ME

ME
Showing posts with label frustration. Show all posts
Showing posts with label frustration. Show all posts

Tuesday, September 02, 2025

Are Pharmacies usually inept?

 

Since last Friday, owing to the dilatoriness of my local #DayLewisPharmacy, I have been without my usual anxiolitics and twice per day beta blockers which were on a prescription I ordered from my GP on 20 August. From tomorrow morning I will be without my twice per day blood thinners. The pharmacy never answers phone calls and, yesterday I had to wait, discomfortedly, for over 30 minutes, in a queue to speak to the sole person at the desk in the pharmacy who thought the items would be received by them and delivered to me today. It is now 16.00 hours and they have not yet materialised. Today I have been quite light-headed and more unsteady on my feet than usual so, it came as no surprise that my blood pressure was riding extremely high. Can pharmacies be struck off for ineptitude, if so I have a nominee.

Tuesday, August 07, 2018

and suddenly they flow



and suddenly they flow


pains come and go
and tears flow
a creeping fermentation
of an odious decay … “ - Malcolm Evison 060818

Today has not been the best of days, nor yet the worst; it has been one helluva roller-coaster ride of both sudden and slow onset aches and pains, a turbulent discharge from both physical and emotional reserves of stamina. Tears have flowed abundantly on a few occasions as I’ve attempted to explain the frustration of living with a chronic illness, along with several subsidiary ailments, each randomly producing varying degrees of aches and discomfort, ranging from reluctantly accepted background throbbing, rumbling aches, to sudden sharply acute attacks of pain.

As I’m also in my mid-70s (age wise) thoughts of mortality are all too rarely far away, but come to the fore with each new acute onset of pain and discomfort.
Over the past weekend I’ve experienced symptoms quite akin to a flare-up of both gall-bladder (cholecystitis) and diverticular disease in relatively acute form, neither of which do much for one’s morale! At times I had to wonder if my alto and tenor burps could present a non-dissonant counterpoint to the bass line of flatulent release.

An underlying throbbing ache and discomfort in the abdominal region is interspersed with a sharper more stabbing intermittent pain. I’m still struggling to come to terms with a sharp stabbing pain which intermittently occurs at a point apparently just behind the bottom left hand side of the ribcage. Erratic bowel behaviour has long been a problem, swiftly putting paid to any notion of getting away for a break, but in any case the sensory overload of a short car trip into town can frequently prove overwhelming.

An attempt on Monday to hold and read a rather slim paperback book led to a need to don wrist & palm supports, elbow supports, as well as having to stretch my arms across my back, in an attempt to overcome a nausea inducing hollow ache emanating from my armpits. These are not at all uncommon symptoms as they tend to occur when holding a newspaper, using a laptop or tablet PC, just one of the little joys of being.

Attempting to explain the frustration I felt, bordering on despair at times, to my beloved OH just led to an overwhelming flood of tears from yours truly and, quite understandably caused upset to her.


***


This morning, Tuesday 070818, ma belle called the GP practice to see if I could get an appointment, as whenever I check up online they never seem to have any appointments available during the next couple of weeks, and thought they would maybe prescribe some antibiotics. (Regular readers may remember my report of a previous gall-bladder flare-up being recognized and successfully treated with antibiotics by my own GP, and the following arrangements for  a cholestectomy –  an operation which had to be cancelled as, in the meantime I succumbed to a minor stroke - http://sinnaluvva.blogspot.com/2017/06/on-mend-and-back-again.html and http://sinnaluvva.blogspot.com/2017/10/on-opening-and-closing-of-doors.html
are the posts that refer).

I duly received a call back from a nurse practitioner who decided that as I wasn’t at that moment in discomfort, I was still abed and not yet having breakfasted, an appointment with a locum for Thursday morning was made. As I explained that I hadn’t attempted to eat anything this morning still being in the duvet realm, she commented that still being in bed at shortly after 9.00am was a wonderful luxury for the retired. Fortunately I refrained from cussing as I explained to her that no, it isn’t a luxury as for the past 14 years I’ve required a bed rest of  around12 hours per day, sometimes more, (non-refreshing sleep being a component of, and exacerbating the distressing symptoms of ME).

Well, I’ve managed to get thus far without any tears but am now desperately in need of a rest; well it is 11.30am … time for wrist and elbow supports once again, the armpits … etcetera, etcetera …

And on it goes but, at least for now, I’ve staunched the flow.

Thursday, May 31, 2018

Going Viral - a random note


Just gotta be honest; as I feel at the moment I don’t want to see of hear any reports of any text, video or image going viral. Since the end of last week I’ve been the victim of something viral, albeit of a gastro- intestinal variety. The diaorrheal component began last Saturday evening and by Sunday had become quite chronic; this symptom remained constant throughout Monday and Tuesday, without regard for my having substituted modest amounts of plain food (and avoidance of caffeine) in place of real food, alongside doses of loperamide / immodium.
In the early hours of Wednesday morning, four urgent visits to the loo were necessitated prior to 04.30hrs, so a further dose of loperamide was required. Miracle of miracles, no further visits to the aforementioned loo were required, other than false alarms, before a further twenty-six hours had elapsed (06.30hrs on Thursday morning) and things seemed to have normalised. A cause for rejoicing, albeit of short duration; by 11.30hrs the old enemy had returned.
I trust my friends will avoid mention of things “going viral” when in my presence!

Tuesday, March 20, 2018

if only ... ah ... if only

I'm just getting a little fed-up with the misery and deaths caused by the Tories austerity ideology. My health no longer permits me to participate, feet on the ground ... man the barricades style, in protest marches and demos, which only adds to the frustration!

Occasionally, an outburst of heartfelt light verse becomes a necessity ....

hence the following post (already posted - sans background on Mal's Factory) on my poetry blogs Mal's Factory and Archive Mined

if only i could be ... a Tory!


Tuesday, February 13, 2018

still rambling on ... and further words




Life races by, with a generous sprinkling of love, received, given and shared as the most vital portion of each day. I am blessed with a catholicity of musical taste, ranging from early music, through classical, romantic, all the way to contemporary; my taste in jazz extends from traditional New Orleans to freeform and experimental sounds. An appreciation of popular music, from the great American songbook, through folk, blues and rock, also provides me with much auditory pleasure.

Admittedly, my listening to music for the past several years is confined to vinyl, cd, radio, mp3 recordings, rather than the “live” experience. Since 2003, when I succumbed to ME (myalgic encephalomyelitis) I have been unable to cope with theatre, cinema, concerts and gigs, and rarely venture far from my home as shopping, travelling, and crowds, easily result in sensory overload. I am fortunate enough to manage an evening walk with our rescue dog Piper, which far exceeds my expectations / abilities from a few years ago. Piper both provides and receives an enormous degree of therapeutic affection and attention.

My greatest blessing is the love and support of my beloved OH, Helen, who manages to put up with me, even through my far too common periods of pain and frustration induced foul moods and vocal declamations.

Anyway, all this is by way of an intention to apologise for the irregular postings on my blog.

Even when postings are sparse, on this particular blog, you may well find some of my poetic utterances on my poetry and prose-poem blog Mal’s Factory – for those who don’t click on links, it is to be found at https://malsfactory.blogspot.co.uk


Wednesday, December 20, 2017

The EPSON saga continues .....


additional DMs from Epson & my response: 11.16hrs 20/12/17


Hi Malcom, In order to assist you can you please confirm where in the setup process the connection fails? do you have a WPS buttton on your router?

 this message sent 13 minutes ago from Epson UK
17m 13 minutes ago


 Epson UK
 I am sorry, the consmer pritners do not come with a USB included. Please see the following article regarding the USB cable: http://kb.epson.eu/article.aspx?article=1034&p=7 …

 this message sent 12 minutes ago from Epson UK
15m 12 minutes ago


 Malcolm Evison (my response)
 Yes, the hub has a WPS button - but tried that last night - same negative result! Just having emerged from bed (my active hours limited by chronic illness) will look at article about USB cable later on.

Malcolm Evison (my next response)
Yes, I did try using the A-B USB cable (much less than the 1.8 metre length) when initially struggling to set-up the tetchy machine for wireless use. Something odd is going on!


Malcolm Evison (my extra response)
Incidentally, don't your keyboards allow you to use the second L in the word Malcolm. Maybe your keyboards aren't up to scratch

******************************

P.S: this evening tried to print 1 15x10cm photo you maybe won't want to believe what happened next!

Malcolm Evison (DMd & tweeted @EpsonUK at 20.50hrs)

First time I've tried to print since all the faffing about - won't print as it can't find the printer (ethernet connected) - tried all pop-up suggestions but still failing to find the printer. All other items have and always do work with this hub! Won't connect wireless & lost existing connection.


First time I've tried to print since all the faffing about - won't print as it can't find the printer (ethernet connected) - tried all pop-up suggestions but still failing to find the printer. All other items have and always do work with this hub! Won't connect wireless


Approx 15 minutes later via Epson diagnosis gadget finally told that there was a printer and it was ready to print - Epson machines seem to hate consumers!

At 22.40 hrs I have just sent the following DM to Epson UK - I do hope that they will not keep upsetting me with their temperamental machine. I have never before been fazed by the installation of any consumer electronics gizmo!

"after further faffing about - and many exhausting climbs upstairs - your diagnostic gizmo finally told me printer was connected and ready to print. Not sure whether it re-discovered the ethernet connection (it had lost) or has it found wireless (of which I'm doubtful) - you have aged an elderly person enormously!"

Tuesday, December 19, 2017

EPSON WOES - just for the record

Having made a grievous error of purchasing a new photo printer (older ones now best for document printing alone) I found myself damaging my health (and deeply upsetting my beloved) in trying to set up the new machine - the following is a transcript of my communication via Twitter with the printer company - just for the record ....

++++++++++++++++++++++++++++


EPSON WOES – just for the record



Malcolm Evison‏    (tweeted)
@sinnaluvva
 Dec 16
More
@EpsonUK took me two hours to connect to new XP55 machine - wouldn't reognize wireless or ethernet - after  a while did accept fixed IP Address via ethernet. Never had such problems with any printer connection over many years. Displeased!

Epson responded to my tweet:

Epson UK‏
@EpsonUK
 2h 2hours ago (Dec 18)
More
Replying to @sinnaluvva
Hi Malcom, Sorry to hear that, If you require any assistance please follow our profile and DM us your query. We will be happy to help. Kind Regards.




DM to Epson as requested 2 hours earlier 1920hrs 18 Dc 2017


setting up my new Epson XP55 took ovr two hours on Saturday, would not connect to wireless or ethernet Eventually had to set up a fixed IP. Never had a machine with these problems over many years and with a chronic I'm totally knackered by the effort. What is wrong with your machines. Suggestion of temp USB connection to aid wireless set up totally useless but, only USB cable I had to try was an Epson one from over a decade ago - maybe not right now - (that printer collapsed, as did another Epson in just over a year's light use) don't know what's wrong with me that I gave Epson another chance.


addendum DM at 2000hrs

sorry, I omitted the important word "illness" after word chronic. And, having paid £83 for 1 set of XL inks ( I misread thinking it was 24 cartridges) I think you should supply a technician gratis to set up your machine with its set-up inks! *

*[Not part of transcript - I usually rely on compatible inks but was hoping for something more impressive!]


19 december from Epson UK (below)

Hi Malcom, I am very sorry that you are unhappy with your Epson XP-55, It is never our intention to disappoint customers in any way and I would like to apologise for any inconvenience caused. Were you able to connect the printer in the end? Is there anything we can do to assist you?

my response to Epson UK via DM

I don't understand why it can't find a wireless signal or an automatic IP address via ethernet - I now have it situated in an upstairs room close to our Virgin hub (100 Mbps) - never had these problems with HP or Canon printers - I've even been able to troubleshoot others problems. Unfortunately, constant re-attempts at setting up are not at all conducive to retaining my already low stamina levels (ME & FM sufferer since 2003).

plus my DM

its current position is of course most inconvenient!

plus my DM


After another unsuccessful and exhausting attempt to achieve a wireless connection to your product, which leaves me shattered, I am more than ever regretting my purchase. IF A USB CONNECTION WOULD ASSIST IN SETTING UP THE WIRELESS CONNECTION (as your set-up disk suggests) WOULD IT NOT BE THE DECENT THING TO DO TO SUPPLY (GRATIS) THE APPROPRIATE USB LEAD. There is definitely something odd in the way your machine is constructed.

Friday, November 03, 2017

When Purgatory Beckons

I’ve always heard about the road to hell being paved with good intentions and, have more recently discovered that another’s good intention can bring severe dis-ease to the one being benefited by their deed. The past few weeks have not been easy for me to cope with, the aftermath of my minor stroke and that of my step-daughter’s accident, the latter needing my beloved’s assistance to dress and shower herself.

Over many years I learned to live both in communal houses and alone, much of the time at peace with myself. In more recent years I have lived in relative peace and harmony solely alongside my beloved OH. As I’ve mentioned before, since the onset of my chronic illness I have become increasingly tetchy, even over apparently trivial matters.

This morning my semi-invalided step-daughter suggested that the dust in our (that of mine and my OH) bedroom  was rather un-healthy and, decided with her one (currently) usable arm to take the vacuum cleaner upstairs to do the cleaning. You can only imagine, or maybe not, my dismay at being told, by a young lady who has four cats romping about in and out of all rooms, that our bedroom was unhealthy! I had already been made to feel guilty at my relative inactivity when a person with one arm immobilised, and purportedly in intense pain, could manage domestic duties of a kind which my physical and emotional stamina levels require that I ration.


The final hump-breaking straw was her decision to mop the floor using a pot pourri scented thick disinfectant, as a result of which I later had to struggle to regain my balance as I took a slipper shod slide across part of the bedroom floor! Fortunately that struggle ended successfully but, it was yet a further warning that a good deed, if ill considered, is certainly a step into purgatory.

Friday, March 03, 2017

Sat to please

                            SAT TO PLEASE





Piper gently whines missing his mistress, and (the now back home) recuperating Beth; no matter how he laments these absences, regardless of duration, they never seem to affect his appetite. The prospect of a treat brings out his sunnier disposition, and his heart melting gaze of adoration; a non-stop supply of food would be his idea of paradise!

I can frequently be a miserable bugger, feeling totally emasculated as physical and emotional stamina rarely seems up to (e.g. furniture shifting / re-arranging) tasks that once would have been a doddle.

No matter how much I appreciate those activities that I can (and do) manage, an aggressive and anxiety laden self-pity, far too often, takes over. Our wonderful hound quite frequently alleviates these more morose moments, just by his close proximity and his readiness to please.


Wednesday, September 21, 2016

A CRY of SELF-PITY – an ATTEMPT to EXORCISE the PAIN



Although I’m, by now, well used to unrefreshing sleep, the past couple of weeks have found me experiencing the most erratically intermittent bouts of night time rest, haphazardly interlaced by an alarming array of discomforting, nausea inducing, peripatetic tingling and throbbing parcels of pain.

A spasmodic, sudden onset, sensation of the knees being crushed and clamped from either side, by surreptitious g-force avengers, is the most recent addition to my more familiar catalogue of aches and pains. Sometimes the pain is partially alleviated by the donning of sports knee supports; at other times the supports simply add another layer of throbbing discomfort. On other occasions my only recourse is to an extra dose of tramadol, even though its efficacy is slow to be realized.  

Wrists and/or elbows frequently ache and throb, for no apparent reason, but application of elasticated supports soon alleviates the worst excesses of the discomfort. For a considerable time now  I have avoided donning any nightwear on the torso, as PJ jackets seemed to exacerbate the nausea inducing discomfort emanating from axillary lymph nodes. More recently I’ve had to don jacket or vest, at times, to alleviate a disconcertingly abstract discomfort around the shoulders and armpits.

The most infuriating of the many nocturnal disturbances / sleep preventatives is a sudden tingling rasping sensation on the tops of my toes, sometimes almost feeling as if it emanates from a felt, but non-existent, elevated ridge, on top of the foot, just behind the toes. This frustrating event usually occurs just as my body and mind feel sufficiently sedated to visit the land of nod. Its onset is frequently marked by an almost uncontrollable flailing of the lower limbs and, an angry muted scream of profanities emanating from the mouth of yours truly. The touch of the sheet, against the suddenly over-sensitive toes, can seem to be an overwhelming tortuous  burden.

No matter how tired, or even exhausted, I may feel as I prepare for my bed-rest, these sundry ailments and irritations ensure that I rarely achieve more than occasional brief cat-naps for many of the nocturnal hours.  In terms of sleep, my requirement / need rarely seems to be fulfilled.

A large bag full of supports for shoulder, wrist, elbow, back etc. now accompanies me on the daily transition from sitting room to bed room, from day into night.

A CRY of SELF-PITY – an ATTEMPT to EXORCISE the PAIN


++++++++++++++

PS 22/09/16 see also:

Restless - Illustrated Poem

on 'Mal's Factory' which reflects a similar theme!

Sunday, April 24, 2016

out of the kitchen and missing the heat



Although each hour, of each day, may seem to drag at present, it still amazes me how swiftly each year seems to pass. Most of the time each day has seemed to pass far to quickly, no sooner is one getting into it’s swing than tiredness sets in; gosh, I’m sounding like a real Grinch today.

The (current) absence of not only a functioning kitchen, but even sans kitchen sink, or even a single gas or electric hob, just seems to leave a hollow at the core of my being. Who would have thought that once, not too many years ago, I subsisted on a diet of predominantly microwaveable (so-called) meals; even in recent days, the cooking bug having for some time since had a hold of me, preparation has felt at times a chore too far, only reluctantly pursued. No working kitchen and an echoing void of proposed kitchen diner exuding its presence into the lounge, leaves one feeling achingly hollow.

I am indeed fortunate to have a roof over my head, a partner to love and be loved by, yet still I find temporary inconvenience a source of veering close to a state of reactive depression. It would be easy, of course, to blame my dispiritedness on my permanent condition of aches, pains, disorientation and unrefreshing sleep, which admittedly doesn’t help, but then I feel overwhelmed by guilt at my self pity. In a land where the government is determined to punish the poor, the  vulnerable and disabled in response to a crisis caused by their banker friends, what right have I to feel at all sorry for myself?    

Thursday, February 11, 2016

A glimmer of hope

The process of trying to get an urgent appointment proved harrowingly frustrating but, I suspect the age of miracles is not yet dead - we certainly need them!

Anyway, the seemingly impossible happened .....

Wednesday, January 20, 2016

MEDICATIONS Mess Up - Contra-indications

The two previous posts refer to this same topic! I suppose this is simply an update.

________________________________________________________________________



MEDICATIONS: Current state of play. I've now stopped taking both amitriptyline and sertraline ('cold turkey' as followed GP's advice to return unused ones to pharmacy - that was before I'd read the leaflet with the Trazadone that he recommended I started that evening) but am not taking Trazodone.

My beloved OH visited my GP's surgery to point out the information warning me not to take the Trazadone; the receptionist took the details saying the duty doctor would contact me this afternoon. Mid-afternoon one of the practice receptionists called me to say that the duty doctor said it had to be dealt with by the GP I saw yesterday but he won't be there until next Monday. It seems obvious to me that contracted GPs are afraid to challenge even wrong decisions by a practice partner.

Tuesday, March 24, 2015

Of genuine woes and fraudulent transactions

Today provides one of those unusual mornings, at only 11.45 I feel almost awake; a rare instance indeed! Just over a week ago I intended to write a posting, more a catharsis for me than a word for others, but an intolerable lethargy weighed far too heavily. My scribbling that day went as follows :

“And wimpishness knows no bounds, the tears flow freely, the sinuses discharge an uninfected load as earth’s rotation slows right down A flood of fear and selfishness combines

A flood of fear
And selfishness
Knows no bounds –

The tears flow freely
And sinuses discharge
An uninfected stream

Of hopelessness …”

My brain seemed blocked; no words would flow until, some twenty-four hours later, the above emotion transmogrified into the following doggerel:

                                            Dog Errol


                                          It never pours
but when
there’s more
to follow.

Rain never follows
an unending drought.

If once a mouse
should catch a cat
the fox would say
I smell a rat

Whereas earlier in the year, despite all too familiar aches, pains, and wooly confusion, I managed to remain quite upbeat, by early March my reserves of emotional and physical stamina had fallen from their quite low plateau. Even the most modest exertion seemed to wipe me out. It was as if I had to make an exhausting conscious effort to persuade my legs to move in the right direction, as I ventured out into the hallway; this would occasionally be followed by a strenuous mental effort to remember why I’d headed there in the first place.

Earlier today it seemed as if the sun would make an appearance but, as I turn back towards the window, hailstones are flailing down from the heavens, their rebound, as they leave the ground, makes mockery of my prevailing inertia.

No sooner had I jotted down the previous paragraph than the sun, in full glory, burst through the residual cloud cover as grey skies turned to blue. The swiftness of this transition would be hard to believe were it not experienced first hand by one’s own senses. So, you may add, “your senses are working, even if much else of your corporeal being seems to be giving up on you. Why don’t you stop moaning?” the latter question I’ve frequently asked myself but, it’s far too easy to succumb to more negative attitudes when your feeling several degrees below an iffy par.

*********

A gum infection, and accompanying toothache, really set me back and, as is its wont, the worst flare-up occurred on a Friday night and the dentist doesn’t work at weekends. Strangely, the pain seemed to emanate from beneath a crown; intellectually this made little sense as I knew that tooth had been root-filled many moons ago. The worst of the pain then presented itself under a wisdom tooth; when I had an emergency appointment with my dentist she noted that I nearly went through the ceiling when she tapped the offending tooth. She duly prescribed a course of antibiotics to combat the infection, halfway through which the pain seemed to have magnified, and with my somewhat iffy immune system sundry familiar ME symptoms returned to bite me, affecting my balance, brain fog, aching muscles, chronic IBS and diverticular disease symptoms seemed to think it was carnival time; they rejoiced as I slid further downhill.

I was feeling so dreadful that when I realized my beloved was going to visit her brother, and would be away overnight, the floods of tears mentioned at the beginning came into play. My only utterance, through my wimpish blubbering, to ma belle was that I was afraid that I was going to die alone.

Matters weren’t helped when an early morning ‘phone call wakened me from my fitful slumbers on the morning of ma belle’s departure. The call was from a credit card company suspecting there may have been a “fraudulent use” of my credit card and, I must contact them on an 0845 premium number. I went immediately to saynoto0870.com where I found an alternative number to contact card services. Just as well that I used a free number as I was talking to (or being talked at) the bank for 40 minutes when palpitations and breathlessness took over. My beloved fortunately had not yet set off, as she had to take over the conversation from me.

The annoying oiks on the banks end of the phone line endlessly repeated the same questions re a gambling website that I’d never heard of and had I made a £500 payment to that site on that morning. Although they acted on the basis that a fraud had been committed, somehow this payment had been accepted and would appear on my next statement. They then explained that in a fortnight they would be sending me a legal letter which I would have to sign to say I had not made this payment. The attitude of the people I spoke to left much to be desired, especially when dealing with people who have a chronic debilitating health condition. I was definitely made to feel that I was a prisoner in the dock being grilled by a particularly abrasive prosecution counsel.

The card was only renewed earlier this month and has never left the four walls wherein I live, breathe and have most of my being! It had only been used a couple of times online at companies with whom I have had regular secure transaction completed via a “verified by” security check so, one can only surmise that there is somebody either at the bank or one of these companies who has filched my card details.

Sorry for such a sustained moan but, it only serves to illustrate my roller-coaster ride.
 


                                          


Wednesday, October 16, 2013

minor travel major travail


Just where is that emotional stamina hiding; come to that, it would be useful if I could uncover a resource for topping up my rather limited levels of the physical variety. After a short trip across the Pennines, about which more later, even my already constrained ability to concentrate on any sustained reading has gone into abeyance. At least I’m hoping it will return! No matter how much I enjoy looking out onto the garden, the heavily overcast and frequent rain-sodden days do little for one’s morale.

 

After a morning of extremely vividly disconcerting dreams, I finally felt sufficiently alert to remove myself from the bedclothes at around 11.15am, thirteen hours after availing myself of their embrace. As my beloved doesn’t go to her place of employment on a Wednesday it made the rest of the day more bearable. By about 4.30pm I felt it necessary to rest my eyes, at which point ma belle enquired whether I needed to lay myself down on the sofa. At the time it didn’t really seem at all necessary but, within half-an-hour my legs began to suffer a dull throbbing ache, feeling as if they’d been waterlogged.

 

Finally I had to admit my OH was right and, I really did need to lie down; no sooner had I reclined, in supine posture, than my wrists began their far too familiar nagging ache requiring a swift application of splint supports. Just another ordinary day!

 

                                                  ***

 

Now comes the report on that trans-Pennine journey, although, in terms of mileage, it was a short drive, to me the outward journey seemed a far too protracted arduous nightmare. Spastic colon, and acute diverticular discomfort set the tone of the adventure; within the parameters of a 70 mile route, I most urgently required a loo break on three occasions, the first of which required a diversion from the route we were travelling.

 

The SatNav redirected us, via the Old Skipton Road, across desolate sodden moorland. This route didn’t help at all as a kind of agoraphobic panic attack overwhelmed that attention which had previously focussed on my painfully aching abdomen. When we eventually arrived at the hostelry where we’d be spending the night, it was encouraging to see they had at least four draught ales on offer. As we approached our upstairs accommodation the heat in the hallway proved overwhelming, as was that which greeted us in the room.

 

That evening we attended a wedding party, the purpose of our visit, at a nearby Jacobean venue. On arriving at the venue, I managed ( whilst leaving the badly lit car parking space) to trip on a protruding step as ma belle and I sought the relevant hall entrance. The entrance was attained via an ill lit awning tent and, once again I tripped as my foot fell from the edge of the footway.

Not a good start; since my days as a union steward I’ve been well aware of health and safety issues, and the ill lit irregular causeway would certainly have been a major concern. As I’m prone to giddiness, and an associated fear of falling (such that I will only take a shower when my beloved’s around), I wasn’t able to relax at all.

 

Inside, the venue was disconcertingly sprawling and, we failed to find the quieter lounge. We spent best part of an hour, but seemed much longer, sat at a table in the bar area chatting with one or two family members. Just the noise of chatter became overwhelming; part of my illness means that I find it difficult to cope with crowds or noise so, really, I was in the wrong place. My total alcohol intake was less than half of the pint of ale I’d imagined I would enjoy.

 

Ten years on from succumbing to this condition (moderate Myalgic Encephalomyelitis), it becomes increasingly hard to understand that I once, not only coped with but, whole heartedly, enjoyed a quite gregarious lifestyle, pubbing, clubbing, politicking, wining and dining, leading  house groups and more!

 

Back at the inn, the landlady turned down the radiator at our request and supplied us with an electric fan and opened the skylight, the only window in the room, to allow some air to circulate. Most of the night was spent restlessly on top of the bed; music from nearby filled the air until 2.00am after which I became aware of the swoosh of traffic, presumably from the motorway. Further distraction was proffered in the form of other guests returning to the inn, as the floorboards groaned and roared their disapproval of human footfall. A worn out washer on the hot tap in our en suite, erratically appliquéd a kind of water torture onto the other aggravating layers of distraction.

 

Having missed out on food the night before, I was looking forward to breakfast but even this hope remained unfulfilled. Still feeling rather stressed, and upset by and commenting on my trip up experience of the previous evening, I interpreted a nervous smile from Helen’s brother as a sneer and duly threatened to deck him. At that point I quit the breakfast room.

 

Our journey back across the Pennines was a far happier experience, travelling predominantly on motorways advocated by the disembodied voice of the SatNav.

Friday, July 26, 2013

postscript to yesterday's tale of tribulation

this is a postscript to yesterday's post (avoiding an incompetence premium rate call)

                                                     *************




As the tracking page for my delivery (via Interlink Express) continued to display the unable to deliver etc. … call #..... to rearrange delivery message, throughout the day and into the evening, I began to think that my telephonic communication had been totally ignored.

When my beloved returned home from work, in the evening, she found an unable to deliver (as no one had been in) note attached to the outside of the external porch chez-nous. Why it was attached there only the driver knows as there is a letterbox on the external porch and on the main door into the house. Adjacent to the door is one of these new-fangled contraptions, namely a door-bell, the access to which is not restricted, as the door of the external porch is always open!

By this time I was feeling despairingly pissed off, emotionally and physically drained. We have numerous packages delivered each year and, with this one exception, the delivery person has been capable of entering the porch and either ringing the doorbell or knocking on the house door!

The message on the tracking page, by this morning, informed me that the package had been delivered to the local depot. As soon as the office opened at 8.00am my beloved phoned them to ask when we could expect delivery and was informed that it was in the process of being loaded and scanned then, after a further hour during which the status remained unchanged ma belle called them again only to be informed that it could be anytime up until 10.00am before the van was fully loaded! [Thoughts of the Tardis ran through my mind – an ever expanding chamber materializing within the confines of a transit van].

By some miracle, no doubt unaffected by our pestering calls, a couple of minutes later the delivery time (10.18 – 11.18) had been posted on the tracking board! This time the delivery went smoothly! By about 10.35 the parcel was received and duly signed for.

**************

Shortly afterwards a Royal Mail delivery brought us the item which had been omitted from yesterday’s parcel. … and they all lived happily ever after ….  

Thursday, July 25, 2013

AVOIDING an INCOMPETENCE PREMIUM rate call


How wonderful I thought, a delivery company that actually gives a one hour time slot in which the item will be delivered! The company in question is Interlink Express and, the sense of wonderment soon evaporated.

 

For the second time this week I removed myself from the duvet lair at an earlier hour than would be the normal requirement and sat, patiently and quietly, awaiting the aforementioned delivery. The delivery slot given online was 08.56 to 09.56, and I sat waiting from 08.30 until 10.56 but, the delivery failed to materialize!

 

At this point I went back online to be told that they attempted to deliver but there was no-one there to sign for the parcel. Adding insult to injury they gave an 0844 number to call and a card number to quote (needless to say no physical card appeared chez nous. Fortunately I went online to saynoto0870.com and found a normal number to phone and simply ask them to put me through to INTERLINK EXPRESS. It turned out that it’s just as well that I didn’t use the 0844 number as I was put on hold for a few minutes whilst the operative attempted to contact the driver on his mobile.

 

They eventually said that the driver was now 1½ hours away so wouldn’t be able to come back and, the operative wasn’t authorized to give instructions. He admitted that the driver had gone to the wrong address but “that’s only human error” to which I responded that they have a postcode and a satnav so that’s no excuse. He further said that he would contact the depot and ask them to get the delivery ready for me pronto; once again he added that he could only ask them not instruct. Why have a helpline if the operatives don’t have any authority?

 

In marked contrast, a parcel despatched yesterday from a different company in SE England, this time by ROYAL MAIL (the company the government intends to eviscerate) was received at 11.30am this morning. Excellent service from ROYAL MAIL. The only thing was, the major item from this order had accidentally been omitted but the company assure me that I should receive it tomorrow (I’d have been really worried if they were using Interlink Express).

Sunday, March 10, 2013

TRYING TIMES



And suddenly I’m swamped, drowning in the muddy wastes of isolation. It’s not that I’m alone, nor am I not loved; the problem is the endless nagging of sundry aches and pains, the loss of contact with those I once considered friends as if it’s some kind of punishment for being exhaustingly unwell. Where once I was a social and political activist of a somewhat gregarious disposition, attending clubs, concerts, theatre, cinema, I’m now trying hard (although it often comes quite naturally) to be content with a lifestyle where all my entertainment has to be served at home, and campaigning becomes virtual via the internet.

I must admit to the blessings of TV, radio, CDs and mp3s but, they never fully compensate for the more participative experience of actually being present in the theatre, cinema, concert hall or jazz club. For much of the past ten years I’ve had neither sufficient stamina or confidence to think of attending / coping with the duration of a church service, although previously a regular attendee and house-group leader, especially if there’s a reasonably large congregation.

Much of the time I manage to accept these health imposed limitations without too much grieving, at others – such as today, a sense of frustration and despondency verges on despair. Perhaps the frustration really began when I didn’t feel really up to dining out with my beloved and her daughters; a sense of guilt swiftly ensued as I felt, albeit needlessly, that I was being anti-social. At times like this, I start to feel that I’m a burden on my beloved OH and family, although they reassure me that I’m not!

As I write my own report card the familiar words, “must try harder”, take on a marked significance. It’s so easy to be trying, even when it’s difficult to try.

Saturday, June 09, 2012

just as I am - and do not wish to be

Tuesday morning I removed myself from the duvet lair bright and early, feeling unusually alert and refreshed. It was only later in the day that I started to suffer for this foolhardiness, as I became a totally shattered wreck, and I’m still struggling – four and a half days later - to regain my usual familiarly limited reserves of stamina.



Headaches, giddiness, muscular pains and spasms, tenderness in armpits and under the chin, a bruised feeling around the ribcage alongside a sore throat and roof of the mouth, such have been the rewards for my carelessness.



To be perfectly honest, I suspect the ‘early morning’ was simply the carelessly thrown match landing on a tinder pile which would have self-combusted sooner or later.



Another bout of perspiration, suddenly oozing from forehead, chest and arms, seems to prefigure a renewed surge of shattered exhaustion. Frustration swiftly follows as I teeter on the brink of despair, feebly yielding to a flow of tears; a plenitude of gnawing aches destroys any semblance of composure.

Monday, December 12, 2011

a wimp addresses the nation

To be perfectly honest, I’m not coping at all well; I feel like the A1 definition of a wimp. It’s the way a set of (quite minor) incidents so easily seem to form an insurmountable aggregate of frustration, that’s really getting to me.



A simple combination of orthostatic intolerance, intermittent excruciating muscular dis-ease, spastic colon and diverticular discomfort, shouldn’t in principle detract from a full enjoyment of life but, when they collude, the bastards do tend to get one down!