Almost like a miracle; at 6.45pm today, I actually managed to come down the stairs placing one foot in front of the other, rather than the crab-like gait which in recent weeks had become normality.
Walked out to the garden pond and, the air felt reasonably fresh; a marked contrast to the heat earlier in the day.
I am reluctant to place too much emphasis on the remission in either my knees or the atmosphere! Perhaps the fact that someone, outside of immediate family, seems to have taken my ailments seriously ... see yesterday's entry, "This Is The Day" ... has had a remarkable placebo effect!
ME
Thursday, July 14, 2005
Wednesday, July 13, 2005
This Is The Day
It's really amazing how much easier it is to advise and give assistance to someone else than it is to do the same for one-self. Tonight, with the visit of a young friend, just felt so good and constructive; it really was rather like one of the better housegroups I've belonged to, or run, in days of yore.
The day did prove rather 'overheated' as anticipated and, the decrease in the ponds volume of water is becoming quite marked. Helen's sister Janet visited, during the afternoon, and remained long enough for Helen's return and, delivered an electric pump which has already proved useful in reflating the Bush bop-bag!
Prepared a fresh trout pasta early evening, thoroughly enjoyed by ma belle et moi!
Helen returned with news of someone who may be able to help me with coping strategies for ME/CFS; I just have to remember to ask the trick-cyclist for a referral to her. Although I've been getting treated for depression for sometime now, despite the symptoms being totally atypical of those I'd experienced in previous bouts ... my good self-esteem and very brief spasmodic low periods seem to be more symptomatic of ME/CFS.
Helen has just allowed her head to hit the pillow and ... hey presto ... instant sleep. My problem is, when my head hits the pillow it's not unusual to feel more alert and, aware of various integral discomforts! Seems like we're an ideal complement to each other. Whatsoever things are good, such as my beloved, I shall think on these things! I rejoice in my good fortune!
The day did prove rather 'overheated' as anticipated and, the decrease in the ponds volume of water is becoming quite marked. Helen's sister Janet visited, during the afternoon, and remained long enough for Helen's return and, delivered an electric pump which has already proved useful in reflating the Bush bop-bag!
Prepared a fresh trout pasta early evening, thoroughly enjoyed by ma belle et moi!
Helen returned with news of someone who may be able to help me with coping strategies for ME/CFS; I just have to remember to ask the trick-cyclist for a referral to her. Although I've been getting treated for depression for sometime now, despite the symptoms being totally atypical of those I'd experienced in previous bouts ... my good self-esteem and very brief spasmodic low periods seem to be more symptomatic of ME/CFS.
Helen has just allowed her head to hit the pillow and ... hey presto ... instant sleep. My problem is, when my head hits the pillow it's not unusual to feel more alert and, aware of various integral discomforts! Seems like we're an ideal complement to each other. Whatsoever things are good, such as my beloved, I shall think on these things! I rejoice in my good fortune!
Early to bed ... not too early to rise ...
Awoke around 9.20AM, after an earlyish-to-bed night, to be greeted by the threat of yet another stifling day. Yesterday felt like I was sleepwalking for most of the day but, in this stupor, managed to salvage a decent lunch for Helen and myself as well as starting the process of illustrating my four most recent poems. The illustrated version [PDF] can be viewed on our geocities (luv4sinners) website!
Monday, July 11, 2005
Testing Times
What a contradictory entity my body seems to be. Ambient temperature ... in the words of Mr Porter ... Too Darn'd Hot; my appetite (for food) ... also at an all time high! Usually, my complaint has been that it's too hot to eat but now, it's hot so let's generate some more heat!
Already, I'm hobbling sideways down the stairs; somehow it's too painful on the 'unsprung' knees to go down the normal way. Occasionally I challenge myself to alternate the lead* foot but, that's far too insecure a mode of travel.
*[on this occasion I mean it in the 'leed' sounding sense ... like the foot in front ... but, the lower limbs frequently feel like Pb!]
A letter arrived this morning, from the Surgery, confirming that they'd received the results of my liver function blood test and could I collect the necessary envelope for another test in three months time. Currently I seem to spend a lot of time switching between routine Thyroid function and antibodies tests, routine blood count and now it seems as if liver function is joining the roll of honour! Sorry, I forgot to mention visits to the trick-cyclist and impending related clinics: psychologist, anger-management etc. Actually the temper hasn't manifest itself much of late but then, we've had very few unwelcome cold-callers at the door.
With my current low energy levels, the computer is a god-send; I can entertain and inform myself for hours without needing to travel too far.
Already, I'm hobbling sideways down the stairs; somehow it's too painful on the 'unsprung' knees to go down the normal way. Occasionally I challenge myself to alternate the lead* foot but, that's far too insecure a mode of travel.
*[on this occasion I mean it in the 'leed' sounding sense ... like the foot in front ... but, the lower limbs frequently feel like Pb!]
A letter arrived this morning, from the Surgery, confirming that they'd received the results of my liver function blood test and could I collect the necessary envelope for another test in three months time. Currently I seem to spend a lot of time switching between routine Thyroid function and antibodies tests, routine blood count and now it seems as if liver function is joining the roll of honour! Sorry, I forgot to mention visits to the trick-cyclist and impending related clinics: psychologist, anger-management etc. Actually the temper hasn't manifest itself much of late but then, we've had very few unwelcome cold-callers at the door.
With my current low energy levels, the computer is a god-send; I can entertain and inform myself for hours without needing to travel too far.
Women Bishops
I just can't believe that the institutional church is still divided about whether to accept women as bishops. The facile argument, given by an anglo-catholic priest on the programme currently showing on Channel4, is that a priest is an iconic representative of Jesus Christ and, surprise, surprise .. the aforementioned JC was made incarnate as a male! I think there's a good possibility he was also of semitic stock ... how can this priest live with himself, being an iconic representation of Christ when he's not a Semite. Come to that, how can anyone not born of a Virgin cast himself in such an iconic role?
Talk about airs and graces!
Talk about airs and graces!
Sunday, July 10, 2005
Life's Not Always A Breeze

Another humid, airless, cloying kind of day. Got to admit, although it may be nice to see the sun, it does my various minor ailments no favours. Later evening it becomes almost bearable to venture out, enjoy a sneaky wisp of breeze sat by the pond ... that's the theory anyway but, that hint of breeze seems rather elusive!
Good Morning Sunshine
The heat, or was it the "work", certainly took its toll on my sleep pattern! What pattern you may well ask? Alright, start again; the heat took its toll on my usual erratic sleep patten. Being extremely restless, when retiring shortly after the witching hour, my body and mind (in apparent co-ordination) decided to get out of bed for a hot drink, some nicotine and, a couple of hours web-surfing. The, (by now)normal, aches and pains, seem to have been exacerbated by the persistent ineradicable coating of perspiration.
Give me a few hours and I may even begin to feel awake, rather than the current trance-like state of auto-pilot typist! The discomfort, in the armpits and upper arms, does actually confirm that I am to some degree conscious!
Good morning sunshine!
Give me a few hours and I may even begin to feel awake, rather than the current trance-like state of auto-pilot typist! The discomfort, in the armpits and upper arms, does actually confirm that I am to some degree conscious!
Good morning sunshine!
Saturday, July 09, 2005
The Day's Bulletin
On emerging from a rather lengthy lie-in, quickly realised that it was going to be too hot to attempt one of my BBW's (brief brisk walks). From around 4.00 pm, it was nice to relax near the pond in the shade of a parasol & shrubbery. Around 6.30pm, actually tackled a modicum of gardening which at least provides some of the necessary exercise quotient. By the time I got back into the house my lower limbs were already feeling the strain, manifesting itself both in the leaden-ness of movement on the stairs and moderately sharp pain in each knee.
Further time on my feet was necessary, as I enjoyed preparations for tomorrows lunch. These days, I find cooking a wonderful creative outlet but, I must admit to not liking the heat of the kitchen.
Radio and TV news bulletins were, as expected full of the aftermath of Thursday's bombings; it must be horrendous for those people still awaiting news of friends and relatives. As my thoughts and prayers go out to all involved, I also remember all the suffering people in Iraq; the destroying or maiming of any human life is equally abhorrent no matter where, or who the perpetrators may be.
Further time on my feet was necessary, as I enjoyed preparations for tomorrows lunch. These days, I find cooking a wonderful creative outlet but, I must admit to not liking the heat of the kitchen.
Radio and TV news bulletins were, as expected full of the aftermath of Thursday's bombings; it must be horrendous for those people still awaiting news of friends and relatives. As my thoughts and prayers go out to all involved, I also remember all the suffering people in Iraq; the destroying or maiming of any human life is equally abhorrent no matter where, or who the perpetrators may be.
Friday, July 08, 2005
And So On With The Show
It's not often that I can admit to a good belly laugh but, this evening television did us proud. We even found one or two reasonable laughs in CSI (Crime Scene Investigation), the convention for people who enjoy dressing up as animals provided an intriguing background to tonight's investigation. Switch then from Channel 5, across to BBC2 for Grumpy Old Men ... that programme always manages to touch on several of my pet hates! Slightly later, on BBC1, the highlight of our evening was, by far, Ardal O'Hanlon on Jack Dee Live AtThe Apollo. I'd almost forgotten just how hilarious good stand-up can be; , it certainly leaves one with a welcome glow. What a gift, to see the absurd in the perfectly ordinary!
The lesson I've learnt is not to take life too seriously.
The lesson I've learnt is not to take life too seriously.
Excuses In Advance
Although, at times, the calf muscles felt more like sodden loo-rolls, once again managed to put in a slightly longer walk, this time to meet my beloved at the Acorn Centre. Other ailments include a severely aching right elbow, making it's presence far more obvious within the past twenty minutes or so.
But life tastes sweet and, I'm determined to make the most of it. Wonder of wonders, I even managed to arouse myself from my slumbers before 9.40AM. Is this a record? No ... not quite ... but I do feel quite righteous!
Maybe, if this 'improvement' keeps up, I'll soon be able to make use of my grandiosely named Studio and actually produce a few new paintings. It's bound to feel quite strange after concentrating recent efforts on computer graphics programmes. But ... you can hear the excuses creeping up on you ... if I get back to my painting perhaps the recent nudgings of the poetic muse will fade away. A muse is always hard to resist but, it is tempting at times to yell .. "get thee behind me!"
Strange, that I should already be preparing the excuses before the creativity has properly gotten under way. I look forward to reporting progress.
But life tastes sweet and, I'm determined to make the most of it. Wonder of wonders, I even managed to arouse myself from my slumbers before 9.40AM. Is this a record? No ... not quite ... but I do feel quite righteous!
Maybe, if this 'improvement' keeps up, I'll soon be able to make use of my grandiosely named Studio and actually produce a few new paintings. It's bound to feel quite strange after concentrating recent efforts on computer graphics programmes. But ... you can hear the excuses creeping up on you ... if I get back to my painting perhaps the recent nudgings of the poetic muse will fade away. A muse is always hard to resist but, it is tempting at times to yell .. "get thee behind me!"
Strange, that I should already be preparing the excuses before the creativity has properly gotten under way. I look forward to reporting progress.
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