Having just watched and enjoyed Frankie Boyle's Election Autopsy on BBC iPlayer, I thought I should share Akala's contribution to the programme:
ME
Sunday, May 24, 2015
Thursday, May 14, 2015
From Storm to Calm
That all too familiar nausea producing tenderness
of lymph nodes, particularly axillary & cervical, has returned; the accompanying
discomfort frequently seems to precede a more acutely throbbing pain in the
upper arm.
Wrist splints and supports, tubular bandages, elbow
supports and tramadol are very much in demand at the moment. Omeprazole,
mebeverine, and mometasone fuorate seem currently (but hopefully only
temporarily) rather less effective, in tackling reflux, IBS, diverticular
problems, and rhinitis.
Quite frequently, a variant (as opposed to my more
regular nocturnal tradition) of restless leg syndrome seems to take control in
the hours out of bed. As I arise from a seated posture, it feels as if I have
to make a conscious effort to issue the necessary commands to my lower limbs,
to ensure they travel in the intended direction, rather than making a random
displacement / detour, and assuring them
that they’re quite capable of supporting my torso.as I move across the room.
Even quite minimal exertion seems to take a
disproportionate toll on my shattered constitution. I don’t think I’ve become
more lax in ‘pacing’, but rather that my stamina reserves have diminished somewhat,
over the years, from their already low plateau.
Apart from the foregoing minutiae of my current
state of unhealth, I still feel rather blessed that I have a roof over my head,
food in the larder, and other home comforts, but, the real icing on the cake is
the love that I share with ma belle Helen. Love is such an amazing thing, a
symbol of transcendence in a world dominated by the forces of greed.
To life and love, I raise my glass.
Sunday, April 19, 2015
jet powered fluttering
I love these bright sunshiny Spring days; I was going to say mornings but, by the time I have
manoeuvred myself from the divan, and into daytime apparel, ante-meridian is already veering toward
the post component of the day. At
this time of the year I’ve at least got a few more daylight hours to
appreciate, even when the body achingly summons me to an afternoon nap.
What I don’t like about these bright days is the
omnipresent temptation to do a little pottering about in the garden. Don’t get
me wrong, I loved gardening when it didn’t have a payback clause attached, whereas now it’s far too easy to forget
the limited number
of spoons available.
When I succumb to the garden’s lure it so easily
leads me to forget about “pacing”. My beloved is always good at reminding me to
slow down, or stop, these times of physical endeavour, especially when I’m
enjoying the change from my otherwise sedentary
lifestyle. Actually, much of the time, the word sludge seems more appropriate than sedentary to express how this mode of being feels. Yesterday a
short time spent mowing the lawn, albeit using an electric mower, seemed to
have used up most of my 24 hour stamina supply.
It’s always wonderful to hear the buzzing hum of
the bees, both bumble and honey, as I walk past the heather laden rockery
towards the wildlife friendly reserve at the far end of the garden. Primroses
and cowslips are thriving and the nettles are springing back to life; the
chatter, piped and fluted songs, of our avian visitors make an idyllic
background as I move into reclining mode in the summerhouse.
Even the
fluttering butterflies seem like jet propelled aircraft in comparison to my
enforced lethargy.
Labels:
blogging,
bumble bees,
garden,
honey bees,
mowing,
pacing,
pottering about,
reclining,
spoonie,
spoons,
Spring,
sunshine
Monday, April 13, 2015
just so story - zambalouked
absolutely
zambalouked - that's it - zambalouked; there's no other word for it, it's
indescribable without its forbears, and the whole interminable history of signs
and symbols encountered en route.
First we
had that dance routine, it starts with the knees this time. A dull throbbing
ache vibrates through shins and sets the feet in motion. Next it's the wrists
that ache, a slow burning fuse that sets the heavy upper limbs in discomforted
motion, and then the nausea begins.
Elbows
insist the arms must stretch, release the terpsichoreal spasms that shudder
down from the armpits. Turn onto belly, cross arms behind the pillow, stretch
legs and hook toes over the mattress end to stop their flailing burn.
*******
Do you
know that, this time, I thought I'd gotten away with it.
Nice
bright weather coaxed me out of my cocoon, just a little light weeding here, tack
down some mineral felt there. Can't have been more than a couple of hours
exertion spread across two days.
Then
there was the modest change of 27litres of water from the 180litre aquarium, 3
buckets full either way, and that's my exercise!
I
wallowed in that grand illusion; this time no payback. Guess what ...
*******
A couple
of days later the nocturnal dance followed by this achingly shattered, confused
emptiness, a totally zambalouked experience. Absolutely zambalouked, that's all
I've got to say!
Entranced
by the strangest zambalouk.
Sunday, April 05, 2015
Tuesday, March 24, 2015
Of genuine woes and fraudulent transactions
Today provides one of those
unusual mornings, at only 11.45 I feel almost awake; a rare instance indeed!
Just over a week ago I intended to write a posting, more a catharsis for me
than a word for others, but an intolerable lethargy weighed far too heavily. My
scribbling that day went as follows :
“And wimpishness knows no bounds, the tears flow
freely, the sinuses discharge an uninfected load as earth’s rotation slows
right down A flood of fear and selfishness combines
A flood of fear
And selfishness
Knows no bounds –
The tears flow freely
And sinuses discharge
An uninfected stream
Of hopelessness …”
My brain seemed blocked; no
words would flow until, some twenty-four hours later, the above emotion
transmogrified into the following doggerel:
Dog
Errol
but
when
there’s
more
to
follow.
Rain
never follows
an
unending drought.
If
once a mouse
should
catch a cat
the
fox would say
I
smell a rat
Whereas earlier in the year, despite all too familiar aches, pains, and
wooly confusion, I managed to remain quite upbeat, by early March my reserves
of emotional and physical stamina had fallen from their quite low plateau. Even
the most modest exertion seemed to wipe me out. It was as if I had to make an exhausting
conscious effort to persuade my legs to move in the right direction, as I
ventured out into the hallway; this would occasionally be followed by a
strenuous mental effort to remember why I’d headed there in the first place.
Earlier today it seemed as if the sun would make an appearance but, as I
turn back towards the window, hailstones are flailing down from the heavens,
their rebound, as they leave the ground, makes mockery of my prevailing
inertia.
No sooner had I jotted down the previous paragraph than the sun, in full
glory, burst through the residual cloud cover as grey skies turned to blue. The
swiftness of this transition would be hard to believe were it not experienced
first hand by one’s own senses. So, you may add, “your senses are working, even
if much else of your corporeal being seems to be giving up on you. Why don’t
you stop moaning?” the latter question I’ve frequently asked myself but, it’s
far too easy to succumb to more negative attitudes when your feeling several
degrees below an iffy par.
*********
A gum infection, and accompanying toothache, really set me back and, as
is its wont, the worst flare-up occurred on a Friday night and the dentist doesn’t
work at weekends. Strangely, the pain seemed to emanate from beneath a crown;
intellectually this made little sense as I knew that tooth had been root-filled
many moons ago. The worst of the pain then presented itself under a wisdom
tooth; when I had an emergency appointment with my dentist she noted that I
nearly went through the ceiling when she tapped the offending tooth. She duly prescribed
a course of antibiotics to combat the infection, halfway through which the pain
seemed to have magnified, and with my somewhat iffy immune system sundry
familiar ME symptoms returned to bite me, affecting my balance, brain fog,
aching muscles, chronic IBS and diverticular disease symptoms seemed to think
it was carnival time; they rejoiced as I slid further downhill.
I was feeling so dreadful that when I realized my beloved was going to
visit her brother, and would be away overnight, the floods of tears mentioned
at the beginning came into play. My only utterance, through my wimpish
blubbering, to ma belle was that I was afraid that I was going to die alone.
Matters weren’t helped when an early morning ‘phone call wakened me from
my fitful slumbers on the morning of ma belle’s departure. The call was from a
credit card company suspecting there may have been a “fraudulent use” of my
credit card and, I must contact them on an 0845 premium number. I went
immediately to saynoto0870.com where I found an alternative number to contact
card services. Just as well that I used a free number as I was talking to (or
being talked at) the bank for 40 minutes when palpitations and breathlessness
took over. My beloved fortunately had not yet set off, as she had to take over
the conversation from me.
The annoying oiks on the banks end of the phone line endlessly repeated
the same questions re a gambling website that I’d never heard of and had I made
a £500 payment to that site on that morning. Although they acted on the basis
that a fraud had been committed, somehow this payment had been accepted and
would appear on my next statement. They then explained that in a fortnight they
would be sending me a legal letter which I would have to sign to say I had not
made this payment. The attitude of the people I spoke to left much to be
desired, especially when dealing with people who have a chronic debilitating
health condition. I was definitely made to feel that I was a prisoner in the
dock being grilled by a particularly abrasive prosecution counsel.
The card was only renewed earlier this month and has never left the four
walls wherein I live, breathe and have most of my being! It had only been used
a couple of times online at companies with whom I have had regular secure
transaction completed via a “verified by” security check so, one can only
surmise that there is somebody either at the bank or one of these companies who
has filched my card details.
Sorry for such a sustained moan but, it only serves to illustrate my
roller-coaster ride.
Labels:
'phone calls,
0845 numbers,
aches and pains,
balance,
banks,
brain fog,
card fraud,
commerce,
diverticular disease,
frustration,
health and wellness,
IBS,
insensitivity,
ma belle,
ME,
moderate M.E.,
toothache
Sunday, February 22, 2015
the wonder of chilled silver
Two new poems CHILLED SILVER and WONDERMENT have been posted on my Mal's Factory poetry & prose poem blog.
Sunday, February 08, 2015
Thursday, February 05, 2015
Saturday, January 31, 2015
Revivified on Mal's Factory
I've just posted a NEW poem on Mal's Factory - 'The Yo-Yo Man' a rough draft of which had lain dormant on my hard-drive since 2006
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