Truly Alive

Retire to the duvet realm shortly after 10.00pm, re-emerge shortly after 9.00am, a remarkably early hour for yours truly. Dressing gown bedecked, switch on the PC for a little idle surfing, feeling rather washed out and jaded. Somehow the time just scurries by, surprising in an era of idleness. Contemplate taking a shower but, uncertain as to whether I can cope with the effort, return to the desktop and continue to get nowhere slowly. By this time a serious debate with oneself occurs, the topic is the pros and cons of showering.

By 11.30am, I succumb to the lure of the shower. Sheer luxury as I sit in the shower; I rub my face almost gleefully, watch the water flow over my weary limbs, the warmth seems to alleviate the pesky muscular aches and pains with which I share my daily journeying. This is bliss, it almost feels like something I should feel guilty about; it takes quite some time before I even contemplate the washing process, it’s almost as if in these moments time has stood still and I’ve entered some kind of sublime ecstatic state. I start to count my breaths, a kind of reassurance that it’s not quite simply a dream; all is calmness!

There once was a time, which I find hard to believe, when showering was a straightforward mundane routine, neither pain or pleasure. Next, there was a period when I could only take a shower when my beloved was there to support me, an omnipresent giddiness / light-headedness made the shower a most insecure place for me. Things became somewhat easier once my beloved obtained a shower seat; once that was in situ, the task became far less troublesome, although for long enough it still proved a chore. I still found that by the time I emerged from the soaking, and towelled myself dry, a half-hours rest (minimum) was required before I could consider getting dressed.

Anyway, that’s the past and this is now. I’m still basking in the afterglow of that serious pampering, provided by the shower unit. The muscular and joint pains are returning but, I am still able to revel in observing the sun blessed blue skies. Today I am truly alive.

Accounting For My Time

Until yesterdays brief posting, I’d been feeling rather guilty about the paucity of recent blog posts. It’s not been a case of having nothing to say but rather not having the time to say it; other activities decided to prioritize themselves.

So, what has been happening? Not a lot but, far too much. My pacing has at times managed to go awry; it still catches me unawares when a couple of hours pottering around in the garden results in the following couple of days being plagued with an achingly painful fatigue, a kind of hollow bruised feeling encapsulating my whole being.

A recent visit to the doctor found my GP, half jokingly, asking my other half why she doesn’t stop me! It’s rather as if the hare asked the tortoise to slow down. Problem is, there’s no telling when an adrenaline high is going to push one beyond the parameters of their proper pacing and, frequently it will be at such a time that my beloved’s out at work. When one attains or achieves a certain goal, they feel so chuffed about it that they begin to feel indefatigable.

Following that particular visit to the surgery I was sent up to the hospital for a full battery of blood tests from which only one reading (an adjunct to the ‘normal’ thyroid function test) showed anything abnormal but, not alarmingly so. The locum doctor (with whom I’d discussed the results) said, “just as you’ve seen a little progress this year, in managing the ME/CFS, perhaps you’ll see an equivalent improvement over the next three and a half years”!

It’s a slow journey but, I continue to live in hope.

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Apart from the aforementioned work in the garden, the primary consumer of my time has been of the computing variety; re-vamping websites, setting up an online print store and attempting (eventually successful) to troubleshoot sundry laptop problems. As an older laptop is now totally defunct, I decided to install its XP Pro OS onto another machine, hitherto running XP Home, which led to me having to re-install devices and drivers prior to replacing various software programmes. This exercise even had me starting my day earlier than has been the norm; the excitement and uncertainties encountered during the overall operation fought off the brains desire to rest, the mind buzzing overtime when I should have been sleeping.

Subsequent days saw my customary 10 ½ hours of bed rest extended to at least 12 hours, choice didn’t enter the equation!

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Model helicopter flying, and repairing, has only occupied a small amount of my time; my reserves of concentration are not sufficient to permit more than the occasional brief practise episode.

A surprise ‘phone call, shortly before I was due to emerge from my duvet lair last Friday, led to a rather thorough investigation of matters, religious, theological and philosophical, as well as personal, in what for me was a prolonged telephonic dialogue (approximately 1 hour duration). The excitement, of this somewhat exploratory conversation, somehow pushed my tiredness onto the backburner only to return with a vengeance later in the day.

By the evening, my mind was once more buzzing, theological ideas spewing forth like there was no tomorrow. Ideas for a little theological exposition abound, it’s quite simply (!) a question of organizing my time and stamina reserves; don’t hold your breath though, a little preliminary work involves clarifying the confusion between/about ‘values’ and ‘truth’ and the anachronistic approach of biblical literalists.

From Tiredness to Exhilaration

Today has been one of tiredness and exhilaration. The tiredness, ironically, is partly a result of being so wonderfully, floatingly, zonked out last night (after my acupuncture session) that I was really super alert this morning. Being up and about before 10.00am should have sounded warning bells but, we had a visitor coming around, one of Helen's old schoolfriends who's visiting God's own county for a few days.

This initial state of alert rapidly dissipated, even before the morning was out, and I spent most of the afternoon wondering what day of the week it was! Now, that's not quite so bad as it sounds but, having a visitor in the morning made me think it must be Saturday and, I found myself wondering if I was sufficiently energized to start my preparations for Sunday lunch. I've got to admit though that some of my general wooziness was of the pleasant variety, it was only the little glitches when I found my balance going a bit wonky, as I moved around the house, that it posed any problem.

Of course there's no rest for the wicked and, after Helen returned from seeing her computer students at the Acorn Centre, and a subsequent trip out to have a drink with Beth, it was business as usual. I prepared a medium-hot/hot Trout biryani type dish for our evening meal, much appreciated by both of us. It's quite strange to think that when we met, Helen didn't like fish or spicy food and now, both are on her favourites list - it's maybe all a subtle ploy to ensure that I keep slaving over a hot stove.

After the meal, we drove around to see Anne Marie, one of Helen's students, who we were able to set up with a new computer (and not so new monitor) a few weeks ago, as she'd found her printer wasn't working. So, Malcolm was called in as troubleshooter and, to see the delight on her face when this was sorted and, I'd shown her how to use WMP to play music while she worked diligently on her CLAIT course work. Just to witness her delight and gratitude, in response to such minimal effort on my part, is where the exhilaration enters the picture. She calls the computer her baby, and this from a woman who has eight grown up children. The fact that we were listening to 'Rock n' Roll Legends', a reminder that once even I was a teenager, as I played around with the PC, meant that the visit lasted a little longer than we'd anticipated!

A Special Time

Christmas has once again restored a childlike magic in my life, this influence is magnified as once more I felt like a participant in the Nativity story. On Christmas Eve, after our preliminary preparations for the morrow had been completed, Helen and myself relaxed in the evening which culminated in watching, and participating in spirit, the Midnight Mass from Gloucester Cathedral. After a somewhat jaded day, I felt refreshed as we celebrated the birth of the Christ child … the best way to welcome Christmas Day.

On Christmas morning, as we lay abed, I enjoyed and felt uplifted by the Mass for Christmas morning from Clifton cathedral. Much emphasis was given to the outcast and the dispossessed during the address … the Christmas story should not be a comforting message to those who would preserve the status quo! A slow emergence from the duvet’s lair, however, did not preclude my fatigued collapses at intervals during the day, so it became something of a priority to take little naps, the better to enjoy the day.

We were joined, for Christmas Dinner, by Beth and Mahmood whom we welcomed with an appetizer of Waitrose Vintage Champagne, 1996 … a beautifully balanced elaboration of P&C Heidseck. To accompany our traditional Christmas Dinner, we partook of a glass of ‘Andrew Garrett Coonawarra Reserve Cabernet, 2002’, a wonderful mouthwatering bramble concoction with a cinnamon tingle derived from the oak ageing.

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Our guests left us late afternoon and ma belle and myself slumped into a relaxed evening, with an early ascent of the wooden steps towards duvetdom. Although tired, despite my preceding periods of rest, sleep did not come too easily … bodily aches, pains and general discomforts tend to have a way of overwhelming the desire/ necessity for sleep.

Following a brief midnight ramble around the house, I lay on top of the bed watching my beloved sleep. This simple act gave such a warm glow, she is so precious and, I just lay stroking her hair and cheeks rapt in adoration and feelings of overwhelming protectiveness. Love is such an amazing thing!

This morning, we once more enjoyed a very relaxed start, au lit, to the day … as we became totally enraptured by ‘The Magician’s Nephew’ on BBC7. It’s so amazing just how much more vivid the pictures produced by a good radio production are, in comparison to televisual portrayals of the same or similar stories!

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I’ve just realized that I’ve made no mention of presents received, in fact we still have some of our main presents to open …. But it is a wonderful Christmas, here with my beloved.