ME
Tuesday, November 10, 2015
Patient's Progress
Thursday, May 14, 2015
From Storm to Calm
Monday, December 22, 2014
Friday, April 18, 2014
Friday, January 04, 2013
simple pleasures and a heartless regime
Thursday, November 22, 2012
normality may be resumed ...
Thursday, July 05, 2012
tidings of discomfort and joy
Sunday, February 19, 2012
three poems for Helen
twelve years on
Tuesday, December 27, 2011
Of Celebration and Payback
Thursday, June 23, 2011
upbeat to crestfallen and rising again
Friday, April 22, 2011
Monday, November 22, 2010
Thermostatic Quirks and Simple Pleasures
Quite when it happened, I don’t remember; all that I know is that for a number of recent years my body thermostat, though somewhat erratic, tended to play up in such a way that night-sweats, and even passive day-time cool room sitting sweats, have tended to dominate my life experience. The ambient temperature bore little, if any relationship, to my body heat and subsequent seepage of saline solution from pores all around my body, limbs and head.
It has come as something of a surprise, in more recent weeks, as the realization dawned that I’ve started feeling the “cold” to an apparently greater degree than others around me. It seems as if the thermostat has swung from one extreme to the other and, as a result, I no longer (if ever) have any realistic awareness of the ambient temperature. It’s actually quite a positive experience to be rid of the “night-sweats” but, not so the cold shudders experienced when sat in what I would have considered a comfortably heated environment. On the “up” side it suggests that I’m unlikely to suffer from hypothermia but, the “down” side is that we’re definitely going to be confronted with higher energy bills this fall and winter.
Is it possible that this thermostatic change could relate to my having doubled up on my ppi intake; could a reduction in the production of stomach acids serve to reduce my perceived body temperature. Of course, this “cooling down” also coincides with my most recent sustained period of refraining from smoking but, in normal circumstances (with the supposed deleterious effect of smoking on ones circulatory system) one would have anticipated the opposite result.
I could so easily produce pointlessly circular arguments at this point so, a change of topic is called for. And the subject today is …. SIMPLE PLEASURES!
In fact, simple pleasures, in spite of my regular moans, are a dominant feature of my life; I feel truly blessed with an ability, at times, to simply be still and bask in the wonderful phenomena of breathing. I look out of the window and observe the goldfinches, blue, great and coal tits, dunnocks, collared doves, jackdaws, house sparrows, all successfully scavenging for food, both from our feeders and natures natural bounty. I frequently feel quite overawed by the sheer variety of life forms that have evolved on this amazing planet.
Of an evening, as my beloved works on her laptop, whether for service preparation or updating her weblog, sat opposite me in the living room, I find myself quite simply lost in adoration, contemplation, care and concern for her well-being. Just to see her smile, watch her sing along with ‘Songs Of Praise’, even animatedly reading whatever novel or short story currently engages her attention, I just want to reach out and hold her, hug and squeeze her!
These simple things, a source of warm glowing pleasure, simultaneously serve to reinforce a sense of responsibility to look after and protect that / those for which / whom one cares.
Sunday, April 04, 2010
Wednesday, January 14, 2009
Matters Arising
Tensions mount as the appointed hour for the great disclosure approaches. Although pretty cool about the whole thing, the nearer the disclosure the more, at an almost unconscious level, little anxieties creep in; “what ifs” abound. Perhaps some sinister shadowy condition is the source of my ailments, an organic disease that I’d rather be unaware of. The whole episode becomes quite absurd, one has a scan to try to find out the cause of a certain condition only to (belatedly) realize that perhaps it would be better to remain in the dark about such causes.
My beloved was becoming more overtly concerned about what the scan may have disclosed; worried about organs of the body that may be diseased and, of which my severe discomfort may simply be an obscurely veiled indicator of a much more critical condition. Her obvious upset with this thought, found a counterpart in me as my (only vaguely considered) concerns were given body and substance. This was perhaps the transforming motive whereby my “Que Sera, Sera” was converted into an anxiety laden wondering what.
We visited my GP this morning; he soon put our minds at ease by saying that the report sounded much more sinister than it really was; amongst other things, the MRI had disclosed a 12mm hernia on one of the discs, it really is amazing what havoc such a tiny intrusion / protrusion, in the vicinity of the sciatic nerve, can wreak. He then presented me with the options of consulting a neurosurgeon or, “doing nothing” – quite simply continuing with a programme of pain management as and when necessary. For the time being, I’ve settled for the do nothing option as I’m all too well aware of the risks involved in any spinal surgery.
Should the extreme pain be sustained for increasing periods of time, becoming incapacitating on an even more regular basis than at present, that’s when the neurosurgical route will have to be followed.
Wednesday, December 31, 2008
Returning Home from Being There
An endless numbness, a dull sullen hanging sense of nausea and, barely the energy to read a single word, listen to a note of music; if only I had the stamina to put a thought together it would probably turn into a single-syllabled question. The querulous word would, I suspect, be more on the lines of “What” rather than “Why”.
I’ve long since given up on the existential / metaphysical why; more an exercise in futility rather than to proffer any result. “What” keeps the world alive, “why” seems more like an evasion.
Well, that’s yesterday dealt with; today I have returned to me. The preceding days, and nights, had been dominated by intensely excruciating pain, ranging from the numbing tourniquet, to the slightly blunted arrow; the bone and muscle crumbling ache in combat with those swiftly-fleeting nerve-tingling darts that seem to take one’s breath away; a kind of Topsy-Turvy Terpsichore:
Dance rules over all – it prevails against reason, common-sense and substantial portions of ritual belief. Trouble is that, we are never in control; I am currently in thrall to a kind of voodoo dance –nature’s response to a crushing debilitating pain scenario.
When all else fails, randomly fling limbs in whatsoever direction they feel like; if it causes further discomfort then that adds a whole new terpsichorean overlay, disclosing hitherto undreamt of fraught sequences of space displacement.
On Monday my pain-killing medication was changed, to a 3 day slow release opiate patch. Having applied the patch, late afternoon, my familiar discomforted restless night was in attendance, so nothing different then but the following morn was quite a different proposition. A total inability to concentrate, a generalized dull ache underlining the spasmodically erupting specific sharp pains; all was eventually blanketed under a heavily nausea spiced airless cloud of unbeing, crushing a body wracked in turn between hot and cold shivering sweats.
Needless to say, all the remaining patches have been returned to the pharmacy and, my routine has been switched back to Tramadol, this time of a non-modified release type, to enable me to remain in control, modifying the dosage as necessary. Meanwhile, I’ve once again been referred to the hospital for further investigative work.
The 18 hours respite, including some ‘real’ bed rest, between removing the patch and taking a further pain-killer, has served to enhance my appreciation of the home environment. For the first-time this season, I was aware of the seasonally decorated dining table, and the various Christmas ornaments and tinsel sundrily scattered around our abode. This awareness of one’s habitation, the taste of food, the sound of music and always one’s loving companion is a gift to be truly celebrated. The return from a pain-riddled drug addled stupor makes me feel like the fabled Prodigal Son; although at heart I am always aware of the love that surrounds me, it’s good to receive a whole-hearted reminder, for one’s abode to find it’s rightful status as Home.
Wednesday, December 24, 2008
A Christmas Message
I just sit and look across the room, my beloved lost in thought, a slightly perplexed smile on her face as she ponders the words she’s typing. I smile to myself, a token of admiration coupled with adoration. Sometimes, I lose track of time as I simply contemplate ma belle’s visage; I enter a wonderful world of devotion and love. It seems strange that no matter how much in love I am, it continues to grow.
We’ve gradually completed the Christmas decorations and enter into the magic of the season. Most importantly, for all the gewgaws with which we surround ourselves, we remember that our real celebration is of a helpless child born to a teenage mum in an occupied state in the Middle East. Research suggests that this child Jesus would most probably have been born around April but, I rather like the way Christianity has assimilated this pagan feast time to celebrate the birth of the Christ child. Those who choose to follow the way of the Christ child should not seek to separate themselves from the world but always be there alongside those they can assist in a far from perfect world. Christians are to be “in the world but not of the world”; it’s never enough to accept the world as it is but, rather, we have a duty to transform it.
Just as our Christmas lights and decorations transform the darkest time of the year; Jesus message was to turn the accepted values of the ruling elite on their head. Sadly, just like we put away the lights before twelfth night so, through the centuries, have some of the ruling elites served to restore the injustices which Jesus challenged, in the name of Christendom!
May the message of Peace On Earth and Goodwill To All Men be taken seriously in this twenty first century of the common era.
Just as my contemplation of my beloved gives me such a warm glow, so does the true meaning of Christmas.
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This post first appeared on 22 December 2006
Saturday, December 13, 2008
collapse of the stoical front
I’ve always suspected that it’s much harder to witness and share the suffering of a loved one than it is to suffer oneself but, when one does suffer from any ailment, or dis-ease, the awareness that those who care for, and about you, somehow share your pain, intensifies the sense of spiritual suffering. The sufferer also feels guilty at imposing, on the one who loves and cares for them, some of the restrictions (on the socializing front) implicit in one’s own condition. I frequently find myself apologizing to my beloved for my, all too familiar, achingly fatigued condition, and the consequent wearyingly low stamina levels; it’s not that I blame myself for being ill but, to be honest, I’d prefer to be an enabler rather than a burden.
This posting is also on Mal's Murmurings.
Sunday, August 24, 2008
Of Disparity and Separation
If the overall level of discomfort was greater, the whole situation would be easier to understand. It’s a rather strange sensation, even if not at all unfamiliar, to feel totally drained and tetchy, yet not at all tired. It has been one of those fidgety days for me, eager to get on with something yet not having the stamina to perform whatever task it may be.
Perhaps I’m suffering from shell-shock, having been separated from my beloved for more than 14 hours yesterday, whilst she attended a wedding in Northumberland!
We’re a couple of softies really, with a mutual dependence on each other’s presence; in the 8 ½ years since we were married, we’ve only spent three nights apart, two occasions when I was hospitalized overnight and once when
For someone who had remained free from marital entanglement, until I had spent nearly five and a half decades on planet earth, it’s rather unnerving to have entered such a mutually dependent relationship but, neither of us feels complete without the other.
I’ve just realized, it sounds like I’m blaming marriage for my plight. That’s far from the reality; in fact, what I was hoping to express was the deleterious effect of separation! Similarly, the disparity between my desire to be active and the available resource of physical and emotional stamina could well be responsible for today’s sense of dis-ease.
Saturday, May 03, 2008
Give Me The Simple Life
Oh the pleasure of simple things. Although my beloved wasn’t sure whether the groans I emitted, whilst sat in the shower, weren’t those of agony, I hastened to reassure her that they were definitely not of that ilk but, neither had I quite entered the realms of the ecstatic. It was a simple shuddering joy; the joy of being alive and luxuriating in the steamy heat, the superficial alleviation of the aches in shoulders, hips, thighs and calves, even a temporary farewell to aching sinuses.
It really is amazing that we can so easily take these little luxuries for granted. Although, at times, I still lament the dramatic reduction of physical and emotional stamina since those, seemingly distant, pre-illness days (pre-2003), in the course of the past couple of years my gratitude quotient has increased dramatically. A walk down to St.Marks for coffee and a chat at ‘
The garden seems to be an oasis for blue tits, coal tits, great tits, collar doves, tree sparrows, dunnocks, squabbling starlings and wood pigeons. How privileged I am to have the time to simply observe the avian goings on.
Of course the greatest privilege of all is my beloved,




