, before entering the
surgery. The clinician was quite concerned that my head felt so hot, and I
explained how this wasn’t unusual as I could sweat in a freezing environment,
my body thermostat being shattered / wildly erratic ever since succumbing to
ME.
About halfway through the
tests on my first eye I required a break as my chin and forehead were so
uncomfortable, and I needed a drink of water before I continued. No sooner was
the patch transferred to the other eye, and appropriate lens in place than I
became quite headachy and totally incapable of concentrating as all spun around
me. I informed the clinician that I wasn’t able to continue the test and also cancelled
and discharged myself from tomorrows appointment with ophthalmology.
I simply cannot cope with
early hours or concentrated attention. The appointments would not, in any case,
have been necessary had my GP not messed haphazardly with my medication. [Earlier postings have already dealt with
this situation]
Labels:
alienation,
eye-clinic,
forget,
forgive,
health,
ME,
medication,
moderate ME,
skidding,
spoonie,
stalling,
travel,
weather
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