Patient's Progress

Emotional resilience remains with me, apart from minor daytime lapses and nocturnal responses to my own unique brand of peripheral neuropathy. These nocturnal skin flaying, burning, tingling, claustrophobic sensations seem to afflict my whole psychosomatic being with expletive laden outbursts and foot stomps around the bedroom whilst my beloved sleeps contentedly.

Perhaps I should explain that the symptoms afflicting my whole being are, superficially at least, only being felt on the upper parts of my toes. The claustrophobia represents these pitiful digits' need to escape the confines of any bed-linen and / or duvet! There just doesn’t seem to be any chance of finding a comfortable position for the lower limbs, in order to settle down to sleep. Sundry intermittent discomforts play havoc with the bodies need for rest yet, quite strangely, by the time my beloved is waking from her slumbers I’m able to relax sufficiently to enter the Land of Nod!

Sudden onset daytime bouts of exhaustion are currently in the ascendant, frequently accompanied by wrist, elbow and knee pains demanding application of sundry splints and supports, which seem to simultaneously ease the nausea inducing tenderness emanating from axillary lymph nodes. Painkillers are then required as, once again, I’ve failed to divine that a pre-emptive dose would have been in order!

Ma belle frequently feels frustrated, and even guilty, by her inability to alleviate the intense discomfort that I quite frequently experience; I know that my suffering would be far greater without the experience of love and care for each other through which I am truly blessed.

An Unexpected Turn

 

Sometimes events take a turn far removed from the familiar; today was such a case. This morning I managed to get myself down to ‘Open Church’, for the first time since my pre-Christmas collapse there. Wrapped up in a warm overcoat and armed with an umbrella I boldly strode my way and, once there enjoyed some really stimulating conversation.

On my way back home I called in at the bakers to collect the wholemeal loaf so, there I was, open umbrella held in one hand and a loaf of bread in the other, heading for home when my mobile begins to ring. To be honest, this was one of very few occasions that I’d bothered to switch it on; I’ve never understood the necessity of holding telephonic conversations whilst ambling down the road. It was quite a juggling act to transfer the instrument from coat pocket to the proximity of my ear, encumbered as I was.

The voice at the other end, my elder step-daughter Beth, tells me that she doesn’t want to worry me but my beloved has been rushed to hospital. She’d apparently been taken ill whilst at the dentists. I knew that she was going to try to make an appointment, having been woken in the night with really painful toothache from an area where she’d lost a filling about a week ago. Although quite wiped out, energy-wise, she’d travelled over to her work in Wetherby, early this morning, where I subsequently discovered, she’d already begun to feel sick before arranging the appointment with her dentist back in Harrogate. The dentist had taken an x-Ray, and informed her that she would need a course of antibiotics to tackle an abscess, before she came over really ill.

Beth picked me up and ran me to the hospital where I found an atypically flush faced and cold-handed Helen. Her blood pressure had sky rocketed, once again very unusual for ma belle who traditionally has a remarkably (but healthily) low BP. Fortunately the ECG results showed no cause for concern and sundry blood samples were taken before she was sent for an X-Ray of the jaw. Whilst I waited with ma belle, Beth, with assistance from Cathy’s partner Ken, was able to get into town to collect her Mum’s car and deliver it back home for us. As a non-driver, I was of little use in these circumstances. Helen subsequently saw a consultant in the Maxillo Facial Surgery who made a few incisions and prescribed two lots of antibiotics.  

On several occasions, in the past couple of years, ma belle has had to come and hold my hand in A&E; today the tables were turned. I so frequently worry about the burden my ill health imposes upon my beloved, realizing how mutually dependent we are; today my concern was how helpless I may be if the burden of care shifted the other way. It was so fortuitous that Beth happened to have some holiday days this week and so, was available to perform such a valuable chauffeuring and messaging duties.

Once again I must express my gratitude to the NHS, especially the staff in A&E at Harrogate District Hospital. I only wish that the Health Service was in safer hands than those of the Tory ConDem coalition.

Thermostatic Quirks and Simple Pleasures

Quite when it happened, I don’t remember; all that I know is that for a number of recent years my body thermostat, though somewhat erratic, tended to play up in such a way that night-sweats, and even passive day-time cool room sitting sweats, have tended to dominate my life experience. The ambient temperature bore little, if any relationship, to my body heat and subsequent seepage of saline solution from pores all around my body, limbs and head.




It has come as something of a surprise, in more recent weeks, as the realization dawned that I’ve started feeling the “cold” to an apparently greater degree than others around me. It seems as if the thermostat has swung from one extreme to the other and, as a result, I no longer (if ever) have any realistic awareness of the ambient temperature. It’s actually quite a positive experience to be rid of the “night-sweats” but, not so the cold shudders experienced when sat in what I would have considered a comfortably heated environment. On the “up” side it suggests that I’m unlikely to suffer from hypothermia but, the “down” side is that we’re definitely going to be confronted with higher energy bills this fall and winter.




Is it possible that this thermostatic change could relate to my having doubled up on my ppi intake; could a reduction in the production of stomach acids serve to reduce my perceived body temperature. Of course, this “cooling down” also coincides with my most recent sustained period of refraining from smoking but, in normal circumstances (with the supposed deleterious effect of smoking on ones circulatory system) one would have anticipated the opposite result.




I could so easily produce pointlessly circular arguments at this point so, a change of topic is called for. And the subject today is …. SIMPLE PLEASURES!




In fact, simple pleasures, in spite of my regular moans, are a dominant feature of my life; I feel truly blessed with an ability, at times, to simply be still and bask in the wonderful phenomena of breathing. I look out of the window and observe the goldfinches, blue, great and coal tits, dunnocks, collared doves, jackdaws, house sparrows, all successfully scavenging for food, both from our feeders and natures natural bounty. I frequently feel quite overawed by the sheer variety of life forms that have evolved on this amazing planet.




Of an evening, as my beloved works on her laptop, whether for service preparation or updating her weblog, sat opposite me in the living room, I find myself quite simply lost in adoration, contemplation, care and concern for her well-being. Just to see her smile, watch her sing along with ‘Songs Of Praise’, even animatedly reading whatever novel or short story currently engages her attention, I just want to reach out and hold her, hug and squeeze her!




These simple things, a source of warm glowing pleasure, simultaneously serve to reinforce a sense of responsibility to look after and protect that / those for which / whom one cares.