Though still, of necessity, doing little that requires any degree of exertion it's amazing how full my days seem to be! My noblest intention of posting more regularly (to the blog) remains just that, an intention; perhaps I could blame the paucity of posts on not wanting to bore my readers but, that doesn't seem to have bothered me in the past. Perhaps the fact that my days seem to be 'full' is quite simply a reflection of my somewhat restricted stamina levels; had I a greater reserve of stamina then I would be able to fit much more into my days.
Never having been much of a sun worshipper, it's really quite amazing how much time I've been spending sat out in the garden during the current prolonged spell of dry sunshiny days. Parasols are regularly erected at the table in front of the bench, immediately behind our living room, and beside the love seat near the pond, to offer a degree of protection to this fair-skinned beauty. Even whilst sat beneath the parasol's shade I wear a hat, taking full heed of the advice I received when the basal cell carcinoma was diagnosed and excised from my back last year. The shade, proferrred by the parasols, seems to camoflauge my presence for the garden's avian* visitors which have quite frequently settled themselves down in much closer proximity to this human interloper.
An irritable, intensely frustrating, spastic colon has ensured that I rarely ventured far from house and garden in recent days, my most distant jaunt being to 'Open Church' at St Marks - approximately 10 minutes walk - for coffee and a chat. Even that little stroll could prove a little more difficult now that my back trouble (related to the herniated disc?) has flared up again; hopefully a combination of tramadol, ibuprofen gel, and a firm back support will keep that little problem in check. Fortunately, I seem to have regained an ability to concentrate on doing a bit of reading, in the past few days having read Tony Benn's 'Letters to my Grandchildren' and the first couple of hundred pages of Manning Marable's 'Malcolm X a Life of Reinvention'.
Recent bank holidays have meant that I have been blessed with a few more days basking in the company of ma belle Helen, life could hardly be better.
* more on the birds in the garden on my beloved's blog
***************
earlier today I posted a couple of snapshots 'must be a tea garden!' to Mal's Picturebox
ME
Sunday, May 01, 2011
Saturday, April 30, 2011
new web album - bloomin' spring 2011
I have just added a new web album of 60 photographs, Bloomin' Spring 2011, to our New Luv4Sinners website!
Friday, April 22, 2011
Thursday, April 21, 2011
pond life
the basking common frog in our garden pond this morning
Oh What A Night
It was another one of those, fortunately not too regular, nights of erratic and painful discomfort. As I needed to be up and about this morning, at a much earlier hour than usual, I decided to take a shower before retiring au lit. One (at least this one) would expect a late evening shower to prove an aid to relaxation and rest but, that wasn’t to be the case.
Firstly, my shoulders didn’t seem able to find a comfortable position whichever way I sought to settle down for some much needed slumber. Next the calf muscles kept tortuously spasming and, in next to no time a painfully aching lead laden hollow sensation in my left wrist and forearm colluded in the protest movement. Having applied my wrist support, to alleviate the agonizing discomfort, I felt ready once more to enter the land of nod but a rebellious body refused to comply with its own needs. That’s the point when the expletives came into play as I got myself out of bed and paced around the bedroom and landing.
On returning to bed my ribs and flesh felt as if they were disconcertingly trapped in a non-elastic skin whilst, simultaneously, an adequately loose fitting pyjama jacket suddenly felt unduly constrictive. PJ’s duly removed, I felt that settling down for the night would now follow just as naturally as day follows night; wrong again! Wilfully directed arms and legs flailed, this way and that, as comfort became a completely elusive goal. By 3.45am, still uncomfortably restless, I decided to take a couple of tramadol 50mg capsules and, within half an hour I began to feel much more relaxed and eventually managed to snatch an hour or two of slumber.
I suppose that, at the back of my mind, the prospect of having to emerge at 7.00am to insert a couple of suppositories, in preparation for a 9.10am appointment for a sigmoidoscopy at the District Hospital, wasn’t totally conducive to getting a good night’s sleep. On normal days, the period between 7.00 and 10.00am frequently proves conducive to some most refreshing rest; it’s almost as if an awareness of missing out (on this familiar luxury) had militated, somewhat perversely, against my taking advantage of more usual hours of nocturnal rest.
This morning, I was actually admitted to the consulting room a few minutes early and, much to my relief the sigmoidoscopy revealed no abnormalities but, an appointment has been made for me to undergo a full colonoscopy in one month’s time.
Sunday, April 17, 2011
... and RELAX (again)
Another afternoon in the garden, primarily with sun hat donned, relaxing in the shade of a parasol. Once again ma belle donned her gardening gear, on her return from morning worship, and has been tackling further border areas in an attempt to slow down the ground elder's rate of advance. Mid- afternoon I decided to load a wheelbarrow with the rich humus from the bottom of our compost bin and duly scattered it across the border that was yesterdays scene of Helen's battle against the pernicious weed (ground elder).
My body informed me that it was time to quit the exertion routine by the time I'd dealt with that one barrowload; I don't really intend to risk any dispiritingly excruciating post-exertional malaise. Relaxation is also the theme for the evening; having watched 'Songs Of Praise' with my beloved she then headed off to Hampsthwaite where she's taking the service this evening and, on her return, we'll probably switch on ITV for a bit of escapism compliments of "Lewis".
I rejoice and am glad in this day the Lord has made!
My body informed me that it was time to quit the exertion routine by the time I'd dealt with that one barrowload; I don't really intend to risk any dispiritingly excruciating post-exertional malaise. Relaxation is also the theme for the evening; having watched 'Songs Of Praise' with my beloved she then headed off to Hampsthwaite where she's taking the service this evening and, on her return, we'll probably switch on ITV for a bit of escapism compliments of "Lewis".
I rejoice and am glad in this day the Lord has made!
Saturday, April 16, 2011
and a little relief
As the week went on, my body cried out for an increasing amount of attention. Alongside the all too familiar muscular aches and spasms in upper and lower limbs, the spasms in the calves now accompanied by random painful twinges in the thigh muscles, my GORD (reflux) symptoms seemed to flare up once again, in spite of having resumed the double dose of ppi's.
A totally aching shattered tiredness has frequently caught me unawares mid-evening, my minimum twelve hours bed-rest per day (apparently) not serving to alleviate this excruciating fatigue in any way. At times, whilst (relatively) comfortably seated, a floating giddy headedness accompanied by peristaltic waves of nausea overwhelms me. It feels at times as if the whole ribcage is convulsively contracting and an examination by my GP, yesterday afternoon, confirmed much volatility in the abdominal region for which he has prescribed some anti-spasmodics as well as arranging for me to have a colonoscopy. I've got to admit that the combination of GORD and a spastic colon is not one that I would recommend.
Today has been a day of glorious sunshine and, I've spent several enjoyable hours sat beside the garden pond whilst ma belle pursued her task of clearing away some of the ground elder from one of the garden borders. Prior to that leisurely open air pursuit, we had both enjoyed watching "The Taming of the Shrew", shown as a tribute to Elizabeth Taylor - the chemistry between her and Burton is so wonderful to witness. And now, as I scribble these hasty words, we're watching "Elizabeth Taylor - A Tribute" on BBC2.
A totally aching shattered tiredness has frequently caught me unawares mid-evening, my minimum twelve hours bed-rest per day (apparently) not serving to alleviate this excruciating fatigue in any way. At times, whilst (relatively) comfortably seated, a floating giddy headedness accompanied by peristaltic waves of nausea overwhelms me. It feels at times as if the whole ribcage is convulsively contracting and an examination by my GP, yesterday afternoon, confirmed much volatility in the abdominal region for which he has prescribed some anti-spasmodics as well as arranging for me to have a colonoscopy. I've got to admit that the combination of GORD and a spastic colon is not one that I would recommend.
Today has been a day of glorious sunshine and, I've spent several enjoyable hours sat beside the garden pond whilst ma belle pursued her task of clearing away some of the ground elder from one of the garden borders. Prior to that leisurely open air pursuit, we had both enjoyed watching "The Taming of the Shrew", shown as a tribute to Elizabeth Taylor - the chemistry between her and Burton is so wonderful to witness. And now, as I scribble these hasty words, we're watching "Elizabeth Taylor - A Tribute" on BBC2.
Tuesday, April 12, 2011
as boldness dissipates
Last night, once again, sleep had no intention of meeting a need; for hours on end it refused to intervene in response to my bodies requirements, restlessness reigned supreme. As we moved into the mid-morning hours a familiar quandary returned; do I just rest here in the hope that much needed sleep will catch me out or, do I get up and put on a bold face as I struggle to stay awake.
The boldness swiftly dissipates as excruciating discomfort becomes the latest manifestation of tiredness; Malcolm the bold crumbles into Malcolm the wimp. By the time in the early afternoon that my physio arrives, for a chat and application of the magic needles, tears are ready to well up. The tears are sourced from a deep rooted frustration at the sundry disabling ailments that have plagued me over recent years and, the fact that they're such a cause of worry and concern for my beloved.
The boldness swiftly dissipates as excruciating discomfort becomes the latest manifestation of tiredness; Malcolm the bold crumbles into Malcolm the wimp. By the time in the early afternoon that my physio arrives, for a chat and application of the magic needles, tears are ready to well up. The tears are sourced from a deep rooted frustration at the sundry disabling ailments that have plagued me over recent years and, the fact that they're such a cause of worry and concern for my beloved.
Monday, April 11, 2011
normal service will be resu ... [repost from 'Mal's Murmurings']
this is … this … this is what … what it … what it feels … feels like … when the … the … the glands … lymph … something or … owww … in the armpit and … and the painful discomfort … … …. means that one … … has … has t … has to lock … aaargh … their arms … tightly … oh stuff this …
Saturday, April 09, 2011
a little p e m goes an awfully long way - and I just wish it would stay there!
The mood of thankfulness and rejoicing soured a little, come early evening. On a note of bubbly confidence I suggested, much to ma belle's surprise, that I might join her on the grocery shopping expedition; that was a mistake. No sooner had we stepped inside the store than a rather generalized sense of queasiness overwhelmed me; first thought was that it may be a panic attack but, my efforts to take slow deep breaths made little difference, the discomfort was of a distinctively physical nature and that's when my awareness that there is not a public loo in Waitrose was re-awakened. So home it was, a rather weepy - almost self-pitying - Malcolm headed back to the car to be chauffered home. I suspect that post-exertional malaise, in response to the previous days activity had finally kicked in. Shattered exhaustion, a feeling that my ribs had undergone a kicking - a deeply bruised sensation apparently emanating from inside the rib cage, and haphazardly spasmodic contractions of the calf muscles served to refocus my attention away from the earlier contentment to an obsessive awareness of my own discomfort.
By 9.30pm, a sense of excruciating tiredness left me with no other option than to ascend the wooden stairs. Things then took a turn for the worse, as a nauseating discomfort in both upper and lower limbs militated against the possibility of finding any posture that proved conducive to sleep. First I applied wrist splints to counter the intensely painful aching void which seemed to have taken over the position normally occupied by radius and ulnar. The attempted relief led to a further numbingly tingling sensation that on previous occasions it had served to relieve. A couple of hours passed applying and releasing wrist supports, all to little or no avail. By this time an aching tenderness emanating from (the glands in) the armpits necessitated the removal of my pyjama jacket. Sometime post-midnight I was able to grasp a few hours of intermittent sleep but my emergence into the new day was somewhat marred by a gut-wrenchingly painful sustained bout of diaorrhea.
As the day went on I began to feel somewhat more comfortable and, this afternoon, managed a little trip down to Brookside Nurseries before delighting in a little light pottering around in the garden.
By 9.30pm, a sense of excruciating tiredness left me with no other option than to ascend the wooden stairs. Things then took a turn for the worse, as a nauseating discomfort in both upper and lower limbs militated against the possibility of finding any posture that proved conducive to sleep. First I applied wrist splints to counter the intensely painful aching void which seemed to have taken over the position normally occupied by radius and ulnar. The attempted relief led to a further numbingly tingling sensation that on previous occasions it had served to relieve. A couple of hours passed applying and releasing wrist supports, all to little or no avail. By this time an aching tenderness emanating from (the glands in) the armpits necessitated the removal of my pyjama jacket. Sometime post-midnight I was able to grasp a few hours of intermittent sleep but my emergence into the new day was somewhat marred by a gut-wrenchingly painful sustained bout of diaorrhea.
As the day went on I began to feel somewhat more comfortable and, this afternoon, managed a little trip down to Brookside Nurseries before delighting in a little light pottering around in the garden.
Labels:
aches and pains,
health,
ME,
ME-CFS,
restlessness,
sleep
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