ME
Wednesday, April 10, 2013
... and the usual suspects
Sunday, February 10, 2013
for this ordinary day ...
Thursday, January 31, 2013
and I'm feeling fine ... ailments excepted
Tuesday, January 29, 2013
ailing and rejoicing
Sunday, January 29, 2012
(doing the) anniversary wash
Sunday, October 30, 2011
of needles and needless worries
Tuesday, October 25, 2011
normal service may be resumed ... tomorrow
Wednesday, February 16, 2011
The Opening of the Floodgates
As my beloved will be seeing her friend this evening, she wondered what I'd like for lunch and profferred the suggestion that maybe I'd like to take advantage of the OAP concession at the local chippie. The fish and chips from this particular outlet are really delicious, a wonderful inexpensive treat, so the suggestion should have been greeted with unconditional enthusiasm! Unfortunately, with my haphazard assortment of gastric disorders, the last couple of times I've enjoyed this feast there have been subsequent repercussions. As this thought passed through my mind, the almost hysterical tearful effusion occurred.
At this point my total distrust of the GPs I've visited recently came to the fore; I've increasingly been made to feel that I'm a nuisance and a waste of their time (wittingly or unwittingly I don't know). Since concentrating on treatment of GORD, any mention I, or my beloved, make of my underlying ME-CFS symptoms / ailments, are swiftly brushed aside / ignored. On the last visit I was asked, in an accusatory manner, why I'd been seeing different doctors (from within the practice), ignoring the fact that on several occasions follow-up appointments booked with the same GP, either online or at the surgery, have subsequently been cancelled, via 'phone calls from the surgery, and alternatives have had to be arranged. I'm also dependent on the availability of ma belle chauffeuse, to get me to the surgery, so also have to work around this; the alternative would be a two bus journey each way and, since 2003 I have found this mode of transport extremely stressful.
When I went to the hospital's phlebotomy department yesterday, for sundry samples to be taken, I was reminded that a consultant endocrinologist had informed the practice that certain of these tests, to monitor my condition, should be carried out at least every six months; this has not happened for the past few years (probably since the previous senior partner, who was my primary reason for remaining with the practice, retired from the practice).
Perhaps the fact that I'm currently on antibiotics, in addition to sundry other medications, suggests that I'm at a particularly low ebb. The opening of the floodgates proved difficult to understand, nonetheless, as I haven't been feeling at all depressed (just ill)! Maybe I'm a little more frail (and vulnerably de-energized) than usual having missed my most recent physio / acupuncture treatment; the physios services were required, to deal with some very urgent cases, by another district within the health authority, which no longer employs anyone in an equivalent position, quite likely a result of the ConDems ideological cuts.
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P.S. a rather more upbeat postscript to this posting can be found on my 'Mal's Murmurings' blog, apropos the floodgates.
Thursday, July 29, 2010
how strange the change ...
What a difference a day makes; after yesterday’s ropiest of starts, as the day progressed, my appetite (for food) commenced a restorative process. After days of picky snacking, and with the comforting presence of ma belle, by early afternoon I felt fully able to contemplate a real lunch; the swiftly prepared baked salmon, served with new potatoes, brocolli and beans, seemed like a real treat and I even enjoyed a post-meal shared pot of Earl Grey without any adverse reaction. By this time I’m beginning to suspect that some of my most recent discomfort has been a reaction to the Amoxicillin prescribed last Saturday but, I doubt whether I can hold that responsible for the mornings flow of tears.
Late afternoon I got in to see the locum doctor, at my GP’s surgery, and he proved to be a good listener – to me the most important prerequisite for any GP. After a few minutes, having checked my medical history, he asked whether I felt a need to go back on Citalopram or whether something to help me regain a reasonable sleep pattern would be most appropriate. I settled for the latter as, quite honestly, with the exception of those spontaneous re-active outbreaks like that experienced yesterday morning, my general disposition (even allowing for the aggravating dis-ease I’ve been experiencing of late) is pretty positive.
To assist with my sleep he has prescribed Trazadone ( which I notice is an anti-depressant) but only in a very low dosage, one 50mg capsule to be taken an hour before bedtime. After the first dose I haven’t noticed much change but, at least I had no recourse to wee small hours radio listening. Although my beloved had left a glass of water at my bedside, before she left for work at 7.30am, it wasn’t until 9.30 that I was sufficiently awake to utilize it as I swallowed my cocktail of lansoprazole, tramadol and amocxicillin. Removing myself from the duvet lair, at around 10.00am, I felt really quite refreshed – a relatively unfamiliar early morning sensation - and by shortly after 11.00am had corralled the necessary stamina to manage a quite brisk walk down to 'Open Church'.
When my physio visited, earlier this afternoon, after a while spent in conversation she applied the acupuncture needles in positions most conducive to aiding relaxation and recuperation.
Tuesday, February 02, 2010
Get The Drift
Early afternoon and my physio arrives; a little chat over a cup of hot beverage precedes the acupuncture therapy, melodic strains emanating from Radio 3 create a suitably relaxed environment. I lie back, breathe slowly and deeply as she ascertains the appropriate points for the needles insertion. As I relax, I feel a warmly gentle golden glow radiating through my limbs, allow myself to drift with the background music. Mere idleness transformed into a bissful relaxation.
Friday, December 11, 2009
Ringing The Changes
My second 'phone call of the day was quite unwelcome. Having given a second chance (disregarding their somewhat inflated prices) to 'Pieroth', the wine merchant whose reps visit one at home for a wine tasting, and placed an order for a case which we received in the past week, they decided to give us a call today to try and sell us some more.
The reason we'd previously given up on them was the high number of unwelcome canvassing phone calls, a reason which we had explained to them on numerous occasions. This time there will be no further chances, they can keep their product and stuff it where the sun don't shine. When will they ever learn?
Tuesday, June 09, 2009
Assuaging Guilt
Guilt wraps around me like a barbed wire glove. And what is the reason? Neglecting my blog! Don’t get me wrong, I enjoy keeping an online journal but, it’s rather like the diaries of my youth; a flurry of activity when the logging begins but, after a while it seems like a chore too far. When a pleasure becomes chore neglect seems like a sensible response but, guilt creeps around one almost as if one is acknowledging their own sense of failure.
There’s always plenty of news to share, should anyone be in the least interested, but the doing of events always seems preferable to their recording. So, why do I bother: a simple need to communicate from, but is this arrogance? Could it be quite simply that the opportunity is there, so why not use it? Perhaps I’m attempting to fill an unacknowledged, even unrecognized, void in my life. Should that be the case then, why should I feel guilty about recent neglect, surely that should be a cause for rejoicing!
Anyway, I’m now set to assuage my guilt; after all the primary reason for neglecting my little niche in cyberspace is that whenever stamina has permitted I’ve been too busily occupied in real space. The work of re-moulding the garden goes on apace; it’s amazing how much effort it takes to create a more natural wildlife friendly space. Apart from digging, planting, and removing, sundry nature’s artefacts, I’ve also been assembling a new bird table, and a rather rustic arbour seat (a marginally advance 65th birthday present) in the more (wilfully) overgrown area of the garden.
Although my familiar glandular and muscular aches and discomforts are always to be reckoned with, a recent acupuncture treatment (western localized style), on my back, relieved me of pains of which I’d previously been unaware, finally acknowledged by their absence. Hence the bout of activity, only interrupted by the unwelcome effects of post-exertional malaise.
Whilst the warmer, sunshine bright, days encouraged my out-of-doors presence, I also reacted rather badly to the hotter days – my erratic body thermostat being somewhat better adapted to more typical British Spring and Autumn temperatures. At least the arbour seat will offer me a little more shelter from the ravaging sun and, also enable me to spend a little more time enjoying the environment in less clement weather.
The garden has played host to a growing display of avian juvenile gapes, the young are still quite happy, even demanding, to be fed even after they’re more than capable of feeding themselves. I’ve lost count of the hours spent observing this behaviour, both from the comfort of the lounge and an appropriately placed garden seat beside the pond.
The feeding regime for the piscine inhabitants of both pond and aquariums provides a little structure to my otherwise erratically unstructured days. The only other structure is the preparation of meals in time for my beloved’s return from her workplace.
After all that build up, I’ve little else to say – or at least a running down of my stamina resource demands this hasty conclusion.
Saturday, July 05, 2008
Of Rain, Needlepoint and Relief
Just one of those familiar night alerts; I wake suddenly to obey a call of nature. Look at the clock but, owing to the darkness, fail to believe the time it tells. The display tells me that it’s three forty-five (am) but the enveloping darkness suggests somewhere between midnight and one (am); an ominous start to the day. Elements of the dawn chorus drift through the open window, striving to affirm clock time.
I soon drift back into the realm of sleep and on re-awaking, some six hours later, the light (or relative absence of such) suggests a much earlier time than that the chronometer tells. Torrential rain seems to have set in; my beloved remembers that it’s supposed to be the local play school’s Gala Day on the playing fields, just around the corner from our home; I can’t help having a sneaking premonition that it may be called off. I like to make the effort, stamina permitting, to support these events but it seems that I may be able to preserve my energy.
Yesterday proved to be one of those woozy zonked-out days, not too surprising as the previous day had been one of my human pincushion sessions (acupuncture); it’s quite normal to feel a little washed out the day after! At lunchtime I received a most welcome ’phone call from my physiotherapist / acupuncturist to say that my medical appointment in York has been cancelled. The department will now be contacting her directly to determine whether an assessment is necessary and, if necessary, it will be a ‘home assessment’. That news was subsequently confirmed by e-mail, just in case I thought I was dreaming!!!
In spite of an all too familiar fatigue, and the somewhat oppressive nature of the day, some of my daily compliment of aches and pains seem to have gone into a temporary hibernation, their presence a mere shadow compared to that of recent days. The acupuncture seems to be kicking in!
As I write this, the day seems to have brightened a little but, I fear it may be a little late to redeem the Gala.
Sunday, June 08, 2008
Let The Sunshine ...
Glorious sunshine today, rather too warm to risk doing too much pottering about and, Cathy who had joined us for lunch (one of my special chicken & vegetable Madras dishes, served with saffron rice and a side-dish of tomatoes and cucumber in natural yoghurt) basked on one of our sun-loungers close to the garden pond, whilst my beloved sought the shade of the parasol.
Heat notwithstanding, after a little postprandial rest, my beloved boldly managed to fight a victorious struggle with invasive ground elder and yellow loosestrife as she cleared some of the shadier areas of the garden for me to plant some of the pansies we’d been given yesterday.
Having mentioned yesterday, I should mention our enjoyment of Afternoon Tea in the local Methodist Chapel. Although the chapel has not been used for worship for a considerable time, the former members (now dispersed elsewhere in the circuit) meet occasionally for coffee mornings and other social events, the proceeds from which all go to charity. Although I never actually attended this chapel, I’m made to feel very much a part of the community.
Had this event been on Friday, I certainly wouldn’t have been in any fit state to attend, the entire day having been spent, by yours truly, in an achingly exhausted woozily zonked-out state of being. Much of this zonked-out state, I suspect, was in response to the previous days acupuncture treatment. The overall effects of the treatment, in terms of pain-relief and energy boosting, are invariably most beneficial but, I have rather learned to expect this preliminary slump before the positivity shines through.
Thursday, January 24, 2008
Random Ramblings on Time and Perspective
Strange, the tricks of light and perspective; the history of art has a lot to answer for. I’m stood by the backdoor and, a good three hundred or more metres away, there are giants working on the roof trusses of a house under construction. I see these figures, each around 5’10” to 6’0” in height, at much the same height as they would appear if they were standing next to me. Were I to paint, or draw, the scene I’m witnessing, it would be expected that these figures would appear quite miniscule, positioned well on the way towards the vanishing point. Why, for the sake of convention am I expected to diminish their stature; our observation is always subjective, we always interpret the scene laid out before us so, why did anyone ever to take the trouble to lay down rules as to the way we are to portray it? Is it supposed to bring some sort of objectivity to the interpreted world?
I suppose there is a degree of importance to quantifying time and space, to enable us to more easily modify our environment for the sake of efficiency in our daily routines but, it has got me wondering about whether art comes under the category of work or play.
Mind you, I’m not wondering all that seriously, it’s more a case of letting ideas fly off the top of my head (and being bald, I suppose it makes for a smooth take-off as these random thoughts take flight).
Suddenly, I find time has become a greater issue than space, as I await the arrival of the workmen who are going to be renovating our downstairs loo; as I wait each minute seems like a quarter of an hour and, once the appointed time for their arrival has passed the moments seem to stretch out even further. It’s strange how the waiting process plays havoc with temporal values! Where once patience was a virtue I could uphold to a considerable degree, the past few years have swung the pendulum the other way; patience is now a quality which seems to belong to a dim and distant past life. Somehow, whilst anticipating an impending event, I find it impossible to apply my mind to any other task; it only seems possible to concentrate on one thing at a time and, even then, the quality of concentration ain’t what it used to be.
At least these random jottings have helped the time pass more quickly and, I’m relieved to hear the doorbell ring. Meantime, I’ll get on with a little bit more net surfing, before my physio arrives to administer the magic needles once more.
Sunday, January 06, 2008
BODY TALK
Sunday, June 24, 2007
Lazy Bones and other body parts!
Monday, April 23, 2007
Outpacing Myself?
I’ve never particularly liked cocktails comprising paracetamol, codeine phosphate, ibuprofen etc and, it’s with the greatest reluctance that (as a result of the renewed cyclical dance of nagging pains in wrists, elbows, hips, knees) I had to admit positive thinking is not enough in and of itself.
Perhaps the lack of acupuncture sessions, my last two appointments having to be cancelled, has contributed to my present dis-eased state of being, or maybe my positive outlook has led recently to my overdoing things.
The problem is, I always feel that I have my ‘pacing’ under control and, attempt to finish, or at least draw to a temporary halt, any task I undertake whilst I still have a little energy in reserve.
Unfortunately, the shattered-ness only appears after many hours (even days) delay.
Why should I feel a sense of failure when I have to resort to painkillers? A simple answer could be my failure to fully appreciate how little exertion my body can cope with, no matter how much rest it takes!