ME
Monday, May 27, 2013
JUVENILES - house sparrows and starlings
Just a few of the juvenile house sparrows and starlings at the feeders in our garden
Sunday, May 12, 2013
On Time, Joys, and minor Tribulations
I’ve asked it before, and
it’s equally puzzling now but, just where does all the time go? I’m not talking
physics or metaphysics, but rather that constant source of bemusement - to
yours truly - that hours, days, months and years all pass so swiftly that I’m
unable to find the time to even get started on any of the multiple tasks or
projects I’ve been considering.
I deem myself very fortunate
that I can still manage to appreciate, with an almost constant sense of wonder,
that there is something rather than nothing; I still feel quite awestruck when
I gaze at the panoply of stars in the night sky and contemplate the vast
distances and time through which these illuminations occur. I am always amazed
by the sheer variety of flora and fauna even within the constraints of our back
garden.
It was wonderful to
experience a few days of sunshine, and reasonable warmth, after the somewhat
protracted spell of wintry weather; I even managed to do a little pottering about
in the garden and extracted, with the aid of a PondVac, some of the aromatic
mud deposit from the garden pond.
I also enjoyed
sitting and relaxing outdoors observing
the avian activity. On one afternoon, having just watched a Red Kite gracefully
riding the thermals above our garden, I noticed a few Redpolls visiting the
Nyjer seed feeder – a first for our garden!
Last Thursday morning I
attended the dermatology unit at Harrogate
District Hospital
for some minor surgery and, after several hold-ups en route, it was wonderful
to get into the surgery on time. The whole procedure, preparation for and
excision of a basal cell carcinoma from my chest (up towards the shoulder) and
a biopsy sample taken from a lesion on my leg, took around forty-five minutes.
Unlike the time a carcinoma
was excised from my back, when the dressing was kept in situ for several
days and the stitches removed after 14 days, on this occasion I was told to
remove the dressing after twenty-four hours and the ten external stitches to be
removed after 10 days but, the one stitch on my lower limb is not be removed
until 14 days have passed. I have to treat the wound two or three times a day
with soft yellow paraffin which tends to adhere to my shirt or pyjama jacket.
They also provided spare dressings for the small leg wound which is also
protected by a tubular bandage from toes to knee.
I must admit that the
chest/shoulder wound still feels somewhat tender and I’m having to be careful
that I don’t stretch to reach anything with my left arm. Apart from that, I’m
pretty well my usual frequently shattered self.
Tuesday, April 16, 2013
remembering Maggie - her legacy lingers on - poetry
ConDem Nation
First we eliminate
all job security -
ensure
all contracts
can be terminated
on a whim.
Knowing
that work makes free
we guarantee
the long term unemployed
will do these jobs
unpaid
Malcolm Evison
7 November 2010
MAMMON
(creator of social divisiveness)
Behold the god of lies
taker of lives
maker and breaker
of dreams -
creator god
who captivates
the mind -
spins webs
of treachery
replaces hope
with greed
installs himself
in all the highest places
proudly proclaims
there is no god but me
and we
fall for the party line.
Malcolm Evison
2 May 2010
DOLEFUL BLUES
(Just One Of Maggie’s Victims)
He seeks and fails to find
the semblance of
his once bright hope.
The family sleeps, he lies
awake, perhaps
a few untruths could make
an honest man of him.
Purveyor of unwanted skills,
he sifts through all
the cut-price vacancies –
prepares to swallow principle
as well as pride.
Malcolm Evison
14 July 1987
Wednesday, April 10, 2013
... and the usual suspects
Things seemed much
brighter, as I benefitted from the cumulative effect of two acupuncture sessions
in relatively close proximity, but these gains in terms of stamina level and
lower levels of pain weren’t destined to endure.
A bout of toothache, responding to touch and
vibration of a toothbrush but not to either heat or cold, quickly faded only to
return a couple of weeks later. The return was certainly with a vengeance as
the ache extended through my jaw right up to the chin. An emergency appointment
with the dentist led to one extraction and a course of antibiotics for a deep
rooted infection. Whereas at one time I would have taken these things in my
stride the effect has not been to dissimilar to that of a ‘Mickey Finn’.
So, Friday afternoon found
me in the dentist chair and Wednesday saw me take the final dose of amoxicillin.
On Tuesday morning I had to emerge from the duvet lair long before my usual
hour of bravely facing the (fairly) new day; my appointment had finally come
around at the Dermatology and Lesions clinic. The clinician confirmed the basal
cell carcinoma on my chest and suspects that the lesion on my leg is Bowens so,
within the next few weeks I’ll be having the bcc excised and a biopsy taken of the
suspected Bowens.
All in all, these events
have left me feeling a little more shattered than is my norm but, at least I’ve
been able to enjoy a few rare glimpses of sunshine in the garden as I watch the
birds devour whatever treats we’ve placed at the sundry feeding stations.
Tuesday, April 02, 2013
from the frontline
Sometimes it’s difficult, if not impossible, to describe the exhausting ache of self-questioning, veering towards a sense of guilt for being ill and hence, a burden or embarrassment to those who you really care about. I must be honest that even this preludium to a post doesn’t really express the underlying frustration that prompts it; at root, the knowledge that even the best of days carries a stamina rating of perhaps
20 - 30% of my pre-illness norm.
What I was really wanting to say is that the relative paucity of postings, arising from a desire to communicate (with and for whom I know not), bears little distinct correlation
to my present levels of pain, discomfort, joy or plain normality. There are times when I wish to write but simply lack the necessary energy to place the written words in any meaningful order; at other times I am positively
glowing with the enjoyment of spending time with my beloved, excited by the variety of avian visitors to our sundry garden feeding stations, or even the refreshing joy of a brief brisk venture out into the bracing air, can fill me with such glorious images which, were I to write them down, would
sound like an overblown description of some utopian paradise.
An evening cocktail of tramadol and amitriptylene tends to curb the night pains, even though sleep is invariably of a restlessly intermittent unrefreshing variety. In the morning I continue to take a low dose of sertraline which seems to control the reactive depression which this disease can so frequently carry in it’s wake. Currently I am also
taking mebeverine (3 x daily) and lansoprazole (2 x daily) in an attempt to ease my IBS and gastro-oesophageal reflux problems.
I am extremely fortunate to experience a fair number of days where pains and muscular spasms are quite simply a faint background hum, futilely struggling against my enjoyment of the day. Unfortunately, at night, as my body strives for rest the fitful pattern of sleep leaves one more vulnerable to these pernicious nauseating pains and spasms.
This afternoon, my far too familiar nausea-inducing nagging pains, emanating from the armpit and apparently gnawing through bone and muscle down through biceps to wrist, vengefully returned.
A combination of painkillers and splint type wrist supports eventually alleviated this as I rested on the sofa. And so I come to post this, in the hope that at least some of my words convey their intended meaning.
Communique ends.
Labels:
armpits,
discomfort,
garden,
GORD,
IBS,
ME,
ME-CFS,
medications,
moderate M.E.,
my beloved,
nausea,
pain,
stamina
Friday, March 29, 2013
Tuesday, March 12, 2013
utilized day but what a night
And
yesterday I was gifted with a little extra stamina and, I also felt capable of
correctly pacing my utilisation of this resource. Took advantage of this little power surge to
top-up and refill the sundry avian feeding stations in our garden; meal worms,
sunflower hearts, black sunflower seeds, suet treats etc. most of which swiftly
attracted a miscellany of birds ranging from starlings, blackbirds, finches,
blue, coal and great tits, collared doves and the odd wood pigeon were all
ready for some superior dining experience. I swiftly realised that all the birds’
watering stations needed de-icing so heated up some water.
Already my
halo was shining and, I felt totally in control of my physical stamina
resource. Mid-afternoon was time to sort out the main aquarium, changing 30
litres (out of the tanks 180litres) and changing nitrate removal filter and a
couple of others. Proud of my achievement I relaxed a little before par-boiling
a few potatoes, ready for roasting alongside the already simmering casserole
which I’d prepared on Sunday.
That’s when
the tiredness hit but, fortunately, not uncomfortably so. Come bedtime, I
started to feel that I was being punished for the day’s moderate exertions.
Perhaps I’m not handling my pacing all that well. Tenderness of the glands
under my chin and in the armpits seemed to be sufficiently calmed by a fairly
light dose of painkillers but, obviously I’d been deceived again!
Having
joined my beloved au lit, decided to watch a diverting little sitcom on TV
before snuggling down. Within about ten
minutes of attempting to settle down, the peripatetic clog dancers decided my
lower limbs were an ideal place to practice. The duvet felt as if it was
scrubbing the skin off my toes as a nausea inducing bruised aching feeling ambled
from calf to thigh and back again. Whatever angle I positioned my legs bent or straight,
stretched over the end of the bed, hung out over the bed side, the
disconcerting ache continued. At one stage I half fell from the bed, my right
calf resting on the rug whilst my left lower limb remained in bed, a real groin
stretching experience. I can assure you that this posture wasn’t the result of
any voluntary action.
Next thing,
the old familiar nauseating aches in both arms began to do their darnedest;
applying wrist support splints initially seemed to make little difference. I
found myself unwittingly whispering, and occasionally screaming, profanities
against the Gethsemane night, alongside whimpering like a lonely puppy. Many
hours later I started to enjoy a little post-dawn sleep.
Reluctantly,
I emerged from the duvet lair, and returned morning greetings to the bright
shiny sun!
Labels:
aches and pains,
activity,
aquarium,
birds,
muscle pain,
nausea,
pacing,
sleep,
spoonie,
stamina
Sunday, March 10, 2013
TRYING TIMES
And suddenly I’m swamped,
drowning in the muddy wastes of isolation. It’s not that I’m alone, nor am I
not loved; the problem is the endless nagging of sundry aches and pains, the
loss of contact with those I once considered friends as if it’s some kind of
punishment for being exhaustingly unwell. Where once I was a social and political
activist of a somewhat gregarious disposition, attending clubs, concerts,
theatre, cinema, I’m now trying hard (although it often comes quite naturally)
to be content with a lifestyle where all my entertainment has to be served at
home, and campaigning becomes virtual via the internet.
I must admit to the
blessings of TV, radio, CDs and mp3s but, they never fully compensate for the
more participative experience of actually being present in the theatre, cinema,
concert hall or jazz club. For much of the past ten years I’ve had neither sufficient
stamina or confidence to think of attending / coping with the duration of a
church service, although previously a regular attendee and house-group leader,
especially if there’s a reasonably large congregation.
Much of the time I manage
to accept these health imposed limitations without too much grieving, at others
– such as today, a sense of frustration and despondency verges on despair.
Perhaps the frustration really began when I didn’t feel really up to dining out
with my beloved and her daughters; a sense of guilt swiftly ensued as I felt,
albeit needlessly, that I was being anti-social. At times like this, I start to
feel that I’m a burden on my beloved OH and family, although they reassure me
that I’m not!
As I write my own report
card the familiar words, “must try harder”, take on a marked significance. It’s so easy to be trying, even when it’s
difficult to try.
Sunday, March 03, 2013
sunshine and celebration
Sometimes it
seems as if the day is almost over before I even get started. In one way this
is good, it’s generally a sign that I’m appreciating each waking moment, so
much so that it’s sometimes a real struggle to stop myself resenting the earth’s
rapid orbit. Recently we’ve been
sighting a bright glowing orb in the sky, bringing a little warmth and
elevating one’s spirit; after weeks of dull wet days the sunshine has proved
most welcome.
As my
beloved took a few days off work, around the time of our wedding anniversary,
time seems to pass even more sweetly as we enjoy each other’s company. Visits
to Café Culture, for a cuppa and cakes, and Al Bivio Ristorante helped heighten
the sense of celebration. We also paid a visit to the garden centre at Otley
where I acquired a new bird feeding station for the garden, finally using the
vouchers that I’d received for my birthday last June; although the centre is
less than ten miles away this was the first time I’d really felt up to spending
a little time there browsing around. I especially enjoyed looking at the
reptiles in the centre’s pet shop.
Meantime, I’ve
acquired 5 more golden and 5 white cloud minnows which, having first spent ten
days in my quarantine tank, have now
been added to the Main aquarium. It’s
really quite strange that, having introduced my beloved OH to blogging. I have
to check out Helen’s blog to see
what I’ve been up to!
On Wednesday
I had an appointment with my GP, a lesion on my leg, which I’d been attempting
to alleviate with a 1% hydrocortisone preparation, wasn’t showing any
improvement (quite the opposite in fact) so I was going to see the doctor who
specialized more in skin disorders. He was quite baffled by this particular
sore spot, it was quite unlike anything he was familiar with, definitely not
discoid eczema or Bowens etc; so he
prescribed a potent topical corticosteroid (Mometasone Furoate) which I’ve to
apply once a day for a fortnight. He also checked a small occasionally weeping
lesion on my chest which he says is a basal cell carcinoma and has duly
referred me to the District Hospital. [I’ve had previous experience of having a
bcc excised – see ‘Sunshine
and Blanket Stitch’] If the ointment applied to my leg hasn’t healed the
lesion he suggests I also have the specialist look at that when I have my
appointment for the bcc!
Another
positive outcome of the visit was to confirm that the recent X-Ray of my hips,
following a quite prolonged period of chronic pain, apparently emanating from
the right hip, showed no abnormality on the right hand side but, it did show
that I had arthiritis on the left-hand side. Fortunately, after copious doses
of tramadol & co-codamol the pain had eventually abated!
I received a
further acupuncture treatment on Thursday and, I’m no longer averse to
expecting resultant miracles. Life goes on and I’m determined to enjoy it – if only I could discover some refreshing sleep all manner of things
would be well!
Sunday, February 10, 2013
for this ordinary day ...
What a relief; today I feel much
more my usual “better-day” self! Yesterday was the kind of day one always hopes
to avoid; from waking-up, after a familiarly intermittent non-refreshing pattern
of sleep, and throughout the whole day and evening I felt numbingly exhausted, despite
the fact that the excruciating pains in my hip and left limb were quite
markedly in abeyance.
Last night, as I [un]settled down
to sleep, that once far too familiar painfully hollow sharp bruised ache in my
left arm took over. Having already taken painkillers, I duly applied a wrist
splint which seems [occasionally] to alleviate the nauseating discomfort. A
nausea inducing dull tenderness in the armpits soon became apparent; I had to
remove my [not at all tight fitting] pyjama jacket which began to feel as if it
was constricting armpits, upper arms and shoulders.
The minor setback followed eight
days in which I had felt the brightest I could remember for a considerable
time. Concentration, alertness and general sense of wellbeing were on a, far
too rare, high consequent upon the acupuncture
treatment received on 31 January.
I feel really blessed in having
visits from a physiotherapist, trained in both Eastern and Western models of
acupuncture, who has considerable experience / understanding of ME [Myalgic Encephalomyelitis]
both as a practitioner and a fellow sufferer. Being enthusiastically athletic, it
must have come as quite a blow when she succumbed to this wretched neurological
condition. Working as a physiotherapist, she had noticed the detrimental effect
that exercise was having on some of her clients; at the time I doubt whether
there was any inkling that this could become part of her own experience.
Today has been a wonderfully
relaxed time in the company of my beloved, exchanging sweet nothings, and
catching up with some recorded TV programmes. For this ordinary day – I give
thanks.
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