ME
Thursday, May 24, 2012
Sunday, May 13, 2012
crash
just when I seemed to be bearing up well, a sudden shatteredness occurred - intermittently extreme discomfort in limbs & torso, aching eyes and ears, together with ultra touch sensitive back & shoulders - fatigue is the least of my worries!
Saturday, May 12, 2012
an eventful time
During the day on Sunday,
a bruisedly crushing sensation across the chest, radiating from proximity of
the sternum, coincided with shooting pains in my left arm. The latter
coincidence was the real worry factor as I’d earlier put the cause of the chest
pains down to indigestion.
The main problem is that I
frequently experience shooting pains in the arm but rarely, if ever, have they
coincided with chest pains. Early evening the chest pains returned, more
painfully crushing and making it difficult to catch my breath, whilst simultaneously
I suddenly felt cold (as the sun poured in through the window); it was almost
as if I could feel the blood draining from my face and extremities. I felt
totally achingly light-headed.
I knew that if I ‘phoned
the “out of hours” doctor, as soon as my age and chest pains were mentioned,
they’d be suggesting an ambulance. A short while later I headed down to the
hospital, with ma belle
chauffeuse, and the rest is history.
Having taken an ECG and a
few phials of blood, I was duly informed that they would be admitting me
overnight, for monitoring, and a further blood test would need to be taken
twelve hours after the last bout of pain. The second lot of blood was taken at
around 5.30am when I was informed that the consultant wanted me to have a chest
X-Ray. I was wheeled down to the X-Ray department shortly before 1.00pm and, as
all the tests proved negative, discharged when ma belle came to collect me at
1.40pm. I must say that the lunch I had on the ward, in contrast to my previous
hospital stay, was really good, roast turkey with mashed and new potatoes,
stuffing, beans and swede.
**********
Tuesday was ma belle’s
Birthday and Cathy (my younger step-daughter) treated us, together with Ken (her
partner) and Beth (my elder step-daughter), to an early evening meal at Luigi’s.
Much to my surprise, having had a restful couple of days, I was on sparkling
form (as the long lost demon once more found his rightful place on my shoulder).
Wednesday evening we had
an “at home”, a further celebration of Helen’s birthday, when people called in
any time from 6.00pm to around 11.00pm. Apart from a little socializing,
videoing & snapping the event, I also allocated myself the function of wine
glass filler & head washer up. I almost managed to overlook my familiar
aches & pains midst all the distractions.
Much rest became the
overarching theme of subsequent days but, I’m here and enjoying the company of
my beloved as always.
Wednesday, May 02, 2012
Woes and Gratitude
It’s
becoming increasingly difficult not to sound like a moaning wimp. It isn’t that
I feel much worse than has become my familiar norm and, I’ve frequently
experienced more excruciating aches and pains than at present, but it’s an overall
sense of feeling ‘off-colour’ that nags and gnaws at me for at least half of my
waking hours.
It’s
almost impossible to get used to those times when one suddenly experiences a
cloying, gut-wrenching, nauseating giddiness, and sudden change from warm to
cold skin as the colour can almost be felt draining away from ones face.
Sometimes the overall sense of queasiness persists for only a few minutes,
before the healthier glow returns, at other times the period of dis-ease is
much more prolonged.
The
spastic colon & diverticular disease randomly asserts itself, with little
regard to whether I’ve maintained a regular dose of anti-spasmodic pills
(mebeverine) but, fortunately the ppi’s (lansoprazole) function reasonably well
in curbing the worst excesses of gastro-oesophageal reflux (although there are
some days when, come bedtime, I still require a dose of antacids.
On a
positive note, I’ve suddenly realized that up to this point no mention has been
made of the painful aches in the upper limbs (not infrequently emanating from
the armpit) as these are currently adequately controlled by doses of tramadol.
So, I conclude on a note of gratitude once again; if only the flow of thanksgiving
could overwhelm the woes that flesh is heir to!
Monday, April 23, 2012
ME - my body - a little moderation
Reduced my hours ensconced
in the duvet lair to the usual twelve (last PM – this AM) but, as is far too
common, I didn’t feel much refreshed as I emerged into the mid-morning grey.
Muzzy head, sore throat and lower limbs feeling rubbery leaden, I didn’t even
contemplate venturing as far as Open
Church this morning, so I
restricted my exercise to a faltering stroll to the local bakery to collect our
wholemeal loaf.
Once I’d decided on the
bakery goal, I popped a fully stamped up Café Culture loyalty card in my pocket,
to claim a free drink on my way back to the house; such was my clarity of
thought and intention that I walked straight past the Café on both outward and
return journeys, forgetting to claim myself a treat!
The hours hung most
heavily by mid-afternoon as I drifted into a somewhat discomforting
intermittent nap; an hour spent in this condition felt like an eternity of
awakened drudgery. At this point my old familiar pains in upper limbs, from
armpit to wrist, kicked in once again but were alleviated reasonably quickly
with 100mg of tramadol.
Overall though, I can’t
complain as I’ve frequently had much worse days than this and, I remain
grateful that I’m only a moderate
sufferer.
Sunday, April 22, 2012
Stormy Weather
My
most recent flood of tears almost put the current downpour of rain and hail to
shame. A prolonged wearily exhausted phase of being has not always been easy to
cope with; even an almost constant bruising constricted sensation across chest
and upper abdomen fails to overwhelm the spasmodic aches and pains in the upper
limbs (apparently emanating from the armpits).
Having
emerged from the duvet lair, some thirteen hours after retiring thence, I went
downstairs to prepare a chicken, peppers and mushroom casserole for dinner, as
well as parboiling some potatoes in water infused with my special blend of
herbs and spices. By the time the initial preparations were done I was ready
for another rest; I duly retired to the lounge and enjoyed watching our avian
visitors in the garden. Goldfinch, coal tits, blue tits, house sparrows,
blackbirds and wood pigeons all vied for my attention.
After
lunch we transferred some video footage of Wesley Chapel’s Anniversary and
rededication service, from 1994, to DVD. It was good recognizing some old
familiar faces in choir, congregational pews and pulpit, and it’s especially interesting
as that is now Helen’s home chapel, just as it was for my parents in their
later years. As I finalized the DVD a fascinating Human Planet documentary, which
had just started on BBC1, captured our attention.
We
both enjoyed watching the Senior School Choir of the year semi-final and, the
three choirs chosen to go through to the final coincided with our selection.
Shortly after that programme had finished my problems began; as I sat down
following a visit to the loo I suddenly found myself breathless as my chest and
abdomen felt as if they were being held in a vice and, I felt my colour drain
away (the pallor duly observed by my beloved) and felt very nauseous. The
crushing aches and pains were vying for attention everywhere from shoulder,
through the torso and down to the lower limbs. As I gasped for breath, the
tears began to flow and I felt terribly afraid, just feeling totally terrible.
The tears flowed for at least twenty minutes as the sundry symptoms became
unbearable.
I
am just relieved to feel normal (with my old familiar lower level aches and
pains) once again. as I sit and enjoy the company of my beloved!
Thursday, April 19, 2012
it's just another day at Mal's Factory
What was to be a new blog post, just another day, turned out to be a poem. It can be found on 'Mal's Factory'
Monday, April 09, 2012
of spoonie normality
Each time I’ve set out to write a blog post, of late, an insufficiency of either/and/or physical, intellectual or emotional stamina has managed to suppress the desire. That statement gets me to thinking, once again, of normality; when ones reserves of stamina, or effects of sundry aches and pains, are totally unpredictable (not only one day but even one hour to the next) what kind of criteria should one apply in order to define a normal day?
Contrary to the hopes and wishes implied at the close of my “much ado about little” posting (24 March), a considerable degree of payback was evident in the succeeding days. The most positive thing I can say about the excruciatingly shattered low days is that they enable me to appreciate, albeit retrospectively in some cases, the goodly number of better ones that I am blessed with!
Sunday, April 08, 2012
Thursday, April 05, 2012
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