Flummoxed by Circumstance

The heat and humidity of the past week have certainly, but unsurprisingly, had a detrimental effect on my relative state of well-being. Even before the hottest day arrived, I was already suffering payback, for over-exertion, in my desire to optimize the length of time & distance spent walking our gorgeous dog Piper.

Already impaired by that payback I'm somewhat flummoxed when trying to determine how much of my current ailments, tenderness of lymph nodes (both axillary and cervical), aching bones feeling somewhat as if they've been hollowed out and lined with lead and undergoing extreme gravitational tugs of war, are a continuation of the earlier payback and how much solely a response to climatic conditions.

I've reluctantly had to resort to supports applied to wrist, elbow, knee, ankle, and even tubular bandages covering most of my arm. I don't know whether this use of tubular bandage serves as some kind of lymphatic massage but, it certainly helps. Unfortunately, alongside the physical ailments, a re-active depression has had a deleterious effect on my ability to respond rationally to any minor physical or emotional setback.

Yesterday morning as I lay on my bed, chokingly sobbing, Piper ran up the stairs, placed his head beside mine and lay with me for a few minutes; that in itself demonstrated that his presence in our life proves therapeutic. I have actually managed a couple of shorter walks with the boy in the cooler parts of the evening.

Piper is certainly becoming more confident since joining our family, barking a confident disapproval of large darkly coloured dogs encountered on his walks, yet offering friendly sniff-based greeting to many other canines that he had at first cowered away from. Judging by this behaviour, I suspect that the scattering of scars on head and torso, received whilst in the pound, were caused by a really large dark coloured canine. He has certainly gained a good knowledge of our nearby footpaths and bridleways and seems to let his walker know when he's ready to head back home.

his mistress's scent

Piper

Piper

Although I spend much more time with the dog at home, than my beloved OH manages (owing to other commitments), she is definitely his dominant other. Fortunately, he now spends less time dolorously searching for his mistress when her other duties call and, this weekend he has been left solely in my charge, as his chosen other ventured down to the south of the country for a couple of days and nights. Now, after 10 hours of Helen's absence he has just been casting a few longing glances at the door of the lounge but, then goes trotting around the garden, looking for possible sources of mischief. On returning to the house he welcomes my attention before checking out the door once more, anxiously awaiting his mistresses return.

These days I hate, almost fear, spending evenings and nights alone in the house, feeling rather vulnerable, due no doubt, at least in part to my sundry physical (and reactive emotional) ailments but, I'm sure that Piper's companionship will help.

A SLOW SLIDES JOURNEY INTO DAYMARE

A SLOW SLIDES JOURNEY INTO DAYMARE

Today would be best forgotten but, it’s my failure that I find it hard to forget, just as I find it almost insurmountably difficult to forgive. Much of today’s problems, other than the generally ongoing ME related ailments, emanate from the inappropriate prescribing by a certain medical professional. That GP I am unable to forgive.

This morning I was forced to emerge, from the duvet lair, a good

1 ¾  hrs earlier than is my norm, to keep a previously postponed appointment at the hospital’s orthoptics department. The morning, apart from my unearthly hours emergence into the day, was also greeted with a quite heavy snowfall.

Anyone who knows me, at all well, is all too aware of my difficulty with travel of any kind and, this morning’s short journey, following the main roads rather than our usual shortcuts, was one of following and being followed by skidding and stalling vehicles.  This was just like living through a nightmare for my sensitivities. At one point, even my beloved chauffeuse thought we’d maybe have to call the hospital to cancel the appointment, this time at much shorter notice. In spite of prior weather warnings of snowfall the responsible(!) authorities hadn’t bothered to grit the roads.

Whilst my beloved queued, waiting to access the hospital’s car park, I made my way to the relevant department. As I looked for the right place I wandered past the turning, having been told it was to the left, by a volunteer near reception, whereas it was actually to the right. Having ambled along the corridor a notice clearly stated that patients for Visual Fields Test should take a seat “here”, which I duly obeyed. Several minutes later a couple of hospital staff ambled by and asked if I was alright; I in turn informed them that I was waiting for the visual field test. Evidently I should have first reported to a reception staton some twenty to thirty yards further along the corridor.

By this time I urgently needed the loo, and had a bout of re-active diarrhoea, before entering the surgery. The clinician was quite concerned that my head felt so hot, and I explained how this wasn’t unusual as I could sweat in a freezing environment, my body thermostat being shattered / wildly erratic ever since succumbing to ME.

About halfway through the tests on my first eye I required a break as my chin and forehead were so uncomfortable, and I needed a drink of water before I continued. No sooner was the patch transferred to the other eye, and appropriate lens in place than I became quite headachy and totally incapable of concentrating as all spun around me. I informed the clinician that I wasn’t able to continue the test and also cancelled and discharged myself from tomorrows appointment with ophthalmology.

I simply cannot cope with early hours or concentrated attention. The appointments would not, in any case, have been necessary had my GP not messed haphazardly with my medication. [Earlier postings have already dealt with this situation]

the space-hopper weighed down

A deep lethargic spirit consumes my very being; a lead weighted space-hopper would be about right as a description of my personage at 11.30 am. Last night was the worst of those seemingly endless, restless, nauseatingly painful nights that I’ve experienced in a long time. Don’t get me wrong, a disconcertingly discomforted restless night is currently par for the course, but last night was topped with added painfulness. Even my regular pre-emptive strike against nocturnal discomfort, amitriptylene and tramadol taken an hour or so before snuggling under the duvet, seems of little if any avail these days.

 

As I fitfully tossed, turned and squirmed au lit, post-nasal drip and gastro-oesophageal reflux added a further frustrating layer of dis-ease to the tenderness of cervical and axillary lymph nodes. Invisible clog dancers throbbed their way from armpit to elbow, elbow to wrist, before treating the rib cage as a xylophone. As I stretched my legs over the end of the mattress, my toes burnt as if they were being scrubbed with a wire brush. Once the nagging aches pulsed through my hands I decided to don my wrist splints which, somehow, seemed to gradually alleviate the pains in my upper arms.

 

Even the weather seemed to conspire against sleep, the roar of the wind was disturbingly amplified as I lay there, watching the flickering shadows which took on a somewhat threatening character in the darkened bedroom. An irrational childhood fear of the dark seems to have re-emerged recently, although it only applies to darkness within a building not in the great outdoors. Switching on a bedside lamp almost miraculously eased some of the bodily tension but, even then, only quite short snatches of sleep, from around 4.00am,were on the menu. It seems to be the rule that only unrefreshing sleep may be proffered to yours truly! The past couple of weeks have also seen an alarming resurgence of diverticular and spastic colon symptoms, no doubt contributing towards the sudden all enveloping exhaustion which erratically disrupts my daytime routine (or lack of such).

 

I am of course in that period of my life when I start to question how many of my ailments, or to what degree, they are symptoms of an ageing body as much as the manifestation of an underlying chronic illness?

 

Now, here’s the surprise. In spite of all the foregoing ailments I still manage to enjoy life, constantly amazed by the intricacy and complexity of the world around us, attempting to interpret one’s relationship not only to the earth and one’s immediate vicinity but, how we fit into the whole cosmic scheme. The joy that I gain by observing the sheer variety of flora and fauna, even just within the confines of our garden, still fills me with a sense of wonderment. That there is something, rather than nothing, into which we have been thrown, is cause enough for celebration; the love I share with ma belle Bright Light ultimately overwhelms a one time tendency of mine towards cynicism.

no more the adventurer

You’d think, by now, that I’d have learnt to pace myself, after all the theory is quite simple! All one has to remember is to keep some physical (and emotional) stamina in reserve; one has of course always to remember how much lower the energy reserve plateau is than it was pre-illness onset.

 

 Before I succumbed to this condition, (moderate ME), I would think nothing of walking to work, being on my feet most of the day, then coming home, going out to concert, gig, cinema, exhibition preview, attend house group, and later return home all on foot. Very few hours abed would serve to restore energy levels to the necessary level. Socializing always came easy, only rarely did any event attended / ambience prove at all stressful. Thankfully, I had no idea that this comfortable mode of being was going to be taken away from me, unless by the grim reaper.

 

Yesterday morning I’d reduced my bed rest time from 12 to 8 ½ hours, as we were expecting delivery and erection of our summerhouse, which had originally been promised for the 8^th July, and ours was the delivery team’s first drop/job timed for an 08.00 - 10.00 am slot.

 

I was already feeling a sense of giddy light-headedness, and general nausea inducing discomfort, before the delivery team were due to arrive. When they arrived, at around 9.00am, I went out to make sure that they were going to position the doorway, and windows in the required direction. They wondered whether I wanted it positioning in such a way that one array of windows would be running parallel to, and approx 2’6” away from the back of our prefabricated garden shed. I quickly put that right but I was also informed that they would need to chop a significant branch from a tree behind the base that we had prepared, and which had been inspected and approved by someone from the supplying merchant who made no mention of this requirement. [Obviously the base was inspected for suitability without any attention being paid to any other environmental factors which may impede the erection of the aforementioned building!]

 

By this time, the frustration of circumstance seemed to exaggerate both the nausea and the crushing disorienting sense of light-headedness. I reluctantly gave them the go-ahead to dismember parts of the tree before ‘phoning my beloved at her place of work; having informed my OH of how crap I was feeling and warned her that I would soon be likely to turn the air blue, she said she’d pop back to deal with any problems that may arise. No sooner had I put the ‘phone down, and started a necessary/essential period of rest on the sofa, than one of the workmen tapped on the door. They had noticed both mould and a split in the back section of tanalized timber, rending it unfit for purpose. At this juncture I let loose a string of invective concerning the company that they were working for and, said that as far as I was concerned they could take it all away, refund our deposit and give us a couple of hundred quid compensation for all the inconvenience we’d been put through. I also suggested, somewhat more measuredly, that they may as well wait for my OH to arrive and see what she thought.

 

Having taken away all the components of the summerhouse at ma belle’s request, they said that they would get the supplier to ‘phone her at work to discuss compensation and re-arrange delivery and erection of a building ‘fit for purpose’!

 

It was only after the kerfuffle had passed that I fully realized just how shattered I was. The (supposedly good) weather recently, above average temperatures, sunshine and cloying humidity, always play havoc with an already erratic body thermostat. Not only had I been deprived of necessary bed rest but, I was also receiving a degree of ‘payback’ for some minimal over-exertion in terms of cooking, domestic chores, entertaining and dining out with our special friends, Peter & Pamela, who had traversed the Pennines in order to see us at the weekend.

 

As I suggested earlier, what once I would have taken in my stride would now appear to be the most foolhardy kind of adventuring! 

 

 

*************

 

I commented on Twitter yesterday:

 

 this time the outpouring
of expletive laden invective
fails to alleviate
the nausea inducing malaise
- otherwise I'm OK!  

apologia

Yet another afternoon spent in the garden, this time in the shade of a parasol beside the pond.

 A couple of weeks ago I’d never have dreamt

of making such a statement having undergone an extremely protracted

autumn and winter of cold and damp weather,

  the wet aspect being but a pale reflection of last summer’s weather.

 In the course of the last couple of weeks we’ve been blessed

 with many warm sunshiny days which inevitably

turned ones thoughts and footfall towards the garden.

 

The preceding paragraph, or words to similar effect,

 were to have been the opening of a web log posting a fortnight ago but,

much to my surprise, I’ve now been able to spend

 even more time in the garden although the weather has once again became more changeable.

I’m still not able to cope with very warm humid atmospheres;

 it’s largely been a matter of choosing the appropriate times and circumstance

 to venture out. I’ve been taking a few snapshots of aspects of the garden’s flora and fauna and,

undertaken some gardening chores

without exerting myself beyond reasonable self-imposed* “pacing” limits!

 

On many occasions, feeling a little guilty

about neglecting the blog, I’ve settled down beside an inert keyboard

with every intention of resuscitating it

but the necessary emotional stamina seems to have been

in extremely limited supply.

 

++++++

 

 

*more honestly “health-imposed” but one likes to feel, to some extent,

in charge of one’s own destiny.

 

 

 

and I'm feeling fine ... ailments excepted

Oh, the sheer delight of a nice warm shower; there are so many things we tend to take for granted, thus depriving oneself of that real appreciative thrill. I admit to having gone through quite a long period of avoiding too frequent a shower, having found the effort involved far too enervating; by the time I’d towelled myself dry I needed a further bout of bed rest.

The acquisition and installation of a secure shower seat alleviated some of the more dauntingly exhausting aspects but, even then, when I stand up my sense of balance (within those steamy environs) is insufficient for me to feel at all secure. Fortunately, my beloved OH is there to proffer assistance at my now more usual, although spasmodic, evening shower time.

******

Anyway, last evening’s shower proved especially beneficial; a most recently acquired acute pain extending from the neck and upper spine across the shoulder blade had made it difficult to even put on my shirt as I rose from my bed. My beloved applied generous amounts of ibuprofen gel all around the affected area. An attempt to lay back down proved even more painful so I persevered with getting dressed as, in any case, ma belle chauffeuse (aka Helen, ma belle, my OH, my wife, my lover, my bestest friend) was preparing to take me to the hospital for an X-ray and blood tests. The shower certainly alleviated the shoulder pain, even though it rarely seems to help sundry other painful ailments.

It seemed strange hobbling into the X-ray room posture made awkward with the shoulder pain, as the area to be photographed was my hip! What’s the connection, you may well wonder; so I proffer an hypothesis. On Tuesday evening, the night before last, ma belle et moi ventured out to the branch labour party meeting at the Catholic club. The meeting was due to start at 7.30 and, we duly arrived in good time on a blustery rainy evening. Unfortunately the doors of the venue were not due to be opened until 7.30 so we had a little time spent exposed to the elements. By the time we’d got in and sat down, my hip and lower limbs felt extremely uncomfortable, so I had to keep shuffling around to try to get comfortable; I suspect the changing postures involved, in  these hip-pain alleviating manoeuvres, were responsible for unusual stresses on the shoulder.

******

This afternoon the physio arrived chez nous to apply the magic needles. As I relaxed a beautiful warm glow seemed to permeate my limbs, after which I experienced a wonderful carefree rest in my favourite supportive high back armchair. Over recent years acupuncture has proved a great source of pain reduction and stamina boosting for me, a convinced sceptic until I tried it!  

And, I’m feeling fine!

Stormy Weather

My most recent flood of tears almost put the current downpour of rain and hail to shame. A prolonged wearily exhausted phase of being has not always been easy to cope with; even an almost constant bruising constricted sensation across chest and upper abdomen fails to overwhelm the spasmodic aches and pains in the upper limbs (apparently emanating from the armpits).

Having emerged from the duvet lair, some thirteen hours after retiring thence, I went downstairs to prepare a chicken, peppers and mushroom casserole for dinner, as well as parboiling some potatoes in water infused with my special blend of herbs and spices. By the time the initial preparations were done I was ready for another rest; I duly retired to the lounge and enjoyed watching our avian visitors in the garden. Goldfinch, coal tits, blue tits, house sparrows, blackbirds and wood pigeons all vied for my attention.

After lunch we transferred some video footage of Wesley Chapel’s Anniversary and rededication service, from 1994, to DVD. It was good recognizing some old familiar faces in choir, congregational pews and pulpit, and it’s especially interesting as that is now Helen’s home chapel, just as it was for my parents in their later years. As I finalized the DVD a fascinating Human Planet documentary, which had just started on BBC1, captured our attention.

We both enjoyed watching the Senior School Choir of the year semi-final and, the three choirs chosen to go through to the final coincided with our selection. Shortly after that programme had finished my problems began; as I sat down following a visit to the loo I suddenly found myself breathless as my chest and abdomen felt as if they were being held in a vice and, I felt my colour drain away (the pallor duly observed by my beloved) and felt very nauseous. The crushing aches and pains were vying for attention everywhere from shoulder, through the torso and down to the lower limbs. As I gasped for breath, the tears began to flow and I felt terribly afraid, just feeling totally terrible. The tears flowed for at least twenty minutes as the sundry symptoms became unbearable.

I am just relieved to feel normal (with my old familiar lower level aches and pains) once again. as I sit and enjoy the company of my beloved!   

much ado about little

The current pleasant weather could prove dangerous!

Yesterday afternoon found me briefly pottering about in the garden; this morning I once again exerted myself (a little) tidying up and, transferring a wonderfully rich humus from the bottom of the composter into a barrow.

At that point it suddenly felt like I was about to hit the wall; it was almost as if I could hear the muscles groan through their sluggish response to every bit of exertion.

Come the afternoon I even ventured out for a little walk!

It would be nice if for once there's no payback.

a not quite inadvertent nature watch

just rediscovered this note from a couple of days ago and as no other words are seeking urgent release thought I should post it just as it is

**************************

Having been blessed with glorious sunshine, for at least parts of several recent days, today's sky seems to promise some quite imminent rainfall. As I write the sun has once again broken through the cloud cover; whilst other areas of the country are having hosepipe bans imposed, in these parts there's certainly been no shortage of the watery stuff.

The bright sunshiny mornings have brought the depths of shrubberies alive with an intensity of chatter from the house sparrows, whilst dunnocks trill their melody from higher, more exposed, twigs and branches.

At some point each day, regardless of whether I manage to get out of the house, I have the privilege of watching the red kite(s) circling on the thermals.

to bed perchance to sleep ...

This is the time for sleep. Try frustration instead of sleep; no thanks, I've just tried that and found it wanting! That was last night's pattern, finding myself totally mentally alert when I should have been resting. Perhaps it was the expectation of a sound nights sleep, following on from a day of plentiful fresh air and a more than modest (but not dangerously so) degree of exertion.

Yesterday was one of those spoiling days, once the bright sunshine had broken through; a cool breeze played wonderful counterpoint to the sun's warmth drawing me out from my domestic habitation. Having returned from a mid-morning visit to 'Open Church', where I consumed a cup or two of coffee as accompaniment to a bit of social chatter, I ventured up to the pond to feed the fish (goldfish and golden orfes) and felt suddenly inspired to apply a fresh dose of teak oil to sundry items of garden furniture.

After grabbing a bit of lunch, I returned to the garden and gave the lawn its first mow of the season and also took a few macro snapshots of some of the spring flowers. After that rather full days activity, I had anticipated a better nights rest than that which I was about to receive. Having settled down in the duvet realm by 11.00pm, at 1.30am I switched on the bedside radio to listen to Radio 3 as I'd not yet managed even a brief snatch of slumber. A further 4 or 5 hours later and I'd still not managed even forty winks. It somehow felt like an overactive mind had determined to thwart my bodies rest requirement.

Sometime between 7.00am and 11.00am I did capture a few spasmodic moments of shuteye whilst purportedly listening to Radio 7 and Radio 2. I then allowed myself to slowly emerge in to a new brightly sunshiny day as I attempted to release a modicum of vibrancy from my shatteredly sleep deprived  body. I headed up to the arbour seat and was swiftly transfixed by the scuttling and chattering activity of the sparrows in the adjacent shrubbery, and the flittering of peacock and white butterflies over the rockery. As I rejoiced in the new seasons growth, I was almost able to forget my general state of shatteredness.

I rejoice and am glad in this day the Lord has made.

Mal's Windswept Abode

Today's post, Gale Force Entrapment, a natural sequel to the previous days posting, can be found on Mal's Murmurings.

The Faith of Meteorologists

If only I had the faith of a meteorologist, I could move mountains; that's what I call blind faith.

Forecast heavy snowfall fails to materialize, predicted intensification of sub zero temperatures result in our first recent experience of temperatures at or above zero centigrade.

It comes as something of a surprise that they continue to present us with their forecasts, undaunted by their apparent inaccuracies.

This certainly is faith in the purest sense, bearing little relation to their falsified beliefs.

Mal murmurs about the garden

Todays small domestic blog post, pretentiously (and probably incorrectly) titled 'avant moi le deluge', can be found on 'Mal's Murmurings'

Freshly Minted

Yesterday evening I posted a brand new poem - WINDSWEPT - on both Mal's Factory and Archive Mined & Freshly Spun.

Seasons In The Sun

Sometimes, the weather makes one’s “pacing” easier; at others it proves the worst adversary. Recent days have seen a clear demonstration of this; a spell of dry sunshiny weather found me out in the garden, eager to tackle a number of overdue tasks and, even to feel inspired to make further modifications. When you can manage a little task it just feels so good, the morale is boosted and, one feels quite virtuous at having attained something that, in one’s lower de-staminated times, certainly seemed a task too far.

Experience has taught me the importance of retaining some energy, rather than go flat out to tackle the job in hand but, the temptation’s always there to do a little bit more. Surely one can manage that extra little exertion? Nine times out of ten I could; problem is, that extra little exertion is the proverbial straw that flattens the hump.

Five minutes more effort can mean several days painfully laid low, aching and feeling tortuously bruised in places one can’t imagine anyone having a name for; in fact, one has temporarily lost the ability to name even the familiar places. At these times, one wishes the world would end and, stamina permitting, one screams out the words that many hangover sufferer may utter the morning after, “Never again!”

Of course, at the weekend my beloved is around to keep an eye on me; she certainly doesn’t want to deal with the aftermath and, at times seems more aware of my limitations than I, in my better days, am capable of acknowledging.

Come Monday, the rains had arrived, drastically curtailing any desire to do a little more pottering about in the garden – guilt free, I’m able to take things easier! Wednesday afternoon, the sun breaks through in glorious splendour and the impulse to go forth and till the fields grows strong.

I settle for something a little strenuous and, transplant a few tomato seedlings, from the windowsill propagator into pots ready for placement in the greenhouse. Although not excessively hot, a little time in the sunshine coupled with a moderate exertion proves overpowering. The glow of satisfaction, at another little task completed, is counterbalanced by a tediously frustrating shattered-ness. In this instance the weather proved both friend and foe.

I can only give thanks for all the things I can manage and, a new preparedness to listen to my body.

New post on "Mal's Murmurings"

My latest posting, "Weather Impromptu", can be found on Mal's Murmurings

plumbing the heights and scaling the depths

A dull, numb, lightly throbbing pressure behind the eyeballs; a leaden ache above the eyebrows; a general sense of hollowness within the skull and torso – the kind of discomfort that it is so difficult to express. Today, this has taken pole position against the competing sharper, sometimes excruciating, pains and discomfort emanating from the sciatic nerve.

It’s extremely difficult to formulate a table of aches, pains and discomfort; how does a constant low key gnawing, of a bruising kind, compare to an experience of an acute electric shock? Can numbness in any way be correlated with a more instantly sharply stinging sensation?

What does one express on a visit to the GP?

In my case it’s always the (perhaps transient) currently preoccupying dis-ease that is foremost in the more general catalogue of sensations; the ongoing symptoms of a chronic condition are rarely raised. These (permanent) discomforts are always least apparent when one has the physical and emotional stamina required to make, or permit my beloved to make, the appointment in the first place. I am fortunate with my GP’s, that they generally give me the time necessary to make the point but, even so, there are always the omnipresent discomforts that I don’t want to bother them with.

I suppose that the recent disabling excruciating pain, caused by a herniated disc, so overshadowed my regular discomforting companions that, had I been able to overlook the surface anguish, I could have imagined myself as being in the best of health.

The snow, outside of course, reflects the sunshine’s dazzling glare around the sitting room; my eyes ache from this glorious assault. The gas fire is turned up high but, the cold shudders, which I’m experiencing, strive to deny the fact.

Body Talk

A crisp bright day encourages me to venture out for a stroll. My body instinctually vetoes the idea.

I know, on this occasion, that the body is correct – I’m quite used to listening to it these days – but the thought of a little stroll, accompanied by my very own breath ghosts remains appealing. Momentarily, a surge of resentment washes over me; why should I tolerate these corporeal restraints?

A searing bolt of transferred pain replies, as if to demonstrate the wisdom of the body. The spirit yields to the assured pragmatism of the flesh.

Mal's new murmuring

Today's posting, ME and my shadow, can be found on 'Mal's Murmurings'.

Pond-ering

The heron takes ponderous flight, drudges its way over the garden, a sideways glance at the pond discloses a surfeit of vegetation; I imagine the birds disappointment that it has no easy access to the piscine residents. It’s quite some time since our fish suffered from severe post-traumatic stress disorder, following a heron’s intrusion on our pond in its earlier manifestation.

 

The glorious realization that heavily overgrown pond margins serve as a deterrent, to this type of predator, brings a huge smile to my face. That thought alone serves to brighten yet another sodden grey day!