ME

ME
Showing posts with label joy. Show all posts
Showing posts with label joy. Show all posts

Thursday, May 10, 2018

ACHES and GAINS


Just when you think you’ve recovered from the roller-coaster ride, a sudden smack of reality makes you realize that you’ve stepped onto the ferris wheel and this time it’s supercharged. Stomach and oesophagus have never felt so close, a moderate underlying nausea takes on a more prominent role. The head feels giddy as if too much time has been spent on the ‘waltzer’, and knees, ankles and elbows throb as if stray balls from the coconut shy have found fresh targets.

You’ve maybe guessed it, I’m talking payback; a reasonable period of (partial) remission had almost persuaded me that life had been restored to normality. As I’m now into the fifteenth year since my collapse, succumbing to ME (myalgic encephalomyelitis), one would think I’d know better than to miscalculate my reserves of stamina. I’m not talking of any undue exertion, just twenty minutes of mowing the lawn with an electric powered mower seems to have knocked me back. Mind you, this additional exertion came at a time when I’m just coming to the end of a course of antibiotics and antimicrobials.

These additional medications had been prescribed as a result of a visit to A&E at the district hospital last Thursday evening, following a flare-up of diverticulitis (and probably gall bladder as well). There have been many occasions recently when I’ve felt as if my moderate ME had turned to a milder form but then, brainfog, alongside excruciating discomfort in upper and lower limbs, and nagging pains variably dispersed around the torso, randomly exert their authority.

Putting those ailments aside, I am fortunate that I am still able to enjoy listening to a wide range of music (via CD, radio and vinyl sources) and am generally able to accompany Piper (our beagle – podenco  rescue dog) and my beloved OH Helen on short evening walks. A few years ago there were occasions when it seemed / felt like an effort too far]just to walk the few yards to the corner of our road. I really miss it when I’m not able to manage these short walks but the love and attention, received and given, by Piper compensates more than a little, and I’m still amazed at the therapeutic value of this charismatic canine.

An additional source of joy is provided by not infrequent visits from our grandson Alexander, now in his ninth month of bringing and receiving an abundance of smiles to the house. Piper is intrigued by Alexander, even though he’s never sure of how to take the infant’s reciprocal interest; the boy stretches out to feel / stroke Piper but has already managed to grab his tail on one occasion as well as being drawn to his ears (always a sensitive part of the pooch’s anatomy).

Tuesday, December 27, 2011

Of Celebration and Payback

And just when you think it’s all going well, the old devil returns.

 During the past few weeks I’d been enjoying copious doses of Advent and Christmas music, predominantly of the sacred variety, as I looked forward to our quiet Christmas celebrations (just ma belle Helen, Beth and myself). To be perfectly honest, I was quite surprised by how well I’d managed Christmas decorations, food preparation, and sundry minor pressures such festivities may place upon one. Admittedly, the run up to Christmas week wasn’t without an occasional venture into the realm of shatteredness, with spasmodic eruptions of acute pain.

As lunch-time on Boxing Day approached, my chronically throbbing aching wrists allied themselves with intense convulsive pains in both biceps and shoulders. It felt as if my torso was being crushed whilst, simultaneously, being stretched on a rack. The effort of holding the DVD recorder’s remote control, in readiness for starting off a recording, seemed to set every nerve-ending on edge; a kind of pulsating bruise surged through my forearms and shoulders which, in turn, contributed to an all pervasive feeling of nausea.
For the first time in ages, the degree and intensity of pain and discomfort produced a convulsive sobbing response.

I love and adore my family, every moment spent with ma belle amoureuse affirms the privilege of love, and I always wish to affirm all the most positive values and emotions that the season represents. The joy of the season is somewhat marred by the realization / recognition that even my somewhat low-key exertion, as we prepare and celebrate, seems to demand a degree of excruciating payback in return.

Tuesday, February 01, 2011

wonderment and guilt - spontaneous jottings


A strange combination of wonderment and guilt are today's companions. Having allowed myself time to just sit, in the silence of the living room, looking out onto the garden, my mind is once again filled with the question, why is there something rather than nothing? Because there is something, imagining nothing (or a non/state of nothingness) seems impossible - I find myself watching the clouds slowly drift by and, I'm lost in wonder.

To be honest, most of my life these days is spent in some kind of wonderment and, it is because of (rather than in spite of) this appreciation of the wondrous awesomeness of life that I cannot avoid being committed to issues of social justice and hence politics. There must be an alternative to people being bogged down in the vicious cycle of wage slavery and debt; the world has a sufficiency of resources for everyone to be able to enjoy leisure time without being wearied and overburdened about how to acheive even a subsistence lifestyle.

But, you may well ask, where does the guilt enter the equation? It's that old protestant work ethic no doubt - how can I justify stting doing nothing rather than taking some positive action? The straight answer is that I don't need to justify it but, the guilt remains anyway, ignoring the logic of my answer.

Thursday, December 24, 2009

Mal's Christmas Message

As Christmas Day approaches, I've been revelling (as listener rather than participant) in lots of Christmas carols and other Christmas music whilst preparing for the big day. As a Christian, my central focus is upon the Christ child who grew up to challenge the secular and spiritual authorities of his day, proclaiming a discipline of selflessness, compassion, peace and humility. Although his spirit is still alive, it is all too frequently portrayed in a way which is both nauseatingly pious and uncharitable!


At times. it seems quite difficult to reconcile the wining and dining, which is an integral part of our Christmas celebrations, with the commemoration of the birth of a child in quite humble circumstances in an occupied Middle Eastern country but, I still manage to enjoy the celebrations. As I write, the large (11lb) chicken is roasting in the oven, a mixture of butter, garlic, pepper and chilli having been inserted beneath the skin. I've also been busily preparing both standard and gluten-free sausagemeat (with a liberal administering of onion, mustard and parsley) stuffing. Portions of chicken will then be placed in the steamer, along with sundry vegetables on the day itself. Ma belle has prepared the vegetables and the potatoes ready for par-boiling by yours truly, in a special herb and spice infused liquid, prior to roasting in due course.


I've also been diligently filling the sundry feeders for our gardens avian visitors, having first having scraped away the feeder's snow overcoats and, enjoyed a little walk with my beloved around a few blocks of the neighbourhood.


Beth, my elder step-daughter, together with her partner Mahmood, and his son Sina, will be joining us for Christmas Day dinner whilst Cathy and Ken (her partner) will be spending a couple of days in Barcelona. Of course Cathy will be coming round for her Christmas Dinner on Monday, with Ken calling around later to imbibe a few glasses of fermented grape juice. It's rather nice to be able to stretch out the festivities in this way. We are so fortunate to be able to celebrate in this way, whilst being all too guiltily aware of all those millions throughout the globe who struggle for subsistence.


My Christmas wish, as always, is for PEACE, HOPE and JOY, and a far more equitable distribution of the earths resources!