ME

ME
Showing posts with label writing. Show all posts
Showing posts with label writing. Show all posts

Sunday, September 26, 2010

A Special Friend


I've started this post several times but, whatever I started to express seemed somehow irrelevant. It's not that any of my postings has much intrinsic merit, only that which a particular reader may put upon it alongside its utilitarian value, to the writer, as a discipline which places some kind of order or value on the (recorded) aspects of their everyday experiences.

No matter what I set out to express or recount this time, one primary event seemed to overshadow it. After a few rollercoaster years of brain tumour induced ill health Kate, Cathy's lifetime friend , finally lost her battle shortly after her 30th birthday, and nine months after the birth of her wonderful son Joseph. There are times that I consider myself "good with words" but then at others, on occasions like this, the appropriate words just won't fall into place. Come to that I can't even wrestle them into place!

I can't see how anyone who ever met Kate could fail to be touched by the warmth of her smile, a heartwarming smile which she could still display, even whilst undergoing some of the most distressing and disorienting effects of her illness. At times she seemed to defy the expectations of the doctors who treated her; a sturdy determination underlay a vulnerable frame as she once more fulfilled the desire to be back home with her husband and son, rather than laying in a hospital bed.

Cathy feels as if she has lost a part of herself; this is a loss for which there can never be a replacement, a very special friendship - that of kindred spirits - since pre-schooldays. My thoughts and prayers go out to all her family. The world is a poorer place for her passing but, the community of saints has been greatly enriched.


Tuesday, September 15, 2009

the impossible is slightly difficult


Some things are just so difficult to explain that one just goes on with life, as best one can, unable to share their "different" experience of "normal" everyday activities. Some chronic conditions, even in their relatively moderate forms, can have the most devastating impact in terms of isolation; the combination of pain, sensory-overload - both auditory and visual (and the accompanying agitation and frustration) as well as an excruciating fatigue (caused by unrefreshing sleep patterns) are quite simply impossible to explain to anyone who has not been there and, together, they conspire to prevent much normal socializing!


Even when the worst symptoms are in some kind of remission, my coping mechanism has hardly returned to it's pre-illness state. There are times when, on a social outing, one feels they are going to explode in response to the immediate environmental activity - be it talking, music, lighting, or quite simply the presence of too many other bodies - then comes the difficult task of making one's "excuse" to depart early from the event.

Frequently I notice concerts, gigs, exhibitions etc that I'd like to attend but, I feel unable to pre-book ( even in my current reasonably well phase) as I'm never sure whether I will have the necessary physical and/or emotional stamina to cope come the day! Even when there's no requirement to pre-book, if an admission fee is involved it always seems an incredibly extravagant outlay bearing in mind that, in all likelihood, I will be ready to leave (unable to stay the course) whilst the event is still in progress. At the recent farewell party for the local vicar, it was amazing to be able to sustain concentration for that part of the entertainment I managed to cope with. My recent visit to Liverpool was a different experience altogether when I wasn't "up to" attending any of the exhibitions I hoped to see, or even dining out at a restaurant in close proximity to the inn where we were staying.

I am blessed in obtaining so much satisfaction from spending time in the garden, watching the avian activity, taking photos and videos etc., playing about on the PC, painting and writing as and when urge and stamina are in sync. I've become, in the process a contented homebird! On many occasions I'm able to manage a short walk but, even that activity has its own little idiosyncracies. This afternoon I took a little walk, at a somewhat slower pace than my recent norm; as I tried to speed up it seemed as if the lower limbs hydraulics were in serious need of an oil change; each movement required a conscious effort, as if I was required to lift my feet from some kind of cloying quicksand. And that was on, what had earlier seemed, a "better" day.

I have no desire to be a Moaning Minnie, it's just that I wanted to try and share something of that which I deemed, at the outset, to be impossible.