moments magic

The ache, the joy and pain of transience;

this morning I experienced

 that almost

 indescribable ache and joy -

a mystical moment -

 a Red Kite wheeled and soared

 over our garden

floodlit by a clear blue sunlit sky.

Within minutes -

 of the bird venturing further afield -

heavy grey clouds had swamped out the sunlight.

Malcolm Evison

No rest for the shattered!

Yesterday was the busiest day I’ve spent for a considerable period of time; our friends Roy & Jacqui visited us mid-morning for a little chat. The course of the conversation, over the next three to four hours, was by turns both intimate and challenging, and covered reflection on our sundry life experiences, matters of faith, healing, and the place and limitations of reason. The person of Jesus the Christ proved a central focus to this time of fellowship.

A couple of hours after our visitors departure, Helen and I headed off to the Acorn Centre, where Helen helps as a volunteer, for their Christmas Party. The traditional Christmas dinner was cooked to perfection, and the chef received a very warm round of applause just as he’d intended to sneak quietly away! We enjoyed a quiz which followed the meal; the fact that ours was the winning team probably added a little extra to our enjoyment, and we were then entertained by the music group whose enthusiasm always compensates for any musical limitations. After three hours my body was telling me it was time to go and, I felt quite shattered by the time we arrived back home.

Although I felt achingly tired, by the time I attempted to immerse myself in the duvet realm, an intense excruciating discomfort in shoulders, armpits and upper limbs generally, made it impossible to find a restful posture. My whole body was convulsively shuddering as I, repeatedly, failed to find an appropriately comfortable position. A primary distraction from this upper limb discomfort was my essential response to the, all too familiar, erratically spasmodic intestinal convulsions.

An additional dose of tramadol was called for, before a sufficient easing of the upper limbs and torso discomfort was found. Having got into bed at around 22.15hrs, I eventually found a degree of comfort by 01.45hrs but, even then, an overactive/over-stimulated mind ensured that I remained awake until at least 06.00hrs.

a wimp addresses the nation

To be perfectly honest, I’m not coping at all well; I feel like the A1 definition of a wimp. It’s the way a set of (quite minor) incidents so easily seem to form an insurmountable aggregate of frustration, that’s really getting to me.

A simple combination of orthostatic intolerance, intermittent excruciating muscular dis-ease, spastic colon and diverticular discomfort, shouldn’t in principle detract from a full enjoyment of life but, when they collude, the bastards do tend to get one down!

sorry 'bout this ...

For the past hour and a half, since about 17.30hrs, I’ve been divided between allowing myself to drift off to sleep or struggling to remain awake. It’s a regular occurrence mid to late afternoon to be fending off an excruciating fatigue, seemingly regardless as to the amount of sleep I’ve managed to grab the preceding night and morning; un-refreshing intermittent nocturnal sleep has just about been par for the course these past several years. Currently I’m sat with both wrists splinted in an attempt to alleviate an extremely discomforting ache in both hands and forearms, alongside a nausea inducing uneasiness in the armpits which requires me to squeeze the upper arms tightly in to the torso.

At least, today, I am not experiencing any submandibular aches and pain, nor is my spastic colon (or the diverticular disease) troubling me as much as it has done for the past several days. Even my lower limbs seem relatively trouble free.

Sorry, but current discomfort prevents any further keyboard endeavour for the time being …

Journeying On

The rather more upbeat days continued through to Tuesday of this week; I was even able to visit ‘Open Church’ on two successive days, Monday and Tuesday, for coffee and conversation. Admittedly, sundry medications still have their role to play as part of a general coping mechanism but, it really is great to feel rather more comfortable within my corporeal frame. At the conclusion of Tuesday’s visit I welcomed the prayers of Roy and Jacqueline that I may discern a readiness / preparedness for healing. As one who constantly strives to rationalize their faith, I have difficulty in accepting that simple spiritual gift.

Wednesday saw something of a setback in terms of muscular and joint pain but, more disconcertingly, painful intestinal grumblings (and hyper-activity) put paid to any notion of venturing beyond the confines of the house. Fortunately, recent positive activities have served to keep any acute sense of frustration at bay. By Thursday afternoon I was able to cautiously venture out to Café Culture and, I visited the café once again on Friday in the company of ma belle and Beth.

This evening I’ve prepared a casserole in readiness for Sunday dinner, a spiced chicken, mushroom and peppers casserole; even though I’ve had a healthy sufficiency of food during the day, this dish has certainly tantalized the tastebuds.

joyous participation

After the preceding rather downbeat post, it comes as something of a relief to be able to report a few days when low key socializing has become very much a part of the week’s routine. Opportunities to participate in quite sustained periods of conversation / dialogue, and a corresponding sufficiency of emotional stamina, have felt almost like little miracles.

It has been far too long since I was a participant, or felt able to participate, in such animated conversation on matters of faith, politics and general life experience. I feel greatly blessed in meeting R. and J. at ‘Open Church’, on Monday, and the subsequent conversation chez nous.  I’ve managed to find the stamina to visit Open Church on three occasions this week, as well as attending and contributing to a lively meeting of the local Labour Party branch and, thoroughly enjoying an evening meal with Janet & Graham at their home in Killinghall.

Wow, I almost feel exhausted by the realization that I’ve been able to manage so much this week.

For all of this I am truly thankful!

from Minor to the more mundane

Sometimes the desire to communicate "from" overwhelms the paucity of substance from which one may wish to communicate. At others, that very desire (to communicate) is thwarted by an insufficiency of physical and/or emotional stamina. I am, currently, undergoing a rather prolonged wilderness trek.

Whilst I observe nature's changing seasons, primarily in the context of our gardens flora and fauna, I'm reluctant to admit to my own ageing. Having already felt rather decrepit, for a considerable period of time, the next season for me hardly bears thinking about; much better that I skip a season and pray for Spring's renewal.

The furthest my adventurous spirit has allowed me to travel of late is 'Open Church' at our local parish church or, even closer to home, 'Cafe Culture' located within a few hundred yards of our front door.

 A somewhat spastic colon puts paid to any desire to venture further afield whilst sundry, at times excruciating, muscular aches and pains contribute little to any such desire. Discomforting armpit and submandibular tenderness, an erratically irregular sore throat, acid reflux and post nasal drip, are worthy daytime adjuncts to nocturnal restlessness, night sweats and unrefreshing sleep.

Life is never without its drama, as one may be instantly transported from a state of relative alertness to that of a shattering exhaustion.

psycho-fatigue

Yesterday, I wasted a morning by attending an appointment at the chronic fatigue unit. After an initial, fairly lengthy, chat with an OT I had to wait in a corridor until a social psychologist deigned to materialize.

When the psycho did emerge I felt that there was something lacking in the interpersonal skills department. She seemed determined to prove that all my problems, aches and pains etc., must somehow boil down to low self-esteem and/or money & security worries. Way off beam!

Having mentioned my problems in coping with bustling supermarkets, sensory overload etc. and, the need to sit down and/or get out into the fresh air, it seemed as if the wind in her tail was forcing her to posit an absurd hypothetical supermarket where I was unable to find a seat and there was no way out - how would I react? Obviously I wasn't going to waste my time answering such a ludicrous hypothesis and, after about the fifth repeat of the question, by way of a response I told her I was leaving and duly walked out.

Although I was quite calm, apart from not suffering fools gladly,she followed me out into the corridor stating that she didn't intend to cause me to have a panic attack; even if she had intended to, I'm afraid that she would have failed abysmally!

Having released myself from the duvet realm a good hour earlier than is my norm, in order to attend,and subsequently spending an exhausting 110 minutes in the department, I was relieved to escape from the Wessely-an lair.

of needles and needless worries

The physiotherapist called again on Wednesday afternoon, as promised, to administer a gentle treatment with the magic needles whilst I sat in a chair, rather than my usual supine position. At first I found it more difficult to relax whilst seated but, as I practised a few breathing exercises, I soon overcame this little obstacle. By the time the practitioner was ready to remove the needles I felt wrapped in a gently warm glow of relaxation.

On Thursday I felt even more achingly tired than usual; incidentally this kind of minor setback, on the day following acupuncture treatment, is quite regularly experienced by yours truly, the benefits usually start to be felt around 48 hours after the treatment. Although feeling totally shattered when I went to bed that night, multiple discomforts, in armpits, forearms and torso prevented me from getting any sleep before 3.00am and, even then it only visited me in brief intermittent snatches.

By the time I freed myself from the duvet realm, on Friday morning, I was surprised to feel reasonably refreshed, all the better to face another day of minimal exertion. In the afternoon I managed a visit to Café Culture with my beloved; this neighbourhood café, a few minutes strolling time from home, has proved a real godsend.

On Saturday morning we were anticipating an early afternoon visit from six Southerners plus our eldest daughter Beth. I’ve got to admit that the prospect seemed quite daunting. For the past several years, I have had great difficulty coping with any kind of claustrophobic hospitality but, in the event I needn’t have worried. For some reason (unbeknown to yours truly) I was on quite scintillating form; by way of a bonus, it was also the first full-day that I’d survived, for some considerable time, without having to resort to painkillers*.

It was only this afternoon that I recognized the latter achievement, as I passed an afternoon in state of totally exhausting shatteredness; this extreme discomfort is a far from atypical reaction to any previous days socializing, regardless of that activities duration or intensity.

* a sign that the acupunctures benefits had well and truly kicked in?

normal service may be resumed ... tomorrow

On Monday afternoon I was really looking forward to a visit from Helen A, the physiotherapist, who over the past few years has helped me with both pain management and a modicum of re-energizing by the skilful manipulation of acupuncture needles. It had been a considerable time since her previous visit and, my body was screaming out for some kind of miraculous intervention but, my guts weren’t prepared to have any of it. No sooner had she positioned the first couple of needles than an unexpected (and unrelated) excruciating spasm of the colon necessitated a change of posture, and consequently the abandonment of the treatment.

I’m unfortunately all too familiar with colonic spasms, and quite regularly have to take an anti-spasmodic medication but, the intensity of pain on this occasion was of an altogether different order. My eyes began watering as I gasped for breath; it felt as if someone had got hold of the intestine and knotted it as tightly as possible whilst somehow managing to wield a cat o’ nine tails thus granting themselves added sadistic satisfaction.

Suddenly, the tears came flooding out as I apologized for being such a wimp; as the evening progressed the abdominal disturbances began to settle down as the pains in the upper limbs started to demand my attention. Come bed-time, discomfort in both upper and lower limbs ensured that several sleepless hours would ensue.

The good news is that I’ve had a much more settled day today and, the physio will be calling later tomorrow afternoon to administer the healing needles.