Tuesday, September 15, 2009

the impossible is slightly difficult

Some things are just so difficult to explain that one just goes on with life, as best one can, unable to share their "different" experience of "normal" everyday activities. Some chronic conditions, even in their relatively moderate forms, can have the most devastating impact in terms of isolation; the combination of pain, sensory-overload - both auditory and visual (and the accompanying agitation and frustration) as well as an excruciating fatigue (caused by unrefreshing sleep patterns) are quite simply impossible to explain to anyone who has not been there and, together, they conspire to prevent much normal socializing!

Even when the worst symptoms are in some kind of remission, my coping mechanism has hardly returned to it's pre-illness state. There are times when, on a social outing, one feels they are going to explode in response to the immediate environmental activity - be it talking, music, lighting, or quite simply the presence of too many other bodies - then comes the difficult task of making one's "excuse" to depart early from the event.

Frequently I notice concerts, gigs, exhibitions etc that I'd like to attend but, I feel unable to pre-book ( even in my current reasonably well phase) as I'm never sure whether I will have the necessary physical and/or emotional stamina to cope come the day! Even when there's no requirement to pre-book, if an admission fee is involved it always seems an incredibly extravagant outlay bearing in mind that, in all likelihood, I will be ready to leave (unable to stay the course) whilst the event is still in progress. At the recent farewell party for the local vicar, it was amazing to be able to sustain concentration for that part of the entertainment I managed to cope with. My recent visit to Liverpool was a different experience altogether when I wasn't "up to" attending any of the exhibitions I hoped to see, or even dining out at a restaurant in close proximity to the inn where we were staying.

I am blessed in obtaining so much satisfaction from spending time in the garden, watching the avian activity, taking photos and videos etc., playing about on the PC, painting and writing as and when urge and stamina are in sync. I've become, in the process a contented homebird! On many occasions I'm able to manage a short walk but, even that activity has its own little idiosyncracies. This afternoon I took a little walk, at a somewhat slower pace than my recent norm; as I tried to speed up it seemed as if the lower limbs hydraulics were in serious need of an oil change; each movement required a conscious effort, as if I was required to lift my feet from some kind of cloying quicksand. And that was on, what had earlier seemed, a "better" day.

I have no desire to be a Moaning Minnie, it's just that I wanted to try and share something of that which I deemed, at the outset, to be impossible.

1 comment:

MelanieT said...

You, sir, are no Moaning Minnie. You are amazing and a wonderful inspiration to me! I don't know how you manage to keep up with all your blogging, websites, and so on. It boggles the mind!!