no more the adventurer

You’d think, by now, that I’d have learnt to pace myself, after all the theory is quite simple! All one has to remember is to keep some physical (and emotional) stamina in reserve; one has of course always to remember how much lower the energy reserve plateau is than it was pre-illness onset.

 

 Before I succumbed to this condition, (moderate ME), I would think nothing of walking to work, being on my feet most of the day, then coming home, going out to concert, gig, cinema, exhibition preview, attend house group, and later return home all on foot. Very few hours abed would serve to restore energy levels to the necessary level. Socializing always came easy, only rarely did any event attended / ambience prove at all stressful. Thankfully, I had no idea that this comfortable mode of being was going to be taken away from me, unless by the grim reaper.

 

Yesterday morning I’d reduced my bed rest time from 12 to 8 ½ hours, as we were expecting delivery and erection of our summerhouse, which had originally been promised for the 8^th July, and ours was the delivery team’s first drop/job timed for an 08.00 - 10.00 am slot.

 

I was already feeling a sense of giddy light-headedness, and general nausea inducing discomfort, before the delivery team were due to arrive. When they arrived, at around 9.00am, I went out to make sure that they were going to position the doorway, and windows in the required direction. They wondered whether I wanted it positioning in such a way that one array of windows would be running parallel to, and approx 2’6” away from the back of our prefabricated garden shed. I quickly put that right but I was also informed that they would need to chop a significant branch from a tree behind the base that we had prepared, and which had been inspected and approved by someone from the supplying merchant who made no mention of this requirement. [Obviously the base was inspected for suitability without any attention being paid to any other environmental factors which may impede the erection of the aforementioned building!]

 

By this time, the frustration of circumstance seemed to exaggerate both the nausea and the crushing disorienting sense of light-headedness. I reluctantly gave them the go-ahead to dismember parts of the tree before ‘phoning my beloved at her place of work; having informed my OH of how crap I was feeling and warned her that I would soon be likely to turn the air blue, she said she’d pop back to deal with any problems that may arise. No sooner had I put the ‘phone down, and started a necessary/essential period of rest on the sofa, than one of the workmen tapped on the door. They had noticed both mould and a split in the back section of tanalized timber, rending it unfit for purpose. At this juncture I let loose a string of invective concerning the company that they were working for and, said that as far as I was concerned they could take it all away, refund our deposit and give us a couple of hundred quid compensation for all the inconvenience we’d been put through. I also suggested, somewhat more measuredly, that they may as well wait for my OH to arrive and see what she thought.

 

Having taken away all the components of the summerhouse at ma belle’s request, they said that they would get the supplier to ‘phone her at work to discuss compensation and re-arrange delivery and erection of a building ‘fit for purpose’!

 

It was only after the kerfuffle had passed that I fully realized just how shattered I was. The (supposedly good) weather recently, above average temperatures, sunshine and cloying humidity, always play havoc with an already erratic body thermostat. Not only had I been deprived of necessary bed rest but, I was also receiving a degree of ‘payback’ for some minimal over-exertion in terms of cooking, domestic chores, entertaining and dining out with our special friends, Peter & Pamela, who had traversed the Pennines in order to see us at the weekend.

 

As I suggested earlier, what once I would have taken in my stride would now appear to be the most foolhardy kind of adventuring! 

 

 

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I commented on Twitter yesterday:

 

 this time the outpouring
of expletive laden invective
fails to alleviate
the nausea inducing malaise
- otherwise I'm OK!  

... and the usual suspects

Things seemed much brighter, as I benefitted from the cumulative effect of two acupuncture sessions in relatively close proximity, but these gains in terms of stamina level and lower levels of pain weren’t destined to endure.

 

 A bout of toothache, responding to touch and vibration of a toothbrush but not to either heat or cold, quickly faded only to return a couple of weeks later. The return was certainly with a vengeance as the ache extended through my jaw right up to the chin. An emergency appointment with the dentist led to one extraction and a course of antibiotics for a deep rooted infection. Whereas at one time I would have taken these things in my stride the effect has not been to dissimilar to that of a ‘Mickey Finn’.

 

So, Friday afternoon found me in the dentist chair and Wednesday saw me take the final dose of amoxicillin. On Tuesday morning I had to emerge from the duvet lair long before my usual hour of bravely facing the (fairly) new day; my appointment had finally come around at the Dermatology and Lesions clinic. The clinician confirmed the basal cell carcinoma on my chest and suspects that the lesion on my leg is Bowens so, within the next few weeks I’ll be having the bcc excised and a biopsy taken of the suspected Bowens.

 

All in all, these events have left me feeling a little more shattered than is my norm but, at least I’ve been able to enjoy a few rare glimpses of sunshine in the garden as I watch the birds devour whatever treats we’ve placed at the sundry feeding stations.     

same old pains regaining confidence

A plan to wait for an upturn in my state of wellbeing, before writing another blog post, has had to be withdrawn from my agenda.

 

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Apart from the griping gut churning abdominal spasms, a combination of regular IBS and diverticular problems, there always seems to be something extra to grab the focus of my attention. Flatulence and dyspepsia are so commonplace as to go unremarked; I only wish I could ignore the gastro-oesophageal reflux!

 

I still seem to be undergoing some kind of relapse, intensifying over the past few days, as acute chest, joint and muscle pains, tenderness in armpits and under jaw, join forces with the above mentioned ailments. A recently refreshed collusion between GORD and post nasal drip seems to further conspire against any hoped for sense of well-being.

 

Mid to late afternoon, almost as a matter of routine, that grinding nausea inducing hollow ache in the armpits sets in. On a good day, ten minutes sat with my arms pressed tight against my back alleviates the ache, to some extent; on most occasions it’s also accompanied by aching pains in elbows and/or wrists. Sometimes supports applied to wrists and elbows bring the necessary relief but, increasingly, I find that I need to resort to some strong painkillers.

 

Although I rarely spend less than twelve hours (night & morning) abed, I increasingly have to resort to an hour or more lying down in the course of the day, the need usually prompted by aching limbs and an unsettling aching giddy light-headedness.

early one morning

Friday morning, removed myself from the duvet lair at a markedly early hour which, viewed retrospectively, was a big mistake. Rather than my usual time of arising, some time after 10.30 - followed by a period of relaxation, this morning I was up and dressed before 9.00am in order to keep an appointment with my dentist. Apart from the unearthly hour, a further source of discomfort was a bout of diarrhoea requiring me to dose myself with loperamide before leaving the house.

Ma belle parked the car some five to eight minutes walk from the dental practice which, in the circumstances, turned out to be a further mistake. Long before we had reached my goal, an all enveloping sense of shatteredness set in, starting with the lower limbs. On arrival at the dentists, an urgent visit to the loo was necessitated, on return from which I was overwhelmed by the encroaching shatteredness, a painfully discomforting sensation of giddiness and general disorientation.

By this time I’d evidently become totally drained of colour, and the receptionist called for the dental surgeon to come through to reception. R, the dentist, decided it would be unwise to proceed with the current appointment and, she sat with me whilst my beloved went to collect the car, and bring it to the door, to chauffeur me home. Meantime, an afternoon appointment has been made for later in the month and, the dentist told me that if I feel at all unwell it’s alright to cancel even if it’s only five minutes before the appointed time.

It was the first time that this medical professional had ever seen me looking unwell, regardless of my sundry ailments; seems to be par for the course with any invisible illness. The only time that others encounter oneself outside the homestead is, by definition, on a better day.

Shattered of a Sudden

That head-floating, gut-wrenching, muscle-nagging shatteredness wraps me of a sudden in its embrace. Yesterday the deeply gnawing muscle spasms, in limbs and torso, felt like a rebuke for having deigned to commit myself to Friday's minor exertions. At times it seems like a game of damned if ... (damned if you do, damned if you don't); accepting one's limitations is an important step towards avoiding a nightmare roller-coaster experience but, in that acceptance one also risks accepting a pretty colourless plateau of existence.

I've always been fortunate in having a rich life of the imagination, and a naggingly active spirituality; this has meant that the health imposed curtailing of my socializing activities didn't lead me into an immediate state of desolation. I have to admit though that the loss of contact with many people, especially those who I'd considered to be my friends, is something that I still find difficult, when I allow my mind to go there, more than seven years on from succumbing to this wretched illness.

At least I understand this early evening's sudden yielding to shatteredness; a connection with last night's discomfortingly disturbed sleep pattern seems pretty obvious! Expressing my dis-ease in words, in some way, alleviates its claustrophobic grip

Testing The Limits

Sometimes the stamina, or at least a small portion of it, seems to have returned along with a lurking fear that it's only a mirage. At first one treats it with caution, only too well aware of the consequence of any over exertion but, one is always tempted to test the limits. I've already suffered a moderate setback, in terms of feeling discomfortedly knocked out (rather more dis-eased than my familiar norm) on Thursday as a result of attending the meeting on Tuesday, even though the actual attendance there proved a great morale booster.

Wednesday found my beloved back at the dentist, her earlier trials and tribulations not yet at an end.

After Thursday mornings painfully aching shatteredness, a fresh influx of stamina seemed to come my way by Friday afternoon and, I actually managed to transfer some of the compost from the bottom of our (compost) bin across to one of the garden borders. The garden always seems to reward us well, in terms of floral display; a disproportionate gratitude for our puny endeavours.



Thursday and Friday both saw an abundance of avian visitors to our garden, nothing new, but a fair cross selection of our familiar visitors, goldfinches, blue tits, dunnocks, sparrows, blackbirds, robin, wood pigeon, collared doves, chaffinch etc but then, today saw only a very sparse sprinkling of any variety. Until this evening I'd forgotten all about the Big Garden Birdwatch so, I'll have to set an hour aside tomorrow, regardless of how representative it turns out to be!

Transitions

Yesterday, a (temporary?) reprieve from a snow-laden garden brought out my latent - albeit limited - energy reserve as I manfully retrieved a spade from its hibernation; the wheelbarrow was also rescued from its angled reclination as I set to work. The task I set myself was to transfer some of the contents of the compost bin onto the garden's flowerbeds. Fortunately, I had the good sense to limit this exertion to two barrow loads; my state of being, this morning, confirmed that any further exercise could have proved disastrous. Shattered-ness has been retained at a degree only marginally greater than is my norm. Pacing is all!

Meanwhile, a slightly more passive pursuit has been the commencement of a project to transfer some of my vinyl and audio cassette collection to mp3 format. For far too long these musical and dramatic artefacts have been squirrelled away in sundry, non too easily accessed, hidey holes. I must own up to my preference for the sound spectrum derived from vinyl rather than CD but, unfortunately the turntable that obtains the best performance is also the most temperamental! For the vinyl transfer I'm using this hand-built turntable via a USB powered and connected phono pre-amp; for the cassette transfer a USB connected tape2pc deck suffices.

The transfer operation has more to do with potential ease of access, to the performances, than the overall sound quality; it has certainly taken me long enough to embark on this mission and, I'm hoping not to be too disappointed with the result! First transfers have come out better than I'd anticipated but, there's still a long way to go!