A Step Forward

Last night I managed to attend a Labour Party branch meeting, the first time for some months.  Colin Burgon’s most stimulating, inspiring and entertaining speech, “What can the Left learn from Venezuela?”, was followed by a lively discussion. A chance to replenish our glasses, hand-pulled ales being a rare treat for me these days, was followed by the more routine branch business. And, as if that wasn’t enough, I even managed to stay for some post meeting conversation.

Earlier in the day, I’d been seriously wondering whether it would be yet another occasion for me to proffer my apologies. After 13 -14 hours of bed rest / restlessness, it  had required a tremendous effort of both willpower and physical stamina to remove myself from the duvet lair. The gamut of emotions and felt body temperature was extremely broad, both limbs and torso felt shudderingly cold during the first hour or so, applied hot water bottles making little apparent difference. After two discomfortedly restless hours, au lit, the situation had reversed as perspiration oozed from head, torso and limbs.

Cramping pains in the left upper arm, spasmodically accompanied by aches across the upper chest and both shoulders, and a painful tenderness under the chin, conspired along with abdominal bloating to ensure that sleep remained a distant dream, or vain hope, for the next few hours. The gnawing spasms in the left upper arm persisted well into my ex-bed waking life.

Having experienced that degree of dis-ease in the preceding 20 hours or so, it came as a pleasant surprise to be able to participate in the LP meeting. Today I’m experiencing a little payback, a tawdry collection of gut-wrenching abdominal grumblings, searingly painful sinuses, aching limbs, jangling nerve ends and, an underwhelming sense of exhaustion. In terms of morale, the meeting / socializing experience, on this occasion, far outweighs any consequent additional discomforts.

refreshed ... ?

Wow, it’s already 17.30hrs and I’m just beginning to feel awake. Having slept quite soundly, albeit intermittently, retiring au lit shortly after 22.00hrs last evening and emerging from the duvet lair at around 11.00hrs this morning, I should have felt refreshed, right! Truth be told, I can’t quite remember when I last felt refreshed / really awake during any morning or afternoon but, things have got much worse since I started taking the amitriptyline.

Had a telephonic conversation with the duty doctor this afternoon; “Mirtazapine, Amitriptyline and Tramadol, they’re all sedatives”, he says. I explain that I’d only just taken a couple of tramadols today, only resorting to them when absolutely necessary. I suggest that maybe I should ditch the mirtazapine but, he thinks that’s a bad idea and comes up with the suggestion that I take it in the morning (instead of the evening) and just take half an amitriptyline in the evening.

The experiment continues …

Two New Poems on 'Mal's Factory'

I've posted two new poems - "SHATTERED" and "3.00am message to myself" - on 'MAL's FACTORY'

False Hopes

Regular readers may have noted my problems with exhaustion and a corresponding lack of refreshing sleep. Much of the time it has not been quite as simple as lack of refreshing sleep, more a lack of sleep (full stop). Out of my current average twelve hours bed rest requirement, a good night’s sleep could be as little as three and a half hours. It’s commonly said that as one gets older they require less sleep but, in my case, when it comes to the amount of bed rest required, this has most markedly increased.

In my youthful heyday the nights when I spent as much as eight hours abed (during the working week) were very much the exception; any hours in excess of this on non-working days were most definitely a pampering luxury, rarely a necessity as they are now.

I have been finding relief from some of the daily aches, pains and spasms, through a combination of tramadol, ibuprofen sundry orthopaedic supports; unfortunately, this still doesn’t prevent intensely discomforting pains interfering with my desire, from a state of shatteredness, to get some sleep. On such occasions, even lightweight pyjama jackets and / or trousers feel like intensely constrictive pain dispensers in their own right.

A couple of months ago the GP put me on a small dose of (the anti-depressant) mirtazapine in the hope that its sedative effect would help me get some shuteye. For a week or two it certainly seemed to be helping, even though it could still take a good couple of hours of excruciating tiredness before mind and body yielded to the land of nod. Some of the more intense pains in the region of the armpit and upper inner arm persistently nagged me back into a fully wakeful state. The doctor has now added an additional anti-depressant, amitriptylene, to my evening medications primarily for its supposed analgesic effect.

Having benefitted from a couple of pain-free, almost completely restful, nights my hopes really began to build up. Yesterday, having taken a couple of tramadol late morning, I felt no need to take further painkillers for the rest of the day, simply taking the mirtazapine and amitripylene in the evening. What followed was the most agonizingly painful sleepless night; admittedly it wasn’t helped by the highly amplified sound pulses emanating (until 2.30am) from a private party a couple of blocks away. A fair bit of time was spent stomping and cussing around the bedroom and landing, experimenting with wrist, shoulder and elbow supports, as well as consuming a couple more tramadol. The pain eventually began to ease by around 4.30am but, my mind was (by then) far too active to permit me any slumbers. Thankfully, by mid-morning I attained some brief, dream-filled, spasmodic patches of slumber.

I am attempting to retain a degree of hope that the recently prescribed medications will eventually fulfil their prescribed function but, it feels rather like a hope against hope!  

*********

since my previous post I have added a few more snapshots, 'the fuschia is present', to 'Mal's Picturebox'.

Of (Arm)Pits and Pendulum

A private resolve, to refrain from further postings until I felt more upbeat (on the health / well-being front), has now dissolved; I’m afraid that you’ll just have to take me as I am! I have no particular desire to be / become a moaner but, nor do I see any point of omitting mention of the sundry aches and, occasionally searing, pains ones flesh is heir to. For good or not so good, I am the result of all my life experiences whether chosen by or imposed upon me.


You may have previously gathered that this has not been one of my better years, any kind of relapse is unwelcome but, I still remain grateful that I have not had to plumb the most excruciating depths this wretched illness (M.E.) can deal out. I am most fortunate in only being a moderate sufferer but, even that moderation has at times proved quite intensely disabling.


And now, for the fifth or sixth time in as many days, I return to this same page in ‘Word’ in the hope that a sufficiency of stamina and a release from having to clasp my upper arms tightly to my torso (to alleviate the intense discomfort emanating from my armpits in normal free flow positions) may coincide to enable the completion of this posting.


The sharp nauseating ache and throb in the armpit is a tactile equivalent to chalk “squealing” across a blackboard. At other times an unexpected sound, not even necessarily of sufficient decibels to call a noise, can seem to sear through my flesh and crush the ribs. It’s almost as if my nerve-ends, in attempting to tread carefully on eggshells, all too startlingly draw ones attention to their own discretionary priorities.


I must admit to some uncomfortable guilt feelings in, once again, being / feeling unable to contemplate a few days away whilst my beloved has a break from work; to be honest, I even have to steel myself to cope with trips out to locations within ten or twenty minutes drive from home.


On the plus side I did manage a visit, with ma belle, to a local garden centre on Thursday and, we really enjoyed a visit to ‘Brio’ for a delicious meal yesterday afternoon. In the evening we immersed ourselves in Almadovar’s movie ‘All about My Mother’ which we’d recorded from Film 4. At lunch time today, accompanied by Cathy, we popped around to Café Culture for a little light lunch before returning home to wallow in the emotional riches of ‘Toy Story 3’.

The Pond Refreshed

Just a little celebration of our freshly cleared and cleaned goldfish pond!

Let It Bee

just a few busy bees in a corner of our garden

snapshots on Mal's Picturebox

I've just posted a few macro snapshots of bees on a globe thistle, Close Encounters - (Bees on a Globe Thistle) on Mal's Picturebox.

where to begin

Just another typical morning; cup of cold coffee on the bedside table, clock radio spewing out a familiar mix of entertainment and banality and, I’m still abed, even though the ante-meridian hour has passed eleven!

Today’s the day I’m to visit my GP to check whether the medication, which she prescribed three weeks ago, is assisting me with sleep. Problem is, after the first couple of nights the familiar routine of restlessness, coupled with fitful brief snatches of slumber, still prevails. Most of the time, after a predominantly restless night, I’m drowsily awake around the time my beloved leaves for work (around 7.30am) before drifting off into the land of dreams. The period of drowsy wakefulness is, generally, when my beloved places a (hot) cup of coffee on the bedside cabinet [see opening paragraph].

For all the intermittently fluctuating pattern of sleep, my vividly Technicolor dreams frequently veer towards a nightmare scenario, one where the goal always slips from one’s grasp as one runs, walks, or crawls desperately towards it; walkways erode and crumble beneath ones feet, a doorway inevitably narrows just as you attempt to squeeze through, a bus departs just before you reach the stop. Normality and fantasy indelibly intertwined.

Sundry muscular and abdominal aches and pains, doubtlessly, contribute towards my fitful sleep, as well as the frustration of my daytime hours. I shortly go and see the doctor but, where do I begin? Suddenly I realize the appointed hour has arrived and, walking stick enabled / encouraged, I make my way to the Surgery.

On being called in to the consulting room, Dr D makes me feel immediately at ease. She notes the spinal related nerve pain in my left arm but, is more intent on finding out about my sleeping habits; meantime, a regime of occasional ibuprofen alongside the tramadol should be maintained to alleviate the sundry aches and pains.

The GP has suggested that I should try taking the mirtazapine at around 6.00 – 6.30 in the evening. The thinking goes that, as I’m really drowsy in the mornings, the mirtazapine is probably contributing to the drowsiness and, if taken earlier (than is normally suggested) it may well help induce sleep during the appropriate nocturnal hours. The doctor suspects that the dreams may well have been heightened by the medication but, that should settle down in due course; she also said that she would be contacting Julie at the Chronic Fatigue Unit, with a view to my having a refresher course to help me with my “pacing”.

the process of aging?

So, it's come to this; old age has got me firmly in its grasp and, I lack the stamina to even attempt to wriggle free!Recent weeks have borne witness to a severe deterioration in my sense of dutiful pride. My old familiar shattering aches, pains and nauseating sense of exhaustion has driven me to .... ! 

Pride still has a hold, on me, as I struggle to prevent the awful truth being broadcast far and wide but, it's no point trying to live a double life, the strain is just too great.

The honest truth is that I've been driven to watching daytime TV and, all I plead for is a little sympathetic understanding! 'Bargain Hunt', 'Doctors', and re-runs of 'Only Fools and Horses' have managed to fill the aching void of inactivity with a modicum of determined purpose. If I can't work up the enthusiasm, or find the necessary energy reserves to purposefully surf the net, tend the garden etc.; at least the vacuum can be filled by my determination to switch on the television over the lunchtime period, starting from a period frequently less than one hour after my emergence from the duvet realm.

The truly worrying factor is that, not infrequently, I'm actually enjoying the viewing experience.

Since last Christmas, I seemed to have had some of my appetite for reading restored, politics, biography, theology, as well as a modicum of fiction once more became a part my daily experience but, for the past few weeks, my stamina reserves have only allowed (primarily superficial) casual browsing. I tend to place some of the blame on the warmer weather, which has a knack of depleting my already limited reserves of stamina but, I can't help wondering if in fact the real culprit is Father Time.