ME

ME
Showing posts with label #moderateME. Show all posts
Showing posts with label #moderateME. Show all posts

Monday, August 19, 2019

A Fruitful Misery


Seems like I have a permanent ticket for a roller-coaster ride, not that I particularly requested or enjoy the experience! The journey involves states of physical and emotional health, by which I mean health shortcomings.Just as I’m getting used to feeling a dose of well-being, random pains and discomfort have a habit of leaping out to chastise me; whatever task I’m managing at that particular time, a throbbing burning pain in wrists, a sharper pain in elbows or, the nagging hollow bruised, nausea inducing, discomfort in the armpits strikes, calling an immediate halt to whatever activity is in process. (By activity I mean something akin to reading a newspaper or magazine, or maybe surfing the web on tablet or laptop: it is indeed only on very rare occasions that any of these activities are permitted as prolonged a period as thirty-minutes!). An added joy is the Damoclean sword of permanently imminent, frequently occurring, gullet, stomach and colon flare-ups.

More recently, the familiar neurological ailments have been partnered with an unrelated depressive anxiety. Some days I find myself in sudden floods of tears, concerning love, beauty and transience, fearing being alone and upset at the brevity of human life, especially as I’m now in my mid-seventies and, have become increasingly in awe at the amazing interdependence of everything in the whole cycle of life and, that nothing is wasted in nature’s economy. The primary cause of my current bout of anxiety is related to concern about my beloved OH’s impending aortic heart valve replacement operation. The operation will be of four hours duration, followed by a couple of days in cardiac intensive care then, four or five more days in the hospital.

This will be the longest period that we have been apart since our wedding over nineteen years ago. Apart from being my wife, lover, companion, confidant and chauffeur, she has increasingly become my carer. Whilst she’s in the hospital I won’t be able to visit her, owing to travelling involved. Since the onset of my chronic illness (moderate Myalgic Encephalomyelitis) even the, less than two mile, trip into town can prove emotionally and physically overwhelming, but ma belle will be in a neighbouring city some eighteen miles away. My (step-)daughters have offered to take me but, the prospect of such a journey makes me realize that I’d be in no fit state to be a bedside visitor (as I’d have to anticipate the ordeal of the return run).

A sizeable bleeding rodent ulcer (presumed basal cell carcinoma) has in recent weeks become an additional irritant and, I will shortly be attending an appointment in the dermatology dept of the District Hospital. Oh, what joys we are all heir too!

Monday, June 10, 2019

ill at ease and strange release


Strange as it may seem to some, my best, most refreshing, sleep frequently occurs after the returning daylight hours have become established. No matter how restless, torturous, or even relaxed the preceding bed-rest hours have been, any sleep attained after say 08.00hrs always seems to be the soundest. As for night’s, and when applicable daytime’s snatched sleep or rest, I have to admit that I feel truly blessed whenever I manage to emerge from the experience feeling properly ‘refreshed’, an event that may occur as often as one occasion in the week. How blissful it is to have temporarily overcome the phenomenon of ‘unrefreshing’ sleep.

After that rambling prologue, I now move on to today’s difference. Having retired to the duvet lair at 23.00hrs, last evening, I managed to snatch my first spell of sleep after 02.20hrs. By 04.10hrs I briefly attained a state of semi-alertness which was followed by intermittent bouts of sleep and waking alertness. At around 9.00am, my beloved took Piper out for his morning walk having first assured me that she would be back before 10.00am, a little earlier than my usual emergence from the bed’s hold over me. The reason for this assurance was the impending arrival of workmen at 10.00hrs to start work on re-vamping our downstairs loo.

I drifted back into the realm of sleep only to be startled back to the awoken world, by a stridently ringing doorbell, at around 09.30hrs; I hastily crawled out of bed, donned dressing gown, stumbled down the stairs and swayed giddily as I opened the front door. The workmen had arrived early, much to my beloved’s surprise, when she arrived back at 09.53, and very much to my weary annoyance. I returned very briefly to the duvet realm, before arising to a host of painful ailments affecting head, torso, upper and lower limbs. My mood, most definitely, was not of a very beneficial nature as I contemplated the prospect of minor additional exertion required to ascend, and subsequently descend, the staircase each time I required the loo during the next few days. Spastic colon and erratic bladder function conspire to ensure that the additional effort will be required on multiple occasions per diem.

As the stress of the situation took hold, simple misunderstandings rapidly amplified themselves into major crises; it didn’t take long before I found myself unloading a plenitude of expletives towards all other occupants, resident and temporary, of my immediate lebensraum.